Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 04-26-2014, 10:00 PM #1
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Default feeling better these last few days

hey everyone its more thsn a week that i have not taken gabapentin...hoenstly i thought i would not be off it at this stag. i have made some big imporvements in the last 4 or 5 week, never thought i would say it. by no means i am out of the woods, but life these days is satisfying and rewarding. It was hell, im much much better then 6 months ago. when u think things wont get better, i can say they do, things really do get better. 6 months ago i would never of thought i would be saying this, but i am. i still get symptoms forsure but it doesnt consume me nor put me down, healing takes a long, long, long,long time, but your body is aways repairing itself.

things that have helped me, zoloft, gabapentin (i know longer take) i see a chiro nuerologist, quit alcohole and coffe. i beleive the chiro and pt along with zoloft is the key.

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Old 04-27-2014, 11:41 AM #2
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Great to hear!!

Im a few months in and feeling better as well. Dont get over confident and overdo it like I did, or you will be back at step 1 again.

Keep it up! I go back to the dr tomorrow, and maybe work tuesday. I still dont feel ready nor anywhere near 100%. But work wants me back and im extremely stressed out and im paying for it dearly. Theyve been good up to this point but when I talked to them last week their patience is wearing thin. Been out since beginning of January.
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Old 04-28-2014, 12:12 AM #3
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That is SUCH great news!!!! So happy to hear that you see some improvement. I hope you can still take time to rest....don't overdo things...and continue healing. I hope you have little bits of quality of life. I have them now, and rejoice at every single moment that I am not feeling reslly awful.

So happy for you ED!!!
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 05-02-2014, 12:28 AM #4
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ED,

I'm so happy to hear things are improving!!! The dark side of this injury is intensely difficult to handle. Bravo!

I hope you keep improving!

Peace and wellness,

Jace
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*TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015.

*Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory.

*Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living.

*Working on getting to know and accept the new me.
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