Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


advertisement
Reply
 
Thread Tools Display Modes
Old 05-03-2014, 09:38 AM #1
Hockey's Avatar
Hockey Hockey is offline
Magnate
 
Join Date: Jun 2009
Location: I know it's somewhere around here...
Posts: 2,032
10 yr Member
Hockey Hockey is offline
Magnate
Hockey's Avatar
 
Join Date: Jun 2009
Location: I know it's somewhere around here...
Posts: 2,032
10 yr Member
Default Chat Room for the Brain Boo Boo Crowd?

Would anyone be up for a TBI Chat Room? It would allow us to "talk" to each other in real time. I think it might be great for those times when the TBI is really making you feel alone and misunderstood in the "normal" world.

I think I figured out how to set one up. (I'm so proud -even though it's pretty simple.)

I'm afraid my injuries make my typing speed really slow, so I'm not sure how much I could contribute, on the fly. I'm a good listener, though.

Anyway, if there is interest, I'll have a go at getting one started. Anyone have an idea for a cool name?
Hockey is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
anon062314 (05-03-2014)

advertisement
Old 05-03-2014, 01:07 PM #2
anon062314
Guest
 
Posts: n/a
anon062314
Guest
 
Posts: n/a
Default

Quote:
Originally Posted by Hockey View Post
Would anyone be up for a TBI Chat Room? It would allow us to "talk" to each other in real time. I think it might be great for those times when the TBI is really making you feel alone and misunderstood in the "normal" world.

I think I figured out how to set one up. (I'm so proud -even though it's pretty simple.)

I'm afraid my injuries make my typing speed really slow, so I'm not sure how much I could contribute, on the fly. I'm a good listener, though.

Anyway, if there is interest, I'll have a go at getting one started. Anyone have an idea for a cool name?
I am definitely interested Hockey!! Please let me know when I can join in. Not sure what we should call ourselves though.
  Reply With QuoteReply With Quote
Old 05-03-2014, 01:24 PM #3
Living_Dazed's Avatar
Living_Dazed Living_Dazed is offline
Member
 
Join Date: Jan 2013
Location: Great Lakes area
Posts: 409
10 yr Member
Living_Dazed Living_Dazed is offline
Member
Living_Dazed's Avatar
 
Join Date: Jan 2013
Location: Great Lakes area
Posts: 409
10 yr Member
Default

Hockey, that would be great. Can u send directions on how to get there?
__________________

.


*TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015.

*Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory.

*Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living.

*Working on getting to know and accept the new me.
Living_Dazed is offline   Reply With QuoteReply With Quote
Old 05-03-2014, 01:42 PM #4
SmilinEyesMs305 SmilinEyesMs305 is offline
Member
 
Join Date: Jun 2011
Posts: 242
10 yr Member
SmilinEyesMs305 SmilinEyesMs305 is offline
Member
 
Join Date: Jun 2011
Posts: 242
10 yr Member
Default

Yes please! I am not always on, but when I am it would be nice to have somewhere to go if I was struggling
__________________
What Happened: On 3/8/11 I was stopped waiting to merge into traffic when I was rear ended by someone doing 45 mph. I walked away from the accident, to fall into the pit of PCS 5 days later... (I have had 2 previous concussions, but neither developed into PCS.)

Symptoms 3 Years Post: Physical: migraines, infrequent vertigo, neck and back pain (from accident), tinnitus, visual field deficits in left eye, problematic light sensitivity, (including visual seizure activity), noise sensitivity, EXTREME fatigue, semi-frequent disrupted sleep cycles,
Cognitive: semi-frequent Brain fog after cognitive strain, limited bouts of impulsivity, unable to concentrate for more than short periods of time without fatigue, word finding problems, slowed processing speeds, impaired visual memory;
Emotional: easily overstimulated, depression, anxiety;

Treatment so far: Vestibular therapy; Physical Therapy; Vision Therapy; Vitamin Schedule; Limited caffeine; Medications; attempting to limit stress and overstimulation; Yoga; Cognitive Therapy
SmilinEyesMs305 is offline   Reply With QuoteReply With Quote
Old 05-03-2014, 02:27 PM #5
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 27,691
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Posts: 27,691
15 yr Member
Default

NT Chat room is also shared with our sister site Psych Central.
http://neurotalk.psychcentral.com/chat/

The tricky thing for a smaller group is getting together at same time, when in different timezones..

In the past members here would post a thread saying they would like to chat sometime and the time zone they are in, then others can share their timezone, and maybe if they have a best time /day for chatting.

I found with a large group it does go fast, mentally, trying to keep up and type replies..
__________________
Search NT -
.
Jomar is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Hockey (05-03-2014)
Old 05-03-2014, 02:29 PM #6
Hockey's Avatar
Hockey Hockey is offline
Magnate
 
Join Date: Jun 2009
Location: I know it's somewhere around here...
Posts: 2,032
10 yr Member
Hockey Hockey is offline
Magnate
Hockey's Avatar
 
Join Date: Jun 2009
Location: I know it's somewhere around here...
Posts: 2,032
10 yr Member
Default

Hi Gang,

Okay, I've created TBIchat. To enter, just click Chat Rooms at the top of the page. That will take you to the chat page. From there, press "enter." That will take you to the "lobby." You then select the room you want and you're good to go.
Hockey is offline   Reply With QuoteReply With Quote
Old 05-03-2014, 02:41 PM #7
Hockey's Avatar
Hockey Hockey is offline
Magnate
 
Join Date: Jun 2009
Location: I know it's somewhere around here...
Posts: 2,032
10 yr Member
Hockey Hockey is offline
Magnate
Hockey's Avatar
 
Join Date: Jun 2009
Location: I know it's somewhere around here...
Posts: 2,032
10 yr Member
Default

Quote:
Originally Posted by Jo*mar View Post
NT Chat room is also shared with our sister site Psych Central.
http://neurotalk.psychcentral.com/chat/

The tricky thing for a smaller group is getting together at same time, when in different timezones..
Well, the time zone thing shouldn't be a big barrier. We're TBI patients; we don't sleep like "normal" people.
Hockey is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Living_Dazed (05-03-2014)
Old 05-03-2014, 04:07 PM #8
Hockey's Avatar
Hockey Hockey is offline
Magnate
 
Join Date: Jun 2009
Location: I know it's somewhere around here...
Posts: 2,032
10 yr Member
Hockey Hockey is offline
Magnate
Hockey's Avatar
 
Join Date: Jun 2009
Location: I know it's somewhere around here...
Posts: 2,032
10 yr Member
Default

I can't seem to find a mechanism to make the Chat Room permanent. When the "creator" leaves, the room disappears.
Hockey is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
ALS /MND chat room, BobbyB ALS 4 10-25-2010 05:25 PM
Chat Room lor Social Chat 0 04-24-2009 07:16 PM
Chat room now? Earl The Stumble Inn 1 07-07-2008 11:55 PM
Chat room Niko The Stumble Inn 2 01-29-2008 10:07 AM
The TOS Chat Room Peg24 Thoracic Outlet Syndrome 20 05-26-2007 12:23 AM


All times are GMT -5. The time now is 06:41 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.