Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 06-30-2013, 02:11 PM #11
Mark in Idaho Mark in Idaho is offline
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After a hysterectomy, your cycle should be flat. There are mail order saliva tests. They are not as accurate but lacking ovaries should mean you don't have wild swings. If you did a few saliva tests at the various days and times of day, you may find a problem. An integrative medicine physician may be helpful. Google "saliva hormone testing for women" and you will find lots of in formation.

Adrenal fatigue, cortisol dysfunction and other hormonal issues can all contribute to your struggles.

I understand the difficulty finding the right doctor when limited to a government based/directed health plan. The US Medicare system has many of the same barriers.

My best to you.
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Old 06-30-2013, 02:29 PM #12
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Default hormones, yes

Cycle Crash

Mark has nailed some important things to look at here. Our hormones and brain chemistry are very linked.

I learned a lot from the book Female Brain Gone Insane -- it's where I learned about the supplements I take.

Anyhow, I don't always understand the medical words here, but I get the gist and do look into your hormones.

Praying for your recovery.

Sincerely,

pm
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013.

Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines,

Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something.

Therapy I had: vestibular

3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling.

9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms.
I pray every day and I m praying for your recovery.

Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired.
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Old 06-30-2013, 03:53 PM #13
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Whenever I read of troubles suffered by persons going through the turmoil of Bipolar disorder and treatment, and the poly-pharmacy approaches practiced by varied Psychiatric groups, it always brings me back to wondering if we will ever be able to find the panacea for that care.

Anyway, this one article comes to my mind so often that I bookmarked it, and when I see folks on so many different medications I always re-read it:

The Most Important Article On Psychiatry You Will Ever Read............ its just something I have to keep reading...... because years ago, we were always told "shot gun approaches were not the way to treat people" however with some conditions a little of this and a little of that may just be the way.

Best Wishes on your recovery, CycleCrash...........
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Current: Changes of more insomnia, new reviews with findings of more Depression, tremors, vertigo, tinnitus, loss of focus, fatigue; SSDI - accepted on Depression, Cognitive Deficits; Seizures ruled out, mTBI changes including cognitive slowing/lapses.
Medication update: Topamax 200mg twice daily it seems to minimize daily headaches to a 1-2/10 quality(I still know they are there); and acute headaches erupt without warnings.
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Old 06-30-2013, 07:31 PM #14
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I should have specified that I still have my ovaries so I still have those hormonal issues too. Fun wow!

Concussion, that article was really something. Quite a hard read for me right now but very interesting and explains a lot of things! They are definitely trying a shotgun approach with all the different meds I am on right now for everything from sleep to depression to anxiety. I never even thought that pleasure seeking might be a "symptom" too I just thought those were good days

Too much to think about. I tried going off all meds because I wanted to know what the real me was like again and I was in bed for over 40 hours and was suicidal so that test didn't go well. It's tough when your brain does not feel like it's you anymore.

I hope everyone sleeps well tonight. Thank you for the advice and support.

CC
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I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world.

Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances.

Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident.

The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful!

My brain WANTS to heal itself... I just have to let it and stop trying to get better!
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Old 06-30-2013, 08:43 PM #15
Mark in Idaho Mark in Idaho is offline
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You can discover your cycle with an ovulation test. Women trying to get pregnant use them to find their most fertile time. They will tell you that point in your cycle.

Some women develop an allergy to the eggs that need to be absorbed rather than expelled. This can happen to women with tubal ligation. The same happens to some men who have vasectomies. Some immune system testing may be worthwhile. Inflammation from immune reactions could be an issue.

Have you found any doctors who are willing to think outside the box ? It may be the key to understanding your condition.

My best to you.
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Old 06-30-2013, 10:06 PM #16
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Default Mark is right

Yes CC

Mark just said it so well. See about hormone testing. It is just that important.

When my hormones took me for a wild ride back in 09, I had such anxiety -- and the book I mentioned really helped me.

I know you have a lot of medical issues on your plate.

Here's wishing you healing and better health to come.

Sincerely,

pm
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013.

Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines,

Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something.

Therapy I had: vestibular

3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling.

9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms.
I pray every day and I m praying for your recovery.

Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired.
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Old 07-01-2013, 12:24 AM #17
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Cyclecrash, your postings here have given me so much help and insight as I recover, I just wanted to give you some light and healing from sunny Berkeley.

I'm sorry you have another issue to address on top of the tangle that is pcs/mtbi, but I hope you keep advocating for yourself to find the right help - whatever the form it is.

Day by day---
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The event: Rear ended on freeway with son when I was at a stop in stop and go traffic July 2012. Lost consciousness.

Post-event: Diagnosed with post-concussion syndrome, ptsd, whiplash, peripheral and central vestibular dysfunction and convergence insufficiency. MRI/CT scans fine.

Symptoms: daily headaches, dizziness/vertigo, nausea, cognitive fog, light/noise sensitivities, anxiety/irritability, fatigued, convergence insufficiency, tinnitus and numbness in arms/legs.

Therapies: Now topamax 50mg daily; Propanolol and Tramadol when migraine. Off nortryptiline and trazodone. Accupuncture. Vitamin regime. Prism glasses/vision therapy. Vestibular therapy 3month. Gluten free diet. Dairy free diet. On sick leave from teaching until Sept. 2014.
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Old 07-02-2013, 06:15 AM #18
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Default Sorry to hear you are going through so much!

I wasn't able to read the other posts, but I wanted to say that my brother has bipolar disorder, and he is living a very happy, very productive life. His worst period, he was so bad off, they thought he was schizophrenic, but it's ten years later and he hasn't had a serious problem since then (fingers crossed!) even through his personal life has had many ups and downs. My thoughts and prayers are with you.
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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Old 07-04-2013, 06:57 PM #19
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I will definitely have to check out that book and thanks again everyone for all the words of support and advice. Still plugging along upping one med and lowering another and adding another. Such a juggling game! I feel pretty good at the moment but tomorrow's increase could change it all in one moment.

The great news is that I finally have a neuro opthalmologist appointment for July 23'rd!!!! Finally going to get these eyes looked at. I had great success with an optometrist that prescribed prism glasses but I still have too much eye strain and cannot progress so I'm very hopeful the neuro opth. might have some ideas.

Take care,

CC
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I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world.

Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances.

Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident.

The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful!

My brain WANTS to heal itself... I just have to let it and stop trying to get better!
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Old 07-04-2013, 07:43 PM #20
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Default Hi cyclecrash

Sorry you are going through all that. I am 61 and just dx'd last year being bi-polar too. Evidently I had tendencies toward that all my life. I am over emotional at times. Currently I am on zoloft and serequel as well. Moods have stabalized. I have 5 auto immune conditions,and I wasn't handling them particualry good. I don't know if a concusion can cause bi-polar, the doc. said I might have been born this way. My parents complained I was antsy all my life. So.... are you feeling any better these days? I know the hospital isn't any fun. The meds you are on, should work for bi-polar to my knowledge. I am not familiar with the medication you mentioned that they wanted to switch you to.
I know all these emotions, are difficult, I do wish you all the best. There are alot of bi-polar people on this site. Check out that forum OK? I just wanted you to know, you are not alone. Life throws some real left hooks at you at times. Not all of us are equipped to handle many stresses at one time. You will find some friends here also. On the bottom of the page, there is also Neuro Talk for mental health issues. Both sites, do both medical and mental issues. Explore all you want. I am glad you found us. Hope your 4th was a good one and didn't get rained out like we did. ginnie
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