Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 07-03-2013, 03:04 PM #1
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Default List of Doctors who get it and those who don't

I know this may be somewhat gauche, but I think we should help eachother out here by naming names. We have all wasted time and money with doctors who have wrongly diagnosed us with depression or anxiety or god-knows-what. I have found this to be traumatic and would like to save others from this. If you feel the same, add to my list.

Chicago Area Doctors who understand PCS:
James Young -Neurologist- Rush Hospital
Deborah Zelinsky-Neuro-optomologist-private practice Northbrook, Illinois
Geri Morris, Phd-Neuropsychologist private practice Northbrook, Illinois


Chicago Area Doctors who were unhelpful or worse
Elizabeth Pieroth, Psy D North Shore Health Systems
James Castle, MD North Shore Health Systems
Mary Angelopous, DO private practice in Northbrook
Dr. Ronald May, Opthamologist private practice Deerfield
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Old 07-03-2013, 05:44 PM #2
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Default Hi concussed

I agree with posting names. I think this should be done with each speciality. I know too many people who wasted time, money, health, and sanity on doctors who are not good. ginnie
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Old 07-03-2013, 09:56 PM #3
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I would only suggest that you let them know how comfortable they have made you feel, and ask their permission to post that information, first.

They may have reservations on being spotlighted.

Just saying.

It is a good idea, and worthwhile, on merit.

Best wishes................
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Current: Changes of more insomnia, new reviews with findings of more Depression, tremors, vertigo, tinnitus, loss of focus, fatigue; SSDI - accepted on Depression, Cognitive Deficits; Seizures ruled out, mTBI changes including cognitive slowing/lapses.
Medication update: Topamax 200mg twice daily it seems to minimize daily headaches to a 1-2/10 quality(I still know they are there); and acute headaches erupt without warnings.
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Old 07-03-2013, 10:17 PM #4
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Default Agree with concussion

I think Concussion is right.

This concept is a good one, but maybe rethink how you can go about it and avoid a slander suit.

Just my 3 cents

pm
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013.

Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines,

Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something.

Therapy I had: vestibular

3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling.

9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms.
I pray every day and I m praying for your recovery.

Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired.
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Old 07-03-2013, 11:28 PM #5
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Personally I don't think this is the appropriate forum for this. There are sites that do this (ratemds.com, healthgrades.com). On those types of forums you can find and rate MD's by specialty and geographic area. Here we have posters from all over the globe. I don't need a rating (good or bad) for a neurologist in the UK. This forum is supposed to foster support and discussion, I don't see where this thread accomplishes that goal.
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What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition.

Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life.
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Old 07-04-2013, 02:39 AM #6
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Default

I am familiar with one on the not helpful list and I'm not surprised. It's nice to know I'm not alone in my feelings.

It was hard to find doctors. I went through several before finding the right fit. If the people that actually 'get' me on here can't help me find a dr. for our specific needs who can?

I appreciate the info and would like more on the neurologist.

Thanks, Jace
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Old 07-04-2013, 04:28 PM #7
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I did a bit of searching and found this-

[libel 1) n. to publish in print (including pictures), writing or broadcast through radio, television or film, an untruth about another which will do harm to that person or his/her reputation, by tending to bring the target into ridicule, hatred, scorn or contempt of others. ]
more - http://legal-dictionary.thefreedictionary.com/libel

Slander is a similar but verbal version.

If you have concerns about such, you can always just list the good & helpful doctors.
A doctor's name & city, state, or country would be best as there may be same or similar names that come up when others do only name searches..

PMs can be used to share more information.


Saying one is helpful, or not helpful is a pretty safe way to state your opinion.
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Old 07-04-2013, 04:49 PM #8
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I agree that we should limit our comments about doctors as

Helpful ...... include the symptoms they were helpful with

Not helpful ..... maybe a specific note that they denied your specific symptom or made negative comments about your complaints, such as listing "Somatoform Disorder" in your medical record. This can be the kiss of death to future treatment.

I think the more important comments needed are about those who claim to be concussion specialists. Did anybody see a 'concussion specialist' who helped or was of no help ?

There are doctors and therapists who may be excellent with a specific concussion symptom or two but are entirely useless with other symptoms from concussion.

We also do not want to create a situation where someone feels they need to travel quite a distance and pay a bunch of money out of pocket just because Dr So-n-So successfully treated Sally Slip-n-Fall for her injury.

Some time ago, a NT participant took her daughter from the New England area to Dallas, Texas to see Dr Jonathan Walker for treatment with his qEEG based NeuroFeedback therapy. It was expensive and time consuming but it appeared to help her daughter.

In my experience, RateMD and Healthgrades have been poor sources for information about treating specific injuries. I use them to find the CV (Curriculum Vitae) of doctors so I can understand where they trained and what accomplishments they have attained. Finding a doctor who has contributed to a published report about concussion, then reading that report can be a big help.
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Old 07-04-2013, 07:55 PM #9
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Does anyone know a good doctor to see from new York for head injuries?
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Old 07-05-2013, 03:44 AM #10
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markneil,

Until you find a way to reduce stress in your life, I doubt that finding any specific doctor will help much. The doctor you need will be able to convince you about reducing stress. Besides, it's more likely that you need a doctor who has experience with drug caused brain dysfunction, such as a doctor who deals with recovery from addiction or other poisonings.
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