Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 11-12-2015, 11:11 AM #1
RidingRollerCoaster RidingRollerCoaster is offline
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Default Considering HBOT Study - Looking for Input

Hi All

I have interviewed with Dr. Harch in New Orleans for his HBOT study on persistent PCS and have passed all the tests to get in to the study. I am trying to decide whether to do it or not. The treatment would be free, but I would have to pay for lodging, food, etc... Has anyone else here done HBOT before? Have any suggestions?

This is the way I see it so far....
Pros:
- Could possibly help my PCS symptoms get better of course
- Could help other PCS sufferers including Veterans
- Could help determine an effective PCS treatment that would be covered by insurance
- I will have the satisfaction of knowing that I tried all options to help get better

Cons:
- Traveling long distance and being away from my family for 2 months and alone in a new place
- The treatment could be ineffective
- Cost of lodging
- Maybe I should just stop looking for treatments and let time do its work?
- side effect risks? - Dr. Harch said some patients experience an increase in anxiety

Thank you.
__________________
Injury: March 2014. Hit hard on top of head by heavy metal farm tool. LOC. MRIs and Cat Scans clear. PCS ever since. 33 year old female. Trying to stay positive!

Persisting Problems:
fatigue, dizziness, lightheadedness, vestibular balance and vision problems, vision static, tinnitus, hearing loss, slight sensitivity to noise, sometimes the insomnia comes back, sensitivity to stress, exercise intolerance, emotional problems - But I still have much to be thankful for.
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Old 11-12-2015, 01:27 PM #2
bachissimo bachissimo is offline
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I will let other veterans and experts weigh in. But as much as I asked around (neurologists and rehab people) they all told me that studies are inconclusive on this, and most likely not worth the effort.

I even suggested an oxygen tank, because my symptoms were brought by flights, they dismissed this as futile...
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Old 11-12-2015, 03:21 PM #3
RidingRollerCoaster RidingRollerCoaster is offline
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Dr. Harch claims that the reason the military's study came out inconclusive is because they did not follow the right protocol for the proper treatment regimen and so the results were skewed. Dr. Harch says that the military did not want the results to be positive because they did not want to have to pay for HBOT as a treatment for all the veterans.

Congress appropriated funds for Dr. Harch's current study to get a clear understanding of the effectiveness of HBOT.

He has written a lengthy article refuting the military's study, all of which I do not understand because of all the scientific jargon. He says the results are not inconclusive if the treatment is done right and that 90% of those he has treated with PCS showed significant improvement.

Just wanted to let you know the other side of the story.
__________________
Injury: March 2014. Hit hard on top of head by heavy metal farm tool. LOC. MRIs and Cat Scans clear. PCS ever since. 33 year old female. Trying to stay positive!

Persisting Problems:
fatigue, dizziness, lightheadedness, vestibular balance and vision problems, vision static, tinnitus, hearing loss, slight sensitivity to noise, sometimes the insomnia comes back, sensitivity to stress, exercise intolerance, emotional problems - But I still have much to be thankful for.
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Old 11-12-2015, 05:17 PM #4
Mark in Idaho Mark in Idaho is offline
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We've had a few on NT do extensive HBOT with questionable results. It appears to be a hit or miss therapy. It helps some but does nothing for others. I think it depends on the many variables of concussions. Those with the right matrix of those variables improve. Those outside that right matrix do not benefit.
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Old 11-12-2015, 05:59 PM #5
Laupala Laupala is offline
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I did 40 sessions of HBOT, 5 days a week, an hour a day, while on leave from grad school living at home. The clinic was less than 10 minutes from my house. While I may have felt somewhat better after, I attribute that more to becoming involved in coaching a high school cross country team which lifted my spirits. While it seems to work for some, i don't think it did for me, and was probably the biggest waste of money I've had in this whole ordeal. Don't know unless you try though, so I don't really regret trying.
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26 year-old PhD student in evolutionary biology, slipped on ice in Feb 2014 while clipping my fingernails and walking to save time (dumbest reason for PCS ever?). Initially just had headaches and didn't feel quite right, but a minor head bump 5 days later started a downward spiral of anxiety, depression, insomnia and fatigue. Had trouble concentrating on reading/looking at screens

April 2014 - did exertion test, passed, started exercising and doing more, but didn't feel much better.

May 2014 - Went on backpacking trip OK'd by doctor, trip itself went fine, but felt worse a few days after getting back, more difficulty concentrating, worse headaches.

June 2014 - Bumped head on ceiling walking slowly down stairs, no immediate symptoms, but caused worsening headahces, more difficulty concentrating and looking at screens. Have not felt as good as I did before this since this bump.

December 2014 - after feeling relatively better I went xc skiing and fell but didn't hit my head (something my psychologist who specializes in brain injuries told me he hoped would happen so I saw it was OK), felt worse

Feb 2015 - back in grad school, light teaching load and some research, nowhere close to operating at my full capacity. Still have constant headaches, difficulty reading/looking at screens, mild anxiety and depression, and just not feeling like my normal sharp self.

Trying, but struggling, to believe that I'll get back to my old self, or at least get close.
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Old 11-12-2015, 10:26 PM #6
hopefulmom hopefulmom is offline
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Hi
My daughter did the study and loved Dr Hatch. He is super knowledgeable. Please pm me and I can give you her number and she can answer some of your questions.

We went through Airbnb and I believe she stayed in midtown. She rode public transportation to his office and became great friends with the woman-who took my daughter under her wing and was so good to her.

My best,
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