Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 02-10-2014, 09:54 PM #1
Mokey Mokey is offline
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Default Life after trauma - being present

A friend sent me the New York Times article on this blog post. Even if you are not religious, it is worth a read. So many people here have written about feeling abandoned by people they thought would be there for them.

That happened to me. This blog post helped me to understand that what I really needed was 'presence'.

It is also a good read for those of us who have friends dealing with trauma. Be there for them.

http://sojo.net/blogs/2014/01/13/new...d-about-trauma
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 02-10-2014, 11:23 PM #2
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Default good article

Thanks for this Mokey

I could reread it again. And again. And again. There is a lot in there. It made good sense to me.

I try to find the good in every situation and just BE in the DAY. I was much better at this when my children were babies (they are now going on 18 and 20) But for me, being around those babies was being in the moment.

Again, thanks for this read.

Take care,

poetrymom
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013.

Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines,

Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something.

Therapy I had: vestibular

3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling.

9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms.
I pray every day and I m praying for your recovery.

Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired.
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Old 02-11-2014, 07:59 PM #3
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Thanks for this, Mokey!

It's been a hard plateau for me these past few months. Vision therapy continues slowly and painfully. I can see some improvements, but still the reading and comprehension is very low.

The nortryptiline I've been taking has severe side effects (lactation! at my age!)--so I may need to taper off which leads to more migraines....

Anyhow-the article was a nice reminder on the pain and slow progress.

Live each day and soon we will feel alive.

I hope your progress continues!
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The event: Rear ended on freeway with son when I was at a stop in stop and go traffic July 2012. Lost consciousness.

Post-event: Diagnosed with post-concussion syndrome, ptsd, whiplash, peripheral and central vestibular dysfunction and convergence insufficiency. MRI/CT scans fine.

Symptoms: daily headaches, dizziness/vertigo, nausea, cognitive fog, light/noise sensitivities, anxiety/irritability, fatigued, convergence insufficiency, tinnitus and numbness in arms/legs.

Therapies: Now topamax 50mg daily; Propanolol and Tramadol when migraine. Off nortryptiline and trazodone. Accupuncture. Vitamin regime. Prism glasses/vision therapy. Vestibular therapy 3month. Gluten free diet. Dairy free diet. On sick leave from teaching until Sept. 2014.
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Old 02-12-2014, 07:34 PM #4
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Berkeley brain: sorry to hear that progress seems to have plateaued. I had a very bad spell a few months ago and now I feel much better. Still have a very dull life - but am teaching a course, which is great. Hard work, headaches. But nice to get back to a bit of my former self.

I think we all just have to hang in there. Sometimes it is so hard to notice any improvements. And then there are the setbacks!

Sorry that the meds are not working well. Strange side effects! What does of Nortryp. are you on? I have 10mgs per night. Seems to have given me less headaches....not sure yet.

I am trying to kick up my vision therapy to make more progress. the vision is a huge deficit - if it is not working, we feel very terrible! But it is hard, isn't it? Doing vision therapy brings on pain. Yuck. Hang in there. I think it is worthwhile!
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 02-12-2014, 09:14 PM #5
EsthersDoll EsthersDoll is offline
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Thanks for posting this article. It's really quite insightful and brilliant.

I'm forwarding it on to a friend of mine who works with veterans who have suffered TBI's and who have PCS and PTSD.
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