Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 05-27-2013, 07:00 AM #1
GirlFromNorway GirlFromNorway is offline
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Default Multiple concussions

Hi!

I'm a 26 years old girl from Norway. I've had multiple concussions in the past. Five years ago I fell off my horse and was unconscious for several minutes. I recovered completely. A year later I hit my head at the bathroom floor and the concussion symptoms was back. Two weeks after that I hit my head in the roof of my car. At that time I hadn't yet recovered from my second concussion, and I had post concussion syndrome symptoms for about 8 months after that - ringing in ears, loss of concentration, terrible headache, nausea, could not read books, computer etc. After this I almost completely recovered. However, I persisted to be extremely sensitive to any bumps when driving etc. I never hug anyone because I tend to get psc symptoms if they accidentally "hit" my head to hard. This may sound crazy, but my head is extremely sensitive. After these incidents I usually recover after about one or two weeks. But not this time.

One month ago I was driving with someone who drove on a hole in the road. This made me dizzy and all my symptoms came back. One week later I had a similar experience when an elevator I took had a hard "jerking" movement. After this I have been extremely annoyed with psc symptoms. I have ringing in my ears, dizziness, loss of concentration, irritability, terrible headache (impossible to describe) etc. I am so frustrated and afraid the symptoms will persist for monts or years. What do you think my prognosis is after these last incidents? I just finished my law degree with extremely good results and I want to work, but right now I can't even think. I am so afraid for my future, and I will rather die than have these symptoms. I don't know what to do and I am so depressed about how things have turned out. I will be extremely thankful for any advise. When can I expect my symptoms to cease after these two last incidents? Can I risk to have these symptoms for years? I know I will still be very sensitive and I try my best to avoid hitting my head, but I just want these symptoms to go away.

Sorry for my poor English skills. I hope someone could help because I'm so afraid and frustrated. Thank you in advance.
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Old 05-27-2013, 09:35 AM #2
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You have explained things very well.

However, what care have you received?

What testing have you received? What specialists have you seen or received care from, and what medications have they tried , or are you on (if any)?

Are you receiving any therapy?

Secondly, on these forums there are links for some very helpful sites for perusal to information that may help; as well as a link to a Vitamin/Supplement thread that Mark has started that is very helpful, providing nutrition support to the brain injured...... seems we all need quite a bit of this type of support which is not always provided through Allopathic physician recommendations - they aren't always into supplemental care, nor very aware of its usefulness for the most part.

One very good link for information, in my opinion is Brainline.Org , read through and see what you think.

Many others may post and offer other links and advice. We are all here to help each other..........

Best wishes...........

Your first step is this one, welcome.
__________________

.
Current: Changes of more insomnia, new reviews with findings of more Depression, tremors, vertigo, tinnitus, loss of focus, fatigue; SSDI - accepted on Depression, Cognitive Deficits; Seizures ruled out, mTBI changes including cognitive slowing/lapses.
Medication update: Topamax 200mg twice daily it seems to minimize daily headaches to a 1-2/10 quality(I still know they are there); and acute headaches erupt without warnings.
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Old 05-27-2013, 09:42 AM #3
GirlFromNorway GirlFromNorway is offline
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Default Multiple concussions

Thank you so much for your reply and good tips. I haven't received any treatment or therapy (a little acupuncture which didn't help that much). I've visited many doctors (the health care system in Norway is free and usually pretty good), but they say they can't help me. All they can say is that I have to rest. However, I do nothing else than resting.

Quote:
Originally Posted by Concussion View Post
You have explained things very well.

However, what care have you received?

What testing have you received? What specialists have you seen or received care from, and what medications have they tried , or are you on (if any)?

Are you receiving any therapy?

Secondly, on these forums there are links for some very helpful sites for perusal to information that may help; as well as a link to a Vitamin/Supplement thread that Mark has started that is very helpful, providing nutrition support to the brain injured...... seems we all need quite a bit of this type of support which is not always provided through Allopathic physician recommendations - they aren't always into supplemental care, nor very aware of its usefulness for the most part.

One very good link for information, in my opinion is ... , read through and see what you think.

Many others may post and offer other links and advice. We are all here to help each other..........

Best wishes...........

Your first step is this one, welcome.
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Old 05-27-2013, 10:38 AM #4
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Default So sorry to hear it

Hello Girl from Norway,

Welcome to NeuroTalk -- this is a good place.

I don't know much about problems from multiple concussions. I've had about 2 in my life so far and the most recent one was 3 months away.

I've been learning from this board that though I may heal, it seems once we've had head trauma, we are more prone to it -- just like what you wrote about. And life may now be learning to live around the things that trigger it-- just as you did and do.

Someone else pointed out the vitamin stickie at the top and I am a believer in nutrition. I follow the regimin posted there and added supplements to it.

Tell us anything more you want about your symptoms etc and more people here will weigh in.

Sincerely

pm
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013.

Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines,

Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something.

Therapy I had: vestibular

3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling.

9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms.
I pray every day and I m praying for your recovery.

Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired.
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Old 05-27-2013, 11:56 AM #5
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I would recommend that you arrange an appointment with a Neurologist/ Physiatrist and a NeuroPyschologist for evaluation of your needs.

Neurologist/Physiatrist for ongoing care and medication needs, if any; and directed care to therapies; and NeuroPsychologist for thorough evaluation of any depression associated with the concussion/pcs and cogitive issues... and recommendations of follow-up for therapy.

These are the usual practical needs with your current concussion/pcs complaints.

Have you been experiencing any vertigo, tinnitus, vision difficulties that seem to accompany you current complaints or are situational? Let your future care giver know about those also, even if they do not ask - many practitioners are not fully up-to-date about Concussions/PCS care and give those answers you have already received, and we as patients usually have to educate them as we go for care.

Best Wishes..........
__________________

.
Current: Changes of more insomnia, new reviews with findings of more Depression, tremors, vertigo, tinnitus, loss of focus, fatigue; SSDI - accepted on Depression, Cognitive Deficits; Seizures ruled out, mTBI changes including cognitive slowing/lapses.
Medication update: Topamax 200mg twice daily it seems to minimize daily headaches to a 1-2/10 quality(I still know they are there); and acute headaches erupt without warnings.
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Old 05-27-2013, 12:22 PM #6
GirlFromNorway GirlFromNorway is offline
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Default

Thanks again. I will contact the specialists you mention. I feel so frustrated. I am so afraid my symptoms won't go away this time. Yes, I have tinnitus etc. I have vision issues, but mostly in the form of "slow" vision. I feel sleepy without any energy. I also have a hard time talking fast.

Thanks for all your help.

Quote:
Originally Posted by Concussion View Post
I would recommend that you arrange an appointment with a Neurologist/ Physiatrist and a NeuroPyschologist for evaluation of your needs.

Neurologist/Physiatrist for ongoing care and medication needs, if any; and directed care to therapies; and NeuroPsychologist for thorough evaluation of any depression associated with the concussion/pcs and cogitive issues... and recommendations of follow-up for therapy.

These are the usual practical needs with your current concussion/pcs complaints.

Have you been experiencing any vertigo, tinnitus, vision difficulties that seem to accompany you current complaints or are situational? Let your future care giver know about those also, even if they do not ask - many practitioners are not fully up-to-date about Concussions/PCS care and give those answers you have already received, and we as patients usually have to educate them as we go for care.

Best Wishes..........
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Old 05-27-2013, 12:25 PM #7
GirlFromNorway GirlFromNorway is offline
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Default

Poetrymom: Thanks a lot for your reply. Do you heal from your multiple concussions, in the form of being symptom free if you are careful so you don't get more traumas? I know me head will be extremely sensitive for traumas the rest of my life. However, I wonder if I ever will be symptom free this time? If not, I don't know what to do.

Quote:
Originally Posted by poetrymom View Post
Hello Girl from Norway,

Welcome to NeuroTalk -- this is a good place.

I don't know much about problems from multiple concussions. I've had about 2 in my life so far and the most recent one was 3 months away.

I've been learning from this board that though I may heal, it seems once we've had head trauma, we are more prone to it -- just like what you wrote about. And life may now be learning to live around the things that trigger it-- just as you did and do.

Someone else pointed out the vitamin stickie at the top and I am a believer in nutrition. I follow the regimin posted there and added supplements to it.

Tell us anything more you want about your symptoms etc and more people here will weigh in.

Sincerely

pm
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Old 05-27-2013, 01:13 PM #8
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Default Healing

Quote:
Originally Posted by GirlFromNorway View Post
Poetrymom: Thanks a lot for your reply. Do you heal from your multiple concussions, in the form of being symptom free if you are careful so you don't get more traumas? I know me head will be extremely sensitive for traumas the rest of my life. However, I wonder if I ever will be symptom free this time? If not, I don't know what to do.


Hello again GirlfromNorway,

The first concussion I had was when I was 9 or 10. I hit concrete pavement from swinging on a rope swing in our garage. I healed completely from that. I had forgotten about it until the damage showed up on my MRI.

I am now 48 and got a mild concussion, tBi -- brain injury, from the car accident in Feb. I had bed rest for about a week after that, felt better, then all my symptoms -- dizziness, sound and light sensitivity, fatigue, came back. I had to let work go for the rest of the year and then I started to really rest and feel better.

I feel better, but I know I am not recovered. I still get tired, and have some issues with sound / noise, and being around a lot of people can be really tiring for me too.

As for work again, well, I want to, but I know that I have to handle stress differently and maybe I will have a career change. I don't like to think of that, but it may be a reality for me. It remains to be seen.

I have hope that I will continue to get better, but it takes time, as you know, and no one can say how much time is enough. I try not to let that aggravate me.

I know you are really upset about your symptoms coming back and I don't know why that happens either. I know there are other, really experienced people here who will weigh in with their insight.

In the meantime, really try to take care of yourself -- meditation, a hot bath, any healthy thing you can do to feel better is important.

Sincerely,

pm
__________________
[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013.

Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines,

Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something.

Therapy I had: vestibular

3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling.

9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms.
I pray every day and I m praying for your recovery.

Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired.
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Old 05-27-2013, 07:58 PM #9
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Default Similar issues

Hi Norway Girl,


I am dealing with very similar issues after suffering my 5th sports related concussion playing hockey on December 9 th. I keep aggravating the PCS symptoms when i feel like they are starting to ease and I don't think that I am getting any better. I have a 16 month old son who is constantly lightly head butting and hitting my head when I play with him. Even when I sneeze I feel my head rattle.
I started a new job this year as a high school administrator and I have not been able to take much time off.
I have been to three neurologists including two concussion specialists but i feel like i havent had much luck with any of them. I just started taking desipramine last week to help with the headaches and insomnia. It takes three weeks to work so I haven't seen any results yet.
Over the past six months I have realized that sleep and rest (not getting enough of either due to new job and baby)are the only things that seems to make a difference.
I wish I had more advice for you. If you figure out something that works, please let me know.

-Noland


I'm a 26 years old girl from Norway. I've had multiple concussions in the past. Five years ago I fell off my horse and was unconscious for several minutes. I recovered completely. A year later I hit my head at the bathroom floor and the concussion symptoms was back. Two weeks after that I hit my head in the roof of my car. At that time I hadn't yet recovered from my second concussion, and I had post concussion syndrome symptoms for about 8 months after that - ringing in ears, loss of concentration, terrible headache, nausea, could not read books, computer etc. After this I almost completely recovered. However, I persisted to be extremely sensitive to any bumps when driving etc. I never hug anyone because I tend to get psc symptoms if they accidentally "hit" my head to hard. This may sound crazy, but my head is extremely sensitive. After these incidents I usually recover after about one or two weeks. But not this time.

One month ago I was driving with someone who drove on a hole in the road. This made me dizzy and all my symptoms came back. One week later I had a similar experience when an elevator I took had a hard "jerking" movement. After this I have been extremely annoyed with psc symptoms. I have ringing in my ears, dizziness, loss of concentration, irritability, terrible headache (impossible to describe) etc. I am so frustrated and afraid the symptoms will persist for monts or years. What do you think my prognosis is after these last incidents? I just finished my law degree with extremely good results and I want to work, but right now I can't even think. I am so afraid for my future, and I will rather die than have these symptoms. I don't know what to do and I am so depressed about how things have turned out. I will be extremely thankful for any advise. When can I expect my symptoms to cease after these two last incidents? Can I risk to have these symptoms for years? I know I will still be very sensitive and I try my best to avoid hitting my head, but I just want these symptoms to go away.

Sorry for my poor English skills. I hope someone could help because I'm so afraid and frustrated. Thank you in advance.[/QUOTE]
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Old 05-28-2013, 07:57 PM #10
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Default You WILL improve

Quote:
Originally Posted by GirlFromNorway View Post
Hi!

I'm a 26 years old girl from Norway. I've had multiple concussions in the past. Five years ago I fell off my horse and was unconscious for several minutes. I recovered completely. A year later I hit my head at the bathroom floor and the concussion symptoms was back. Two weeks after that I hit my head in the roof of my car. At that time I hadn't yet recovered from my second concussion, and I had post concussion syndrome symptoms for about 8 months after that - ringing in ears, loss of concentration, terrible headache, nausea, could not read books, computer etc. After this I almost completely recovered. However, I persisted to be extremely sensitive to any bumps when driving etc. I never hug anyone because I tend to get psc symptoms if they accidentally "hit" my head to hard. This may sound crazy, but my head is extremely sensitive. After these incidents I usually recover after about one or two weeks. But not this time.

One month ago I was driving with someone who drove on a hole in the road. This made me dizzy and all my symptoms came back. One week later I had a similar experience when an elevator I took had a hard "jerking" movement. After this I have been extremely annoyed with psc symptoms. I have ringing in my ears, dizziness, loss of concentration, irritability, terrible headache (impossible to describe) etc. I am so frustrated and afraid the symptoms will persist for monts or years. What do you think my prognosis is after these last incidents? I just finished my law degree with extremely good results and I want to work, but right now I can't even think. I am so afraid for my future, and I will rather die than have these symptoms. I don't know what to do and I am so depressed about how things have turned out. I will be extremely thankful for any advise. When can I expect my symptoms to cease after these two last incidents? Can I risk to have these symptoms for years? I know I will still be very sensitive and I try my best to avoid hitting my head, but I just want these symptoms to go away.

Sorry for my poor English skills. I hope someone could help because I'm so afraid and frustrated. Thank you in advance.
There are treatments and medications that can help, if your symptoms aren't resolving on their own. If you look at my signature, you will see that it is entirely possible to get better. Am I 100% better? No, but I'm about 90% better after about 9 months since I started the recovery process of rest and therapy. My bothersome symptoms are vision-related, and i expect they will resolve after further therapy.

Since I started an antidepressant, I am no longer depressed or lethargic, and I seem to have regained my stamina as well, or at least it's improved a lot. It sounds like an antidepressant might be in order, if you are feeling as despondent as you seem. Being depressed and anxious can negatively impact your recovery, so I would definitely talk to a doctor about how your feeling.

Don't lose hope! You can live a full, rich life. It just takes time and patience to recover.
__________________
I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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