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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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06-01-2013, 08:09 PM | #1 | |||
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Hello Everyone,
I hope you are all well! I have not posted in quite a long time and it's mostly because I've been on an emotional rollercoaster and now have been an inpatient in the mental health ward of my local hospital since May 14'th. They are starting the transfer procedures to send me to either Toronto or Hamilton (Chedoke?) and I was just wondering if anyone has any experience with either of these places or can recommend another inpatient location in Ontario that has great services. The doctors here are great and the programs are great but they are too intensive for someone with a brain injury and the doctors are having a hard time finding meds to help me that my brain will tolerate. Thank you for any information you can give me! I hope to be more active on here again once I'm out. Take care, CC
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I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world. Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances. Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident. The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful! My brain WANTS to heal itself... I just have to let it and stop trying to get better! |
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"Thanks for this!" says: | anon22217 (06-02-2013) |
06-02-2013, 08:05 AM | #2 | ||
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I hope that you are healing. It is a tough road but you will be able to get through this. Hour by hour, day by day. I don't have experience with those places, but just wanted to send you encouragement and healing thoughts. Dig deep and hang in there!!!! Thinking of you.
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. |
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"Thanks for this!" says: | cyclecrash (06-02-2013) |
06-02-2013, 08:31 AM | #3 | ||
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Hi,
There are so many changes to the health system in Ontario it is hard to keep up, but I keep thinking that a Intake Brain Injury Rehab Centre might be a better bet. In Ottawa there is the Ottawa Brain Injury Rehab Centre and the Robin Easy Brain Rehab. Again there are waiting list for everything. I have a good group of professionals helping me, but lately I know I my depression has got worse. I think I was waiting for the spring and it gets here and I am still having all kind of issues. I will be thinking of you and sending positive vibes, it can really be hard for others to understand what it is like to loose you whole life and start rebuilding without concrete blocks and a lot of I don't knows. Although you may not be able to get into either of these places you could call and see if they know of any other resources. I have been waiting to see a physchologist since December but there again are waiting list. I want to see a physchologist that specialize in accidents and brain injuries, I really feel it will be a waist of time to go to anyone else. Keep truckin you will get there!!!! |
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"Thanks for this!" says: | cyclecrash (06-02-2013) |
06-02-2013, 08:55 PM | #4 | ||
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Dr Bhalero at St Michael's brain trauma clinic in Toronto was nice...he understands brain injury I think. He is a psychiatrist and may practice at some of the other hospitals.
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. |
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"Thanks for this!" says: | cyclecrash (06-03-2013) |
06-03-2013, 04:18 PM | #5 | |||
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Cycle I am keeping you in my prayers.I have hope to see you post again in the future and keep faith within you.Mia
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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