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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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#1 | ||
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I am a social person, meaning I actually feel sad and lethargic if I do not get meaningful social interaction. This isolation is really hard on me. Conversations are difficult. No one gets me anyways. I cannot go anywhere due to sensitivity to sound. I am getting cabin fever. I feel so frustrated. Another dark day...
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"Thanks for this!" says: |
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#2 | ||
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Junior Member
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Quote:
BTW, I worked with someone named Will Gardner in Seattle. Perhaps a relative of yours. |
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#3 | ||
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Legendary
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will,
Have to tried to maintain your social relationships over the phone? That way, you only have one person talking and a focus of voices. I find that if I need to be in a room with a group of people, I need to be towards a corner where nobody can be behind me talking. If all the voices are in front of me, I can tolerate it much better. Or use FaceBook chat or such. It is not uncommon for me to go a week or longer with only talking to my wife.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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#4 | |||
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I am a very social person as well.. for the first few months I did not go anywhere or let more than one person over... I did text some and FB chat some...
I went to an event for a cycling team my husband is on about 6 weeks after... I had earplugs and only lasted about an hour. I had one of the friends that I FB chat there with me to help me tell people what was going on and so that she could help finish my sentences, while my husband did his socialization... Next outing was at about 12 weeks... went to dinner for my birthday with 3 couples... nice quiet restaurant was out for about 3 hours total... Next month was out for only 2 hours before I was done... Just depends on the place... I find that I am building up again to be out with 2 or 3 couples for an evening and I am ok the next day... Now I say all of that to say this... I am odd in that I have some CSF build up and when I drink wine, I actually feel better... I still require earplugs sometimes depending on where we go and what we do... but only if it is going to be in a crowded place... I hope this gets better for youi!!!
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily. Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well. Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off) Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath |
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"Thanks for this!" says: | Sitke (08-10-2014) |
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#5 | ||
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n/a
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i was a loner before the injury but was well liked. now everyone is gone. due to my abi i did have hallucinations and acted bizarrely the first few months but geez, you are friends with somone a lifetime and you dessert them just like that? not one or two or three but all my childhood friends desserted me. its what hurts most. i picture them at their childrens' baptism communion and birthday parties and i'm not there and it rips my insides to pieces and drives me to despair.
my girlfriend is more social but i was the one with all the friends and with them being lost it is just me and her. and the cat. |
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#6 | ||
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Junior Member
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I'm homebound most of the time. And I sleep a lot.
So, I rather enjoy the change of pace social time brings. I wear headphones to control noise issues. For conversations, I text. I also ask for help a lot. (I need a lot of help). I usually just sit there and don't try to talk. (still can't talk) What I really hate is when other people (strangers - I can deal with my friends) talk about their health problems. I deal with that by trying to stand up - and since I can't stand up, I either fall or totter. Then someone comes over and helps me. My best social life comes from asking someone for help - for example drive me somewhere, or do something for me. I practice my response to what people always ask me "how am I?" I know I can't just casually chat. I have some serious and long-time relationships online, places where I am still a respected and honored authority. That feels nice but no, it's not my real life any more. I have to deal with real life. |
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"Thanks for this!" says: | Sitke (08-10-2014) |
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Social isolation | Caregivers Support |