[Galaxy1012]

Am I the only one feeling ****** off at the medical world for abandoning people who are concussed? I mean seriously, there is absolutely nothing that can help us unless there is a serious brain injury for which there are partially working therapies! Heck there are still no machines to scan our injuries leave alone treating them. Shame on our so called modern medical community who has been continuously being so ignorant and arguing towards poor concussed people telling them it's all in their minds and disrespecting us...No courtesy or empathise our pains..we are left alone to grieve cry and heal on our own..beg others to just believe us and understand..we don't expect any treatments just believe us..it's sad.

It's even more disappointing considering that concussion is the most common injury on this planet..why is this happening? Just because our injuries are invisible doesn't mean nothing had happened with us. We had a bloody head trauma. My neuro offended me by telling me that I should lose weight and nothing is wrong with me. We come to you hoping that you will understand and explain others our situation. Unfortunately most of the doctors have been like this so far in my concussion journey. Screw you doctors! We are better off without your help. You losers make us feel worse.

[anon1028]

Originally Posted by Galaxy1012

Am I the only one feeling ****** off at the medical world for abandoning people who are concussed? I mean seriously, there is absolutely nothing that can help us unless there is a serious brain injury for which there are partially working therapies! Heck there are still no machines to scan our injuries leave alone treating them. Shame on our so called modern medical community who has been continuously being so ignorant and arguing towards poor concussed people telling them it's all in their minds and disrespecting us...No courtesy or empathise our pains..we are left alone to grieve cry and heal on our own..beg others to just believe us and understand..we don't expect any treatments just believe us..it's sad.

It's even more disappointing considering that concussion is the most common injury on this planet..why is this happening? Just because our injuries are invisible doesn't mean nothing had happened with us. We had a bloody head trauma. My neuro offended me by telling me that I should lose weight and nothing is wrong with me. Screw you doctors! We are better off without your help. You losers make us feel worse.

I JUST posted info on how 3 tesla machines are going to guide cognitive rehabilitation from brain injury and should be common within a few years,

There are also other interesting clinical trials going on especially with possibly 400000 soldiers having head injuries from the war, we are seeing more money put towards brain injury

We need to stay in contact with and push brain injury organizations on what is going on in cutting edge research. I talk semi regularly to a director at BIUSA and let him know the suffering we are going through and he says he will update me on any interesting advances or clinical trials.

We also need to call these agencies and make sure they're doing their jobs. This gentleman told me he gets thousands upon thousands of calls a year asking what is being done.

There are literally thousands of trials going on at universities and I follow as much as I can. We need to make healing tbi/abi/pcs a priority to those in charge.

[anon1028]

Originally Posted by Galaxy1012

Am I the only one feeling ****** off at the medical world for abandoning people who are concussed? I mean seriously, there is absolutely nothing that can help us unless there is a serious brain injury for which there are partially working therapies! Heck there are still no machines to scan our injuries leave alone treating them. Shame on our so called modern medical community who has been continuously being so ignorant and arguing towards poor concussed people telling them it's all in their minds and disrespecting us...No courtesy or empathise our pains..we are left alone to grieve cry and heal on our own..beg others to just believe us and understand..we don't expect any treatments just believe us..it's sad.

It's even more disappointing considering that concussion is the most common injury on this planet..why is this happening? Just because our injuries are invisible doesn't mean nothing had happened with us. We had a bloody head trauma. My neuro offended me by telling me that I should lose weight and nothing is wrong with me. We come to you hoping that you will understand and explain others our situation. Unfortunately most of the doctors have been like this so far in my concussion journey. Screw you doctors! We are better off without your help. You losers make us feel worse.

Also I have struck gold with a young physician's assistant who told me the mri they use won't show any of the injury I have, but he believes me and he is working with me as best he can. He is already helping me sleep after 8 years of insomnia/half sleeping.

Young professionals tend to be more up to date and modern in their thinking and knowledge. Seek them out. There is also a vision test I took that indicated damage to 3 different parts of my brain, and when I confronted another doctor on the results, he said "oh yeah, that is organic damage we cant see" So I basically made him admit negative mri was wrong.

We have to advocate so hard for ourselves because I have no intention of living the rest of my life feeling like I do right now.

[Slg1]

Originally Posted by markneil1212

Also I have struck gold with a young physician's assistant who told me the mri they use won't show any of the injury I have, but he believes me and he is working with me as best he can. He is already helping me sleep after 8 years of insomnia/half sleeping.

Young professionals tend to be more up to date and modern in their thinking and knowledge. Seek them out. There is also a vision test I took that indicated damage to 3 different parts of my brain, and when I confronted another doctor on the results, he said "oh yeah, that is organic damage we cant see" So I basically made him admit negative mri was wrong.

We have to advocate so hard for ourselves because I have no intention of living the rest of my life feeling like I do right now.

Do you know the name of the eye test? Thanks.

[anon1028]

Originally Posted by Slg1

Do you know the name of the eye test? Thanks.

No. It;s the wierdes test. You put on these huge goggles and then follow a dot. and then they lay you down and blow wind into youre ears and test your eyes again. I have searched the internet and not found it.

I will ask when i go again.

I received a written report in the mail that indicated damage to brain stem, thalamus and cerebellum. I had to Press the dotor to admit it meat i had brain damage. He said "it's organic damage we cabt see" no kidding lol

[russiarulez]

Originally Posted by markneil1212

No. It;s the wierdes test. You put on these huge goggles and then follow a dot. and then they lay you down and blow wind into youre ears and test your eyes again. I have searched the internet and not found it.

I will ask when i go again.

I received a written report in the mail that indicated damage to brain stem, thalamus and cerebellum. I had to Press the dotor to admit it meat i had brain damage. He said "it's organic damage we cabt see" no kidding lol

I believe you're talking about the Videonystagmography (VNG) test.

[Hockey]

Originally Posted by markneil1212

We have to advocate so hard for ourselves because I have no intention of living the rest of my life feeling like I do right now.

markneil, you have no idea how thrilled I am to see you write that. I knew there was a fighter in there!

See the difference meeting even ONE medical person, who gives a fig, can make. See the difference just, finally, getting better sleep can make.

Please try to keep looking and striving, everyone.

[underwater]

agree! seeing the fight in each of you inspires me to fight on. in all the suffering, that is a strand of grace i am grateful for. thank you. fight on! or pretend to fight on. which will make us want to fight on. which will make you want to fight on!

Originally Posted by Hockey

markneil, you have no idea how thrilled I am to see you write that. I knew there was a fighter in there!

See the difference meeting even ONE medical person, who gives a fig, can make. See the difference just, finally, getting better sleep can make.

Please try to keep looking and striving, everyone.

[SuperElectric]

After a sleepless night I'm interested to know how you're being helped with your sleep.

Originally Posted by markneil1212

Also I have struck gold with a young physician's assistant who told me the mri they use won't show any of the injury I have, but he believes me and he is working with me as best he can. He is already helping me sleep after 8 years of insomnia/half sleeping.

[anon1028]

Originally Posted by SuperElectric

After a sleepless night I'm interested to know how you're being helped with your sleep.

This is the first time I have woken up this early since taking my new sleep aids. But I fell asleep early so its still much better than before. And will probably sleep a few more hours.

The doctor gave me ambien 12.5 because 10 didn't work for me and he gave me flexeril. I take those two together at night and it has been working very well...best sleep in 8 years since this mess began

Used to wake up with worst headaches in back of head and since I play a doctor on the internet I thought It was damaged neurons causing the pain and it was irreversible lol. Turned out it was muscle pain and the flexeril did away with it the very first night!! Hope this helps!!