Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 05-03-2014, 01:30 PM #1
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Default Heading to get my neuropsych testing results now

Hi all

So nervous, stress, hoping for some light, some hope in these results

Will post tonight about it.

Peace, wellness, and friendship,

Jace

The sky is so pretty todayimage.jpg
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*TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015.

*Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory.

*Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living.

*Working on getting to know and accept the new me.
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Old 05-03-2014, 03:28 PM #2
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Best of luck-these things are always so tricky. Sometimes more than you want, or less than you need.
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The event: Rear ended on freeway with son when I was at a stop in stop and go traffic July 2012. Lost consciousness.

Post-event: Diagnosed with post-concussion syndrome, ptsd, whiplash, peripheral and central vestibular dysfunction and convergence insufficiency. MRI/CT scans fine.

Symptoms: daily headaches, dizziness/vertigo, nausea, cognitive fog, light/noise sensitivities, anxiety/irritability, fatigued, convergence insufficiency, tinnitus and numbness in arms/legs.

Therapies: Now topamax 50mg daily; Propanolol and Tramadol when migraine. Off nortryptiline and trazodone. Accupuncture. Vitamin regime. Prism glasses/vision therapy. Vestibular therapy 3month. Gluten free diet. Dairy free diet. On sick leave from teaching until Sept. 2014.
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Living_Dazed (05-03-2014)
Old 05-03-2014, 07:57 PM #3
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Yes, listening to my report was hard, but it was the best thing I ever did in connection with my TBI. Knowledge is power.

Oddly, listening to the neuro-psychologist describe the new world my battered brain had forced me into was sort of a relief. At least I stopped thinking I was crazy.
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Old 05-03-2014, 08:54 PM #4
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Hi All,

Even though it's 18 months I feel emotionally that I'm still pretty new. Maybe it's because realizations keep happening for me. ? I'm not sure.

I still have denial, guarded closely to my heart that I share with my mind. I've been wanting someone to tell me it's not so bad.

My results were not what I was hoping for. The area in the brain controlling vision is very bad. She said I still have healing time but that it will not likely it will be enough to get my visual part up to where it's sufficient for driving or working. Same with my memory, processing.

I'm so flooded with information and emotions I can't remember it all.

She said I will not teach in a classroom again. Working a job with the variety of my issues won't happen. That I will need to get things together for SSD.

Possibly someday I could tutor at home one on one.

So many thoughts. I wanted to hear of a therapy or pill. I knew from the otologist (I have a brilliant doctor in Chicago) that this does not heal-the vision issues I have, but my brain may make work arounds. I did improve but plateaued 10 months ago. I'm so thankful I did improve because I could not hardly walk.

I'm done for tonight. Thank you for the support and friendship. All of you are a wonderful part of my new life.

Jace
__________________

.


*TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015.

*Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory.

*Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living.

*Working on getting to know and accept the new me.
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berkeleybrain (05-03-2014), music-in-me (05-04-2014)
Old 05-03-2014, 09:02 PM #5
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Quote:
Originally Posted by Living_Dazed View Post
Hi All,

Even though it's 18 months I feel emotionally that I'm still pretty new. Maybe it's because realizations keep happening for me. ? I'm not sure.

I still have denial, guarded closely to my heart that I share with my mind. I've been wanting someone to tell me it's not so bad.

My results were not what I was hoping for. The area in the brain controlling vision is very bad. She said I still have healing time but that it will not likely it will be enough to get my visual part up to where it's sufficient for driving or working. Same with my memory, processing.

I'm so flooded with information and emotions I can't remember it all.

She said I will not teach in a classroom again. Working a job with the variety of my issues won't happen. That I will need to get things together for SSD.

Possibly someday I could tutor at home one on one.

So many thoughts. I wanted to hear of a therapy or pill. I knew from the otologist (I have a brilliant doctor in Chicago) that this does not heal-the vision issues I have, but my brain may make work arounds. I did improve but plateaued 10 months ago. I'm so thankful I did improve because I could not hardly walk.

I'm done for tonight. Thank you for the support and friendship. All of you are a wonderful part of my new life.

Jace
for you Jace.
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Old 05-03-2014, 09:28 PM #6
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I have one word for you: Neuroplasticity.

Right now, you're in shock. I know, I've been there.

However, try not to give up hope. The healing power and adaptability of the brain is amazing. Research is also showing that improvement continues for a lot longer than we used to think. I'm seven years out and I can do things now, I couldn't manage 18 months ago. Get all the therapy you can. It DOES help.

My prognosis was dismal. Am I back to normal, no. However, I'm a heck of a lot further than the neurologist ever thought I'd get.
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Old 05-04-2014, 09:53 AM #7
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How are your spirits, today?

I got out my report and reread it last night. It can still make me cry.

But, you know what, it's not describing who I am now. Thanks to Attention Processing Training, etc..., I've made progress. Without the neuro-psych, I wouldn't have even known I needed APT.

Plan for the worst, but work for the best.

Thinking about you.
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