Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 01-16-2015, 02:11 AM #1
Mark in Idaho Mark in Idaho is offline
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Mark in Idaho Mark in Idaho is offline
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Wow, Lots of information to digest.

Because of the different ways these symptoms can manifest, I use layman's terms.

First, many have seen their word finding problems worsen then improve over time. Mine was much worse than it is now. Plus, many find it gets worse when under stress or any kind of time crunch as in when needing to respond to a question, especially if the answer takes cognitive effort.

I find a big difference between verbal word finding and written word finding. I chalk it up to the fact that when I am writing, I can see what I am saying and that triggers my mind differently. That ability to visually contextualize is a big help. That does not help when speaking. When I get stuck verbally, I can often trigger my thoughts by looking around the room, sort of saying the names of the things I see. It is amazing how this can trigger my mind into new areas to find the word.

I also sometimes experience a struggle getting the word from my thoughts to my mouth. I know the word or words I want to say but can not get my mouth to form the word. It is like my mouth has lost the connection to the muscle memory to say the words. I don't have that problem anymore except on rare occasions. It probably helps that I have learned to rehearse the things I am going to say before trying to say them. That has helped me sound much more thoughtful.

As you look into these issues, you may find other tricks and work-arounds. I find that sometimes I just needs to explain that my brain injury causes me to struggle with word finding problems. And, the complexity of the word is not always a complicating factor. Simple words can be just as problematic.

Regarding the BP episodes, I have emergency BP meds, propranolol. I have had BP spikes to 255/185, stroke levels. Your experiences are bad but not nearly as dangerous. My wife experiences similar BP spikes to yours. Her PCP has prescribed her a similar emergency med supply.

Regarding the foot test, I have had a positive Babinski since I was a teenager. It is just an indicator but not valid at determining outcome/recovery or injury intensity.

Regarding the sense that symptoms are getting worse. They could be or there could be another explanation. The brain can easily ignore things it can not define. They become abnormal blips. Once you have keyed in on them with the information from the Survival Guide or other sources, the brain has now indexed those issues. It will now collect episodes of this symptom. It is the same reason you start to notice all of the same model cars as one you just bought.

Rehabilitation specialists have found that there is a value to learning to accept symptoms and learn work-arounds and accommodations. Subjects who do this have better outcomes. This acceptance reduces anxiety which is helpful with recovery.

I can understand you struggles as an attorney who is dependent on your verbal skills, both written and spoken. Hopefully, your job can focus your efforts on written work. Communicating by email with co-workers could be a big help. You would qualify as disabled by ADA standards. Some accommodations would be justifiable.

The Neuro Psych Assessment will be very helpful.

My best to you.
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Mark in Idaho

"Be still and know that I am God" Psalm 46:10
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Old 01-16-2015, 12:54 PM #2
lyndianne lyndianne is offline
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lyndianne lyndianne is offline
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I don't know if this is helpful or not but I have similar issues. My writing remains fluent and easy while my speech not so much. I have trouble with defining and explaining, while talking about nothing (shooting the s***t I think you call it!) is fine. When under sensory demands I

stutter, my speech slows, and I can lose the thread mid thought. I find that any extra demand on the brain effects my speech. I would suggest you not worry about it getting worse (i know easier said than done). I've been at this a long time and worrying about something that may or may not happen is exhausting and takes from any quality of life you have right NOW. Just the freaking out over your speech worsening can cause your speech to worsen.

It sounds like you have a great neurologist which can be very hard to find
Besides self care, both physically and emotionally, we really have very little control.
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Concussion and whiplash from getting hit by a semi truck. After partial recovery was on the receiving end of 3 concussions in a year. Two were within six weeks of each other. Master's degree teacher now on disability with limited lifestyle, trying to count my blessings
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Eugene, Oregon
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