Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 12-07-2015, 11:05 AM #1
RidingRollerCoaster RidingRollerCoaster is offline
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Does anyone else get bouts of uncontrollable crying at times? This happened to me pretty much everyday in the first few months of my recovery. It decreased in frequency over time to where it barely ever happened this summer.

But this fall it seems to be happening more. It is excruciating when it is happening because it feels like something takes over my brain and I'm in a hole of depression that I can't get out of. It also upsets my partner a lot.

Any suggestions on how to deal with this? I try to just let it flow through me but sometimes it will go on for days.
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Injury: March 2014. Hit hard on top of head by heavy metal farm tool. LOC. MRIs and Cat Scans clear. PCS ever since. 33 year old female. Trying to stay positive!

Persisting Problems:
fatigue, dizziness, lightheadedness, vestibular balance and vision problems, vision static, tinnitus, hearing loss, slight sensitivity to noise, sometimes the insomnia comes back, sensitivity to stress, exercise intolerance, emotional problems - But I still have much to be thankful for.
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Old 12-07-2015, 12:41 PM #2
Mark in Idaho Mark in Idaho is offline
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Has your doctor discussed PseudoBulbar Affect with you ? There is a med for that. You may have a bit of Seasonal Affective Disorder adding to the intensity of the PBA. Some light therapy may help.

I have minor PBA. An emotion comment can bring tears. I've been brought to tears watching the Flash Orchestra or the Samsung Deaf video. For me, it lasts a few minutes. I dry my eyes and go on. But, I slobber much more than ever before. TV Commercials can trigger me.

My best to you.

Mark
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RidingRollerCoaster (12-09-2015)
Old 12-07-2015, 01:08 PM #3
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Lightrail11 Lightrail11 is offline
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Quote:
Originally Posted by RidingRollerCoaster View Post
Does anyone else get bouts of uncontrollable crying at times? This happened to me pretty much everyday in the first few months of my recovery. It decreased in frequency over time to where it barely ever happened this summer.

But this fall it seems to be happening more. It is excruciating when it is happening because it feels like something takes over my brain and I'm in a hole of depression that I can't get out of. It also upsets my partner a lot.

Any suggestions on how to deal with this? I try to just let it flow through me but sometimes it will go on for days.
I happened to me my first few months of recovery. It passed on it's own, now I have a reverse affect were I cannot cry even when it would be normal to do so (mother in law's passing).
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What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition.

Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life.
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Old 12-09-2015, 06:53 AM #4
FuzzHead FuzzHead is offline
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It is always a mixed bag of emotions (including relief, amazement, sadness, reassurance) when I come on here and see posts by people that align so much with my personal and lonely journey.

Being 9 months in, I've had increased emotional lability from the start. Similar to what Mark said, I feel overly fragile and vulnerable compared to my old self.

However, what really kicks me and takes me to the brink of feeling like I can't deal with PCS anymore is the uncontrollable and involuntary bursts of crying that slog me like a baseball bat out of nowhere at often the most unpredictable times. This still happens on a regular basis but I try to avoid known triggers that bring on a 'crash', such as being in environments with too much stimulation for my senses. I get very little warning it's coming. It's like water in a lidded pot on the stove - boiling point surprises you with bubbling mayhem spewing out from under the lid all at once. Similarly, my tears and wailing start with no feeling prompting this other than a dreadful, overwhelming sensation in my head. I’ve broken all the barriers – it's happened on public transport, during dinner parties, in crowded cafes, uni, even my boss’ desk! Once this usual embarrassing show starts, depression follows. Like you RidingRollerCoaster, my onslaughts usually stick around for days afterward and I feel like an anchor gets strapped to my feet holding me down in this hole. People share comforting words like, “it’s ok, I cry at the drop of a hat”, except I don't find these very comforting. I realised it’s because this is all backwards… Usually we start an emotional reaction once we feel sad etc. With this, the opposite is true! I cry for no logical reason and the heavy feeling follows for days later. I float around like a beaten-up zombie in a depressive fog with a listless feeling equivalent to the news of your best friend’s death. And no matter the amount of uplifting power I send to my mind or support from others, it's like this toxic chemistry in my brain keeps me down until it says so. All my symptoms come back worse than ever following these episodes as well. It's hell.

Because it feels like hell, I don't have any great recommendations on how to deal with it. I just try to let it flow with me also. I keep telling myself that it's just messed up brain chemistry which I've seen before, I know the drill, it will pass at most in a few days.. If I have the strength I do light activities that distract my mind which help temporarily. Like watch an enjoyable movie, read or get out in the garden.

Thanks for the tip on PBA Mark, I had never heard of that and it seems to certainly fit my bill. I'm going to ask my doctor about it.
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Old 12-09-2015, 11:10 AM #5
RidingRollerCoaster RidingRollerCoaster is offline
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Yes! Thank you FuzzHead! You describe it even better than I do. That is pretty much exactly what happens to me. The crying is not really a reaction to a sad feeling, it comes out of nowhere and then I fall into the hole. It is hell to be in there, but it does pass thankfully.

Hopefully someday one of us will have more advice for a good way to deal with it or be able to say that it has passed altogether.

Until then, I will also try to talk with my neurologist about the PBA and report back.
__________________
Injury: March 2014. Hit hard on top of head by heavy metal farm tool. LOC. MRIs and Cat Scans clear. PCS ever since. 33 year old female. Trying to stay positive!

Persisting Problems:
fatigue, dizziness, lightheadedness, vestibular balance and vision problems, vision static, tinnitus, hearing loss, slight sensitivity to noise, sometimes the insomnia comes back, sensitivity to stress, exercise intolerance, emotional problems - But I still have much to be thankful for.
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Old 12-10-2015, 01:01 AM #6
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I cried very easily too...slowed way down now but I still get a bit teary eyed at times.

I have cried more this last year than my entire life.. And not always over serious things.

Bud
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