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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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04-26-2014, 08:58 PM
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Magnate
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I was a great sleeper, before my TBI. Since then
 I have trouble getting to sleep and will wake in a couple of hours. My neuro told me that my brain is so damaged that I can't enter REM sleep, so I wake up. Apparently, this can be a problem for stroke patients, too. Yes, I'm perpetually exhausted and, no, I don't dream. Just as a I fall to sleep, my husband says, I have a full body shudder. Again, a symptom of the damage. Last edited by Hockey; 04-26-2014 at 08:58 PM. Reason: typo |
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04-26-2014, 09:31 PM
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#12 | ||
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Hockey us there imaging that depicts this damage? What you are describing is very similar to what I dealt with. In fact, not dreaming was my biggest concern because without deep sleep the brain struggles to repair itself.
If your neuro is just saying brain damage is causing you to be unable to reach rem sleep due to repeated concussions, it may not be the case. With meds, I am now able to have that kind of sleep. That was the key to helping me start to rehab and not feel so awful.
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What Happened: On 3/8/11 I was stopped waiting to merge into traffic when I was rear ended by someone doing 45 mph. I walked away from the accident, to fall into the pit of PCS 5 days later... (I have had 2 previous concussions, but neither developed into PCS.) Symptoms 3 Years Post: Physical: migraines, infrequent vertigo, neck and back pain (from accident), tinnitus, visual field deficits in left eye, problematic light sensitivity, (including visual seizure activity), noise sensitivity, EXTREME fatigue, semi-frequent disrupted sleep cycles, Cognitive: semi-frequent Brain fog after cognitive strain, limited bouts of impulsivity, unable to concentrate for more than short periods of time without fatigue, word finding problems, slowed processing speeds, impaired visual memory; Emotional: easily overstimulated, depression, anxiety; Treatment so far: Vestibular therapy; Physical Therapy; Vision Therapy; Vitamin Schedule; Limited caffeine; Medications; attempting to limit stress and overstimulation; Yoga; Cognitive Therapy |
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04-28-2014, 09:56 AM
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My sleep study stated that I had issues...
Went to the neuro last week and she took me off NamendaXR and changed me to nortriptylin since it can cause drowsiness... she also added in riboflavin and magnesium...
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily. Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well. Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off) Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath |
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05-02-2014, 12:25 AM
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Sarah
What I've learned from brain injuries is that, "Nothing sounds odd." Don't feel like your alone! No two brain injuries are the same. I am dealing with stress related insomnia this week. I hate not being on a normal sleep schedule. Peace and wellness, Jace
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. *TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015. *Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory. *Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living. *Working on getting to know and accept the new me. |
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| "Thanks for this!" says: | SarahSmile0205 (05-06-2014) |
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05-02-2014, 01:39 AM
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Legendary
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Sarah,
If your sleep study said you have issues, what do they think is happening when you sleep ? lack of REM sleep and any apnea will cause your foggy days. Central Apnea (the body forgets to pull a breath) can be caused by mTBI's. Your neuro sounds like a 'try this and see if it helps' rather than a knowledgeable doctor. The meds you have been on is troubling. If I was in your shoes, I'd want to get the sleep issues handled as a priority. I have sleep apnea problems. When they are under control, I do great. When they are a problem, I have miserable days. Hope you can find the sleep help you need. My best to you.
__________________
Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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| "Thanks for this!" says: | Hockey (05-02-2014), SarahSmile0205 (05-06-2014) |
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05-06-2014, 03:26 PM
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Mark,
What about the meds that I have been on send up a red flag? I am off Namenda now and on Nortriptyln..
__________________
The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily. Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well. Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off) Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath |
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