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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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#51 | ||
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he is just not telling his friends about the trip. keeps all the questions away i am sure if it works he wil tell everyone |
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#52 | ||
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Legendary
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"embarassed to be traveling to atlanta when other guys he knows just get over it on their own." He needs to understand that no two concussions are the same. In fact, research shows that there is little connection to impact forces and the time it takes to recover from a concussion. He needs you to help him grow up in this area. Otherwise, he will put himself at risk by hiding head impacts from you and his coaches. Getting a concussion is not a sign of weakness.
Does he know of all the pros who have been to Carrick ? Sidney Crosby is probably the most famous.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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#53 | ||
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Junior Member
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he knows all concussions are different that is why he is afraid atlanta wont work for him and he will have to explain more to his friends we are respecting his not telling his friends about the trip |
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#54 | ||
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yes, i'm on meds and they didn't touch anything and don't get involved in that. i did reduce my meds dramatically while there and since. i'm continuing to gradually wean myself down with guarded optimism. |
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#55 | ||
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how is your headache today? i hope you can get off all your meds, wouldn't that be amazing! |
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"Thanks for this!" says: | PCSfog2012 (10-09-2014) |
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#56 | ||
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If and when I'm better, believe me: everyone will know as I'll shout from the rooftops. Ok, maybe not the rooftops since I can't afford a fall ![]() |
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#57 | ||
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i hear ya.. if it works, we tell EVERYONE but for right now the close family members that do know are already talking about it too much and putting too much pressure on him. it is true, unless you live with this day in and day out you cannot possibly understand. he never understood before this either. the toughest thing for me to get is how last week can be better than this week!!! if time heals and he did nothing different this week then last. the fact that the progression is not in a straight line is so hard to understand and to deal with. where did the doctors stand with you on doing too much... cognitive or physical. did they tell you to slow down, speed up... my son's doctor has him so afraid to do anything. he doesn't even want him out watching a sporting event. like i have said before this doing nothing is depressing, isolating and thus far has not made a difference that he can tell. i am sorry if i am asking you too many questions. i am just happy to talk to someone who is going through it. |
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"Thanks for this!" says: | PCSfog2012 (10-09-2014) |
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#58 | ||
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My doctors wanted me doing nothing in the beginning but that was after I had already been working 7 days a week for 8 months with full blown symptoms. When they told me to stop I did, but things got worse for a while. It's a very difficult balance that I have yet to figure out. Like your son, I live in fear of triggering attacks which limits my activity. I sent you a private message if you have more specific questions that you prefer to keep off the main forum. Happy to share my experience but that's all that I have; and there are so many others that can share theirs as well. I wish it was as simple as A causes B and C causes D, but our brains are so much more complex than that. Kids take longer to recover and I hope your son recovers fully. Like others have said, the less we (try so hard) not to worry about it, the better off we will be. Much easier said than done for me especially with some other health issues creeping up that I've never had. A true concussion expert ,while hard to find, is vital to recovery in my humble opinion. Last edited by PCSfog2012; 10-09-2014 at 10:19 AM. Reason: typo |
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#59 | ||
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Member
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Thanks for the detailed and thoughtful response. I hope the exercises they've given you help you.
How long did it take you to get into the clinic? Also can you expand on your horizontal nystagmus and any changes you've subjectively noticed? Additionally, can you expand on your vertigo, the causes (is it positional?) And any affects the clinic's therapies may or already have had on you? Lastly, have your tolerance/endurance levels improved since you left the clinic?
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Large deep left-hemisphere cerebellar lesion removed in early 2013. Age of surgery 22. Last edited by cerebellarmaniac; 10-09-2014 at 07:47 PM. |
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#60 | ||
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Hope that answers your questions. And please be reminded this is only one person's unique injury, treatment plan, and very preliminary results. Cautiously optimistic...... Last edited by PCSfog2012; 10-10-2014 at 08:58 AM. Reason: font |
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