Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 10-15-2007, 05:52 PM #1
Lucy Lucy is offline
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Wildcard, your symptons are just about the same as mine other than the dislexia. (spelling?) What interests me the most about yours is what you said about the base of your skull. I have the feeling there that when I am extra tired and not the just tired feeling, my skull feels like it is not attached to the very top of my spine. I have asked and asked about it. Like you, nothing showed up in the MRI. My blood pressure is also high and I have to now take pills for it. 2 years ago I was rushed to hopsital with a hypertensive crisis 230/190 - the pain in my head was absolutely unbearable fortunately I didn't have a stroke as was expected! Pre accident I didn't have any signs of high blood pressure. I don't know if there is any link. I also feel that I know more about PCS than my GP - even though he had it at med school. I note that the insurers psychologist has actually criticised me for studying up PCS - but it we didn't ourselves who would! The accident that caused this for me was in 2001 and was very minor. Since then I have re injured about 4 times, the latest being 3 weeks ago - the last brought back the worst headaches and memory problems. The headaches have got better and are mainly when I let myself get too tired. The key is not to get too tired.
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Old 10-20-2007, 05:08 AM #2
Mint Mint is offline
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Quote:
Originally Posted by Lucy View Post
The headaches have got better and are mainly when I let myself get too tired. The key is not to get too tired.
I think that is the key too. My headaches are worst when I am stressed or tired so I always try to get enough sleep.
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Old 10-29-2007, 03:43 AM #3
Lucy Lucy is offline
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Mint, do you find that if your night's sleep is interrupted it can ruin your next day and in some cases the next few days. I notice that if I am too tired going to bed I can't sleep that night (just like a grizzly todler) and then the next day is a mess and then it takes a couple of days to catch up. I had eye surgery the other day and was given vallium - great sleep that night!!!! I can't control the icons - can't put them where I want to and now I can't get rid of the jolly thing!!! It was a grin to go after the vallium!
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Old 10-30-2007, 02:27 PM #4
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@Lucy

Quote:
Mint, do you find that if your night's sleep is interrupted it can ruin your next day and in some cases the next few days. I notice that if I am too tired going to bed I can't sleep that night (just like a grizzly todler) and then the next day is a mess and then it takes a couple of days to catch up.
Yes, usually if I have had a bad night's sleep then the next day I feel terrible. Very sleepy, headache and generally not alert, although this has happened after a few days of good sleep too.
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Old 11-01-2007, 06:04 PM #5
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davestrand davestrand is offline
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I've had what I believe to be PCS for 22 years now. I haven't been clinically diagnosed with PCS but here are my symptoms after suffering a severe concussion / seizure disorder when I was about 10 years old.

- Headaches (constant dull pain)
- Fuzzy thought (but I get by)
- Memory problems (I'd tell you what they were, but I can't remember. )
- Depression (difficulty being happy at or feeling good, if I am happy it doesn't last longer than an hour.)
- EASILY Irritable (my girlfriend can attest to this)
- Dizzy (well it's kind of dizzy.. It's like I can't see straight/focus)
- Trouble concentrating (I can't even focus on conversations many times)

------

someone here also mentioned difficulty forming sentences or speaking sometimes. I also have that problem that may be related to PCS.

A more complete analysis of my condition is below, which I have pasted from my first post here.

Quote:
Hi,

I'm sure I could give you a lengthy story, but I'm gunna try to summarize for you.

Dave - 33 years old - Chandler, Arizona

I suffered a severe concussion when 9 or 10 years old which gave me a Seizure Disorder (about 23 years ago). I was on Phenobarbital and then Dilantin til puberty set in. I've been seizure free for 20 years.

I'm in good health. I exercise, take vitamins, eat right, don't smoke, drink on the weekends, no drugs. I have suffered from the following since 18 years old.

- Headaches (constant dull pain)
- Fuzzy thought (but I get by)
- Memory problems (I'd tell you what they were, but I can't remember. )
- Depression (difficulty being happy at or feeling good, if I am happy it doesn't last longer than an hour.)
- EASILY Irritable (my girlfriend can attest to this)
- Dizzy (well it's kind of dizzy.. It's like I can't see straight/focus)
- Trouble concentrating (I can't even focus on conversations many times)

Anyhow, I've had CAT Scans and MRI's. Docs say everything looks fine. I've tried anti-depressents which really messed me up bad (I had EVERY side effect possible) and I've also tried therapy, shrinks, books, meditation... I've tried pretty much everything... but,

Then I found some articles talking about Neurotherapy, and I've been looking into this pretty seriously. I'm an Audio Visual technician, so I'm comfortable with computers and technology. I would REALLY like to try this kind of therapy, but the devices and the software are really expensive. So this brings me to my questions.

1.) Could Neurotherapy help me?

2.) How could a regular guy with regular insurance get a device and software

3.) Heck, can I build one and download the software?

4.) There are some clinics here in Arizona, is there some special routine for getting in there and treated?

Thanks so much for reading.

-Dave 33 / Chandler, Arizona

p.s. When I was young I had a CAT scan and was able to alter my brainwaves to make the paper read out go crazy, and then was able to get it very quiet. I guess I was way ahead of my time.



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Old 11-06-2007, 12:20 PM #6
LadyLuna LadyLuna is offline
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I wasn't diagnosed that long ago, probably mid-May, early July. But with having 3-4 head injuries in my life, the doctor said I should have probably had it checked earlier. Go figure... lol But, my family is helping me cope with it because I can't seem to get it around my head that I can't be rude to them lol
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Old 07-11-2011, 12:52 AM #7
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March 2009
April '09
July '09
September '09
December '09
January '10
January '10
July '11
Those are the dates of my concussions.

Headache
Dizziness
Light Sensitivity
Sound Sensitivity
Irritability and Anger
Concentration Problems
Trouble Following Conversations or Written Stories etc...
Constant fatigue
Pressure in my head
Heat and Cold Sensitivity
Listlessness
Trouble Translating what I hear into something that makes sense
Clumsiness
Dullness of Thought
Any Heart-rate increase = more of the above (therefore no exercise)
etc...

Anyways, speaking of fatigue, I need to try to aggressively fight it by making ZZZZZ's
Good Luck!
God Bless!
Margarite
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