Hello everyone ..
im in a bad bad situation so thats why im trying to whrite in here .
im from denmark and hope some people can help me with some unanswered question
my story starts with a violent attack where i had a concussion ,3 weeks after i played a soccer match and was out drinking beers .I tryed to get back to normal life but i was drinking alkohol sometimes with my freinds in the weekends which is not a good mix .i stopped drinking achohol but maybe a little to late
I was resting a lot and my post commotio dessepeared but have some other problems now .I can not get my pulse rate high for long time my brain makes a overpressure in my brain when i use my bicyckle it gives a lot of problems pulse 100 for 20 minutes are way to long .i can allmost nothing when we talk exersice .I can feel somthing in my brain floating and i have ringing in my ears .
My big question is have you ever heard about someone could not exersice 2 and a half year after a head concussion because of overpressure and can feel fluid in my brain after exersice ??Im getting a CT scanning soon and hope they will find out something ..

sorry my bad english hope you understand a little

thanks

froggieboonie,

Welcome to NeuroTalk. Some people have struggles like you are having. Slowing increasing your exercise level may help you regain an ability to return to prior activity levels. What happens when you over-exert yourself ?

Hi there,
I am sorry to hear you are suffering still at 2 and 1/2 years later. At 23 months I too still feel head pressure and can be mobile but can't exercise more than 10 minutes for 2 days, then it is bad again. I also can't use my eyes for close use without bringing on pain on the side of my head where I was hit. My friend who had a severe brain injury said it took her many years and I see her now - she is my inspiration. She can now be as active as she wants, like a normal person, and I wish this future for you and me and everyone else who is patiently waiting for this to go away. This is sure an endurance marathon, the slowest one of course. Too bad the medical community doesn't look into these symptoms more instead of assuming they aren't real.
G

Thanks so much Mark .
When I overtrain I get very easily overpressure in my brain and feel a liquid in my brain: confused:
I feel the liquid most in the left side of my brain .
I have recently been more in my bed than I have been going up. Fact, it has been a bit dangerous so much I've been lying down.
When I have gone over the limit with exercise I can lie with a overpressure in the brain for 14 days where I just lie in bed.
It varies a lot how my brain react to the exercise I do.
I live on the 2nd floor and just my steps usually gives me trouble and pressure in the brain: confused:just going to the mall kan give me big problem because of weight and my stairs to 2 floor .
I am very afraid I have a brain injury which causes that I can not exercise but hope not .Im going to have at CT scan but waiting for a talk with a doctor 17 of march .
can tell you that it is very little it takes before I get pressure in the brain.
I'll try to cycle pulse 70-80 in the morning so I hope that my brain will welcome it and not allow overpressure .
Im very glad for your response .

Thanks Ginnyk55
It gives me hope that we can get through it together .Im very glad for your response .
I have some questions hope it is okay .
When you are mobile it means you can walk for a long distance 5 miles eg without any overpressure in your brain ??
How do you get over your overpressure in brain ?? (im in bed for 7 days when i get a bad overpressure)
I cant walk for long distance
how many years took it for your friend to do exercise and what a inspiration she is mine to now .
your right im at pills because the psychiatry dont belief what im feeling in my head and so on .

hope to hear from you soon ..

I've had psychiatrists tell me that I am not feeling the symptoms I am feeling, and recommend medication for me and I said no.

I have this exact same problem, I am about 17 months in.

Don't get discouraged, it will improve over time. Also don't drink, it really impairs your judgement.

Things will get better, patience is key.

mrsmith
thanks so much !!
you make me feel good .
It is very encouraging to get these messages and thank you.
Unfortunately, I have said yes to Solian 100 mg in the evening .
system in Denmark use very often pills when they can not find a reason to like symptoms ! , I know that the pills will not help me but they are convinced that they will. This is a game that I do not like but have no choice.
I can actually feel many things in my brain and I think most people do not believe me.I feel a liquid in the left hemisphere and can feel the vein that eg digging through my brain which is a nice feeling . , I feel a type of damage in the left side of my brain there is nothing wrong with my right side . Believe and hope that my brain is in the process of repairing this damage but it takes time and can not be forced. , I know that I must be patient and do not grow physical activity(exersice) when I can feel the excess pressure in my brain. when I wake up in the morning I can feel my pressure most .
It gives hope and strength to talk to others with similar problems. Oddly enough , I can not find any in little Denmark has my symptoms but in the United States for example , there are people with these symptoms . Hope is very important.
I do not touch alcohol , believe me it has helped to worsen my situation.
Thanks for the post

drinking will damage your brain more and symptoms will get worse !!!
my advise to anyone dont drink at all when your brain still recovers !!when you feel completely healthy wait to drink alcohol in small amounts after 1 year.
something like that and start with only 1 beer so you know how your brain react to alcohol.

Hi,
Yes, keep your hopes at full; I find I get most down when losing hope it will get better. Even if it takes a long, long time at least we can hope and believe it will get better, someday, whenever that is.
Seniors inspire me. Looking to people in their 80s and 90s who still paint, or compete in physical events, or do yoga and tai chi, and enjoy each other. It may take years, or months, or we may have good days interspersed with horrible ones, but someday there will be more good hours than bad, more good days than bad, then hopefully lots.
When I talk about mobility, I'm talking about going shopping for groceries, banking and sometimes lunch out. I get bad head pains from eye contact (the close eye focussing problem) so only went out with friends a few times. But it's slowly a bit better, and I smile through the pain and enjoy my time with them, then suffer later with pain, sometimes a few hours or sometimes for days.
For pressure in the head, this often comes from doing too much, like exerting for longer than 10 minutes. For instance, I skied 10 minutes, came in the house, sat with quiet music and my eyes closed, and meditated, feeling the pain and pressure come, do its worst, and it changes into different types of pain - sometimes sharp, sometimes dull and burning, sometimes just the pressure.
I understand what you mean when you try to describe the feeling in your head, and the symptoms. For me, I can sometimes hear the crackling in my head, like water draining out of a small space, and or my tinnitus gets so bad it feels like I'm going deaf, and sometimes there are sharp pains in my ears.
For pain management, I am afraid of too much medication and its addictive or long term damaging problems. Plus, I reacted badly to some - two caused nightmares and sharp head pains. If I can't get the healing benefits of sleep, then the drug just isn't worth it.
I do not, though, lay down. I find it the worst thing to do - the pressure builds up and that causes more pain. Plus, if you keep getting pain your body gets into a cycle of always making pain. We have to trick our brains and bodies.
For instance, I use ice when the pain is on the left side, then I gently massage the right side of my head and face to make some pleasant sensations. Also, if it gets too bad, I walk around the house at a slow pace, just to get circulation going and hopefully some gentle exercise.
For medication I take ibuprofen when it's too overwhelming and take it for a few days until the pain stabilizes. I also use a quarter of a lorazapam in evening to relax my head and help me keep a good attitude, and get a really good healing sleep. I'm trying to get away from it but figure that small amount can't be as bad for me as a drug I may have to take every day and may get nightmares from.
I hope this helps and knowing you are not alone. What a great site this is for people who are suffering silently and unknowingly. People look at you and figure you must be ok. But when your head is in pain it affects everything. It is difficult to enjoy things when you are in pain but it looks like it's a way of life for us until we heal. It's the fear of doing too much or too little that is confusing and stressful. I'd bike for hours if I thought it would help, but at this stage I'm still working on getting used to vibrations without causing head pain. So summer will be interesting as this is the year to try biking . We'll see.

Ginny

ps I meant to say this earlier; sorry for talking so much.
I used to enjoy a glass of wine before the head injury and now, when I try to have 2 or 3 ounces, it feels like rust scraping through the arteries in my head. Someday I'd like to enjoy it again but it sure isn't now. I think it does more harm than good. Unfortunately early on, the doctors told me to 'drink' to relax, 'go ahead, have some wine', back when they thought it was all in my head. Now it's 'woops, she really had a severe impact concussion' even though I stayed conscious. So now, there is no more 'go drink' talk, and even the suggested drugs have changed - '... no, don't take that one now! try this' and such. So be careful how much you listen to your doctor. I hate to say that but we need more attention to these symptoms so the medical field doesn't throw out careless advice before understanding what is happening to people.
Ginny