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Old 07-30-2013, 12:38 PM #1
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supermansmom supermansmom is offline
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Location: Elko, NV
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supermansmom supermansmom is offline
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Join Date: Jul 2013
Location: Elko, NV
Posts: 21
10 yr Member
Default One Awesom and one GRRR

Hi everyone,
Zeth has had a break thru. He has been walking with a walker just at his PT place.

Now his PT has given the OK to walk with his walker anywhere AS LONG AS we tote a chair behind him so when his brain turns off and he blacks out that we can sit him in the chair before he collapses to the ground.


Zeth walked 200 meters around the football track yesterday with his walker.


Of course the Grrr part is this: The Neuro wanted to try a new drug that may help with his blacking out, but the insurance nixed it saying they wanted more studies done on him to prove he needs this med.

So we set up a sleep study for next week and now the insurance says it isn't going to OK the sleep study. They don't think that this is a medical necessity.

Really blacking out while walking seems like a problem to me.
__________________
September 16, 2011 my son collapsed on the football field due to a subdural hematoma. He was life flighted to the hospital where they did emergency surgery. At first the DR said that he thought everything would be fine. Then his brain started swelling three days later, he had midline shift to the right side cavity and then the brain herniated onto the brain stem. They did not think he would make it. They stabilized until family could come. After family got there, he began to stabilize. We were counseled to "let him go" because the brain damage would be extensive. We chose life. He was in a coma for 48 days and then a vegetative state for another 58 days. He was considered semi-conscious Jan. 5, 2012. It is now July 2013. He has no short term memory, still is now walking with a walker, and has issues with expressive language, and is incontinent.
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