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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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I can tell you that I have double vision from my TBI too. The technical term is Diplopia. I've done a lot of research on this but it doesn't help my eye heal any faster. I live in Boston so have access to big name hospitals, luckily. I saw a neuro-ophthalmologist at Massachusetts Eye & Ear and he basically said, 'It takes time to heal, come back in 3 months and we'll see how you are.' That was not what I wanted to hear at the time but I have learned patience that I never knew I had before my accident.
I know that I have binocular diplopia which means that both eyes are affected. They are, basically, not in sync when I look at something. At first I was wearing an eye patch because, when I only use one eye, I don't see double. I had the eye patch over my left lens of my glasses and it worked well but throws my balance off. The Neuro took my glasses and applied this opaque tape (Transpore Tape - it is sold on Amazon or in drug stores near First Aid) over it instead of the patch. He said that it occluded the one eye like the patch but allows light in and gives some peripheral vision. It works really we'll and definitely defeats the stigma that an eye patch can cause (I got sick of pirate jokes real fast.) If she wears glasses, the tape is really helpful. The patch is less desirable but does the job if her's in binocular like mine was. I'm going to see another Neuro for a second opinion soon. I don't expect a different diagnosis or a better plan but, I am so much more knowledgable now than I was then, I'd appreciate a little dialogue with the doctor (even just for a little peace of mind.) The double vision is my biggest problem coming out of my TBI (fatigue is a close second.) but I feel like it is something that I will learn to live with as it heals. I'm told it could be 3 or 6 months or longer. I just have to hope that it does. Good luck to your daughter, this must be so hard at such a young age. I hope some of this information is helpful to you (it was therapeutic typing it out.) |
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#2 | ||
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Junior Member
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My 14 y.o. daughter suffered a concussion about 3 months ago, 3 weeks of school was missed due to severe headaches and blurred vision. It was a very frightening few months and we had visited an opthamologist specializing in neurology and a pediatric neurologist. Jenna improved gradually over time. We found the initial long days of sleep and avoiding overstimualtion was key. I felt compelled to post again to share the good news! Thanks for the support.
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"Thanks for this!" says: | LauraM (05-24-2014), Mark in Idaho (05-23-2014) |
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#3 | ||
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New Member
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Thank you for sharing this good news about your daughter's recovery. I agree that sleep, rest and lack of sensory input all help to increase healing and reduce the risk of further damage that slows recovery.
I would caution that she still take it easy. Her youth is in her favour, but from what I understand, when you think you are A-ok you are just beginning to heal. Go easy, gradually and at a slow pace to ensure normal activities can be handled. Good luck! |
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"Thanks for this!" says: | Mark in Idaho (05-24-2014) |
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