Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 07-16-2014, 08:18 PM #1
lecksm lecksm is offline
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Default PCS won't go away, no sign of improvement after 4 months

I was hit on my bike while going down hill 4 months ago. A cab driver opened his car door without looking, I had no time to react. I hit the door, flipped over it and tumbled down the hill (thankfully I was wearing a helmet, but still...)
Since then I have had uncontrollable constant burping, that is occasionally accompanied by acidic fluid. I can't eat much, if I do and I burp, the food comes up.
I have dull throbbing headaches, that at times turn into debilitating intense migraines. These include blurred vision and dizziness.
I can't stand up fast or move my head too fast without needing to pause for a second to let my vision catch up with my body (hard to explain)
I cannot stress physically or emotionally without starting to gag and/or throw up.
I have been off work since, and don't feel close to being ready to go back yet. The only thing I do is swim (I used to be quite the swimmer and I've had to tone it down and can't bring my heart rate up but I can lightly kick slowly swim until it starts to bother me, then I rest)
My injury is not physically apparent so no one seems to understand what I'm going through. A lot of people neglect me as they feel I should be better by now.
I've been seeing a doctor regularly and he just suggests massage and sleeping pills. I've had an MRI which came up clean, however a bulge in my c6 showed up that is apparently contacting my nerve route.

I have never participated in anything like this before (a forum) but I've been searching through them randomly to get some answers and I thought I would write my own story and see if anyone out there relates to this and has any idea what is happening to me. I don't feel like I'm getting better at all, and really hope it didn't do permanent damage leaving me burping up fluid forever.

Thank you,
Aleis
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Old 07-16-2014, 08:37 PM #2
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welcome to the board. there will be others along that know more than me but I can tell you that you are early in the recovery faze. it can take up to 2 years to heal to your full extent. right now time is on your side. it is very hard for others to understand head injuries because most of the time we look normal. try to explain what you have read here and even show people that care this website so they can see you ae not alone and you need to find a doctor that believes you. good luck.
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Old 07-16-2014, 08:48 PM #3
Mark in Idaho Mark in Idaho is offline
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Aleis,

Welcome to NeuroTalk.

I am not surprised to read that you have a bulge at C-6. I was going to suggest you get thoroughly checked out for a neck injury and even an upper back injury down to T-3. A chiropractor may be able to help or maybe a physiotherapist. Some gentle traction and mobilization would be helpful. I was treated by a physical therapist (physiotherapist) who is an expert in myofacial release who was able to get my stomach and esophagus working correctly.

You may have a rib partially dislocated from the vertebra. Either of these is not a one time fix. It takes time and discipline to allow the joints to heal and tighten up.

My condition was a version of Thoracic Outlet Syndrome.

The first time I experienced this problem, I lost 14 pounds in 2 weeks. I could hardly swallow.

I hope you can find help to get some relief.

My best to you.
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Old 07-16-2014, 08:51 PM #4
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I have nothing really to add... Just wanted to say Welcome!
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily.

Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well.

Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off)

Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture

Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath
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Old 07-16-2014, 08:57 PM #5
lecksm lecksm is offline
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Default Thanks for the quick replies!

I am really glad I signed on to this!!


I might need to find a new doctor, problem is this one was referred to me by my lawyer for specializing in MVA's.
He has prescribed massage therapy, but I am a massage therapist and I had my husband rub my neck where I thought he would need to, and it made me sick. So I'm scared of having someone mess around without knowing exactly what the problem is.
My major concern is the burping and acid reflux. I've been recommended by friends to try apple cider vinegar and I've been taking it for a week each morning.
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Old 07-16-2014, 09:08 PM #6
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the brain is the lifeline to the body and an injury can affect us all in many different way. I had urinary problems that went away with time. I would do what mark in Idaho suggested and maybe see a gastro doctor and explain what happened. I'm years into my injury and a massage still hurts me. let your doctor know what you feel and if he doesn't help tell your lawyer you want a different doctor. you are very early in recovery so be patient although I know it is hard. and feel free to ask anythibg you want.
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Old 07-16-2014, 09:16 PM #7
lecksm lecksm is offline
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Thanks!

I was planning on asking to be referred to a GI specialist at my next Dr appointment. At the very least I would like to make sure this acidic stuff isn't doing any damage to my oesophagus.

Sucks when you can't get a massage, I'm sure you'd agree that it would at least help the stress if anything!

yeah I'm taking it easy and taking my time recovering, it's hard when you used to be very independent and now are forced to rely on people to help you. Also when your partner doesn't really notice or see it as serious as it is. It's like an invisible injury to most people, except for my burping and being generally slower than I am used to.

Sorry if it seems like I'm venting, it's just the first time since I was injured that I've felt a little understood.
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Old 07-16-2014, 10:16 PM #8
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The first time this happened to me, I went to a gastro doctor who teaches at Stanford. He was clueless. When I found the problem, he refused to believe me.

I would not rely on a massage therapist. Most do not have the medical knowledge to find the problem. Massage therapists have their place but not with this kind of an injury.

With my physical therapist, she did somewhat painful myofacial release and very gentle traction and mobilization. This kind of injury will not image very well. You need someone with good but gentle hands.

Have you considered whether you may have a hiatal hernia to go along with your back injury ? The fall could have jammed your stomach up into your diaphragm wall. Do you know how to do heal drops to resolve a hiatal hernia ?

Do you have access to a physiatrist (Physical Medicine and Rehabilitation) ? They are often good at these non-orthopedic but skeletal injuries.

My best to you.
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Old 07-17-2014, 03:25 AM #9
willgardner willgardner is offline
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I understand!! This is the only place I feel understood. As you said, this is an invisible injury and in my experience, even family members have a hard time grasping what you are going through.

I had the exact same reaction to RMT, so glad to know the inside scoop on massage therapy. I don't think RMT is a way to go for PCS as Mark said here or somewhere else.
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Old 07-17-2014, 03:29 AM #10
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Quote:
Originally Posted by lecksm View Post
Thanks!

I was planning on asking to be referred to a GI specialist at my next Dr appointment. At the very least I would like to make sure this acidic stuff isn't doing any damage to my oesophagus.

Sucks when you can't get a massage, I'm sure you'd agree that it would at least help the stress if anything!

yeah I'm taking it easy and taking my time recovering, it's hard when you used to be very independent and now are forced to rely on people to help you. Also when your partner doesn't really notice or see it as serious as it is. It's like an invisible injury to most people, except for my burping and being generally slower than I am used to.

Sorry if it seems like I'm venting, it's just the first time since I was injured that I've felt a little understood.
vent away. we have each other to vent to even if no one else will listen. fortunately most of you will get better and disappear but mark in Idaho hocky and probably I will be still be here.
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