Hi everyone,

I just wanted to get some input from people that have been dealing with the
stuff that I have. This is my first post in here, but I have read a lot of forums
From everyone that have helped me throughout my injury.

I have been dealing With post concussion for about five years now. The beginning was horrible but
Over the years I have made great progress at getting to a new level that works
For me. I still have symptoms all day every day but they are now manageable
For me to get through.

My main question is do any of you have set backs that
Seem to last long. I was to the point where I could live without thinking about it
Weeks and if I had a bad day it would just be a day or two. Now over the last
Two months, I have been struggling to the point that it seems to me like I am
losing all the progress that I have made.

Ever since my injury I have suffered
from bad anxiety and depression. I have come to realize that when either of
these two are present that everything seems to be worse. I sometimes think
that these issues that I have been having are from being anxious or depressed
but as the time continues it just seems crazy that it would last two months after
getting to the point I did not have to worry about it.

I take celexa and tried
slowly getting off of it but at some point I had to start getting back on. I just
wanted to know if anyone has experienced a couple bad months after having
successful ones. Also has anyone felt your head pulsing when trying to sleep at
night constantly. This started happening a month ago and I don't know if this is
anxiety trigger too because i think about it every time I go to bed. It was never
present before.

Any responses would be appreciated.
Thank you.

John0921,

Welcome to NeuroTalk.

What you describe sounds quite normal for PCS. The roller coaster ride can go on for years until one learns how to avoid the triggers or at least recognize them and expect the bad days or weeks.

What you are describing sounds like anxiety. The pulsing in your head is a classic anxiety. Your Blood Pressure and pulse may be elevated and the anxiety makes it so your brain is overly attentive to the sensation of the pulsing.

It would help if you would tell us more about your injury, what diagnostics and treatments/therapies you have had and what symptoms you continue to have. Also, what your daily activities are like and job, responsibilities, and relationships/family life. They can all play into the roller coaster.

Have you had any changes in your life lately ? Job change, school, illness, injury, etc ?

With a better understanding, we may be able to identify some of the reasons for your continuing struggles.

Do you do anything to help your brain from a nutritional/vitamins standpoint ? Do you take any meds besides the Celexa ? Ever been on a different med ?

Unfortunately, welcome to the roller coaster of PCS. For many of us it is an E ticket ride. Back in the day, the best and wildest rides at Disneyland required an E ticket.

John,

How long you been on the celexa....also classic symptoms of tolerance withdrawals.

Not saying it is but worth checking out.

Merry Christmas to you.

Bud

I haven't been suffering for as long as you. Mine was the beginning of May this year. After quite a few rough months, I started feeling better like you. I could sometimes go 3 to 5 days without headaches and I would be so happy on those days.

Unfortunately I didn't have a choice but to return to work almost 2 months ago, and I've had the constant headaches back ever Since then


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Oops!!! That was the worst typo ever! I did not mean to put a happy face or hit send!

To continue, I don't know how to handle the setback either. It's very difficult, but I can't choose to quit work either right now.

Has there been something in your life that has changed drastically like it has in mine?


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