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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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#1 | |||
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Magnate
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Would anyone be up for a TBI Chat Room? It would allow us to "talk" to each other in real time. I think it might be great for those times when the TBI is really making you feel alone and misunderstood in the "normal" world.
I think I figured out how to set one up. (I'm so proud -even though it's pretty simple. ![]() I'm afraid my injuries make my typing speed really slow, so I'm not sure how much I could contribute, on the fly. I'm a good listener, though. Anyway, if there is interest, I'll have a go at getting one started. Anyone have an idea for a cool name? |
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"Thanks for this!" says: | anon062314 (05-03-2014) |
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Guest
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#3 | |||
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Member
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Hockey, that would be great. Can u send directions on how to get there?
__________________
. *TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015. *Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory. *Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living. *Working on getting to know and accept the new me. |
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#4 | ||
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Member
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Yes please! I am not always on, but when I am it would be nice to have somewhere to go if I was struggling
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__________________
What Happened: On 3/8/11 I was stopped waiting to merge into traffic when I was rear ended by someone doing 45 mph. I walked away from the accident, to fall into the pit of PCS 5 days later... (I have had 2 previous concussions, but neither developed into PCS.) Symptoms 3 Years Post: Physical: migraines, infrequent vertigo, neck and back pain (from accident), tinnitus, visual field deficits in left eye, problematic light sensitivity, (including visual seizure activity), noise sensitivity, EXTREME fatigue, semi-frequent disrupted sleep cycles, Cognitive: semi-frequent Brain fog after cognitive strain, limited bouts of impulsivity, unable to concentrate for more than short periods of time without fatigue, word finding problems, slowed processing speeds, impaired visual memory; Emotional: easily overstimulated, depression, anxiety; Treatment so far: Vestibular therapy; Physical Therapy; Vision Therapy; Vitamin Schedule; Limited caffeine; Medications; attempting to limit stress and overstimulation; Yoga; Cognitive Therapy |
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#5 | |||
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Co-Administrator
Community Support Team
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NT Chat room is also shared with our sister site Psych Central.
http://neurotalk.psychcentral.com/chat/ The tricky thing for a smaller group is getting together at same time, when in different timezones.. In the past members here would post a thread saying they would like to chat sometime and the time zone they are in, then others can share their timezone, and maybe if they have a best time /day for chatting. I found with a large group it does go fast, mentally, trying to keep up and type replies..
__________________
Search the NeuroTalk forums - . |
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"Thanks for this!" says: | Hockey (05-03-2014) |
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#6 | |||
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Magnate
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Hi Gang,
Okay, I've created TBIchat. To enter, just click Chat Rooms at the top of the page. That will take you to the chat page. From there, press "enter." That will take you to the "lobby." You then select the room you want and you're good to go. |
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#7 | |||
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Magnate
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"Thanks for this!" says: | Living_Dazed (05-03-2014) |
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#8 | |||
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Magnate
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I can't seem to find a mechanism to make the Chat Room permanent. When the "creator" leaves, the room disappears.
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