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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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#1 | ||
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When you have a concussion and you overdo it it makes your head more sensitive. When your head is more sensitive it's easier to overdo it. After 1.5 years I was almost fully recovered from a concussion when a small bump to the head snowballed downhill and got so bad that I had to eat, sleep, and poop in the same position for 9 months with my eyes closed staring at crazy hallucinations.
Doctors were so ignorant that they either didn't know what a concussion was, didn't know how to treat one, or prescribed medications that did more harm than good. The doctors’ treatment approach is the reason why my head got as bad as it did. To see how this story pans out and to get an insight into PCS and why medications are a bad idea, read more here: How Overdoing It Turned Me Into A Vegetable | A Post Concussion Syndrome Story - TheAndrewShelley Do you agree with the lessons learned? |
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#2 | ||
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Legendary
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If you have scoliosis and MD, I wonder what other issues are making your symptoms worse. I can't imagine letting anybody touch my neck and spine without them being an expert in scoliosis and MD.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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#3 | ||
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Wow, sorry you went through so much. I've also had "minor" bumps or jarring of the head that caused some serious setbacks. The good news is that since taking more fish oil, curcumin, and bioflavoids, my head sensitivity is much better, though it's not perfect. I can even run somedays.
You're truly an inspiration to me. Thanks for sharing. |
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#4 | ||
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Thank you, it was really the perfect timing for me to read this as my doctor has me on app-amitryptaline and I have been doing more than usual because I haven't been getting the headaches (because of the Amitrypteline) but over the last two weeks have been feeling progressively worse. I'm not getting the headache that tells me when to stop and rest. Thank you for sharing your experience. I'm so sorry you had to go through all of that.
Sent from my iPhone using Tapatalk |
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#5 | ||
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Similar thing happened to me when I had a bad setback and then started taking Xanax that made me feel much better and I overdid it so much that I've never fully recovered from that since.
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12/02/2012 - Light concussion at boxing practice. Ended up having PCS for about 3 months. March 2013 - Thought that since most of my symptoms resolved I could start having fun again. Went snowmobiling once (didn't hit my head) and concussion symptoms returned and got even worse than before. June 2013 - accidentally bumped my head against a deck railing, and had a month-long setback. November 2013 - drove to work after a big snowstorm and the roads were very rough, ended up having another setback. 2014 - Having setbacks after coughing/sneezing too much, or someone slapping me on the back, or any other significant jarring. Feb 2014 - Started seeing Atlas Orthogonal chiro - most helpful doc so far. June 2014 - Two months of physical/visual therapy - no noticeable improvement. September 2014 - Diagnosed with Perilymph Fistula in right ear. November 2014 - Fistula surgery (switched to left ear before the surgery after additional testing). January 2016 - Quit work to "work" on figuring out PCS, so far it seems that eyes/vision issues are the most contributing factor, especially computer work. Current symptoms are: inconsistent sleep patterns, headaches, vertigo/dizziness, anxiety/panic attacks, mental fog/problems with concentration, problems with computer screens. |
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#6 | ||
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Thank you all for reading my story. It's nice to know I'm not the only one who thinks medications are bad. The neurologist had been telling me to take Nortriptyline for a year before I took it. He would say things like "you can take this medication (that has horrendous side effects) or you can do nothing..." (As if just resting was a bad thing!!)
When I was in bed I remembered Mark's video where he said his neurologist said to lie in bed and stare at the ceiling so I knew that's what I had to do. Thank you for making that video Mark. |
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#7 | ||
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Legendary
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Many people have had good results with Nortriptyline or amitriptyline, especially in small doses. It is a common, 'Try this' PCS med. Most tolerate it well even if it does not help.
I think you may be referring to the video on You Tube by John Byler called 'You Look Great.' John Byler is still struggling years later. The information I've read suggests lying in bed should be minimal because it does not stimulate brain blood flow and works against achieving good sleep with all of the stages.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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#8 | ||
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Note: Blog is at a new URL due to expiring domain:
How Overdoing It Turned Me Into A Vegetable | A Post-Concussion Syndrome Story - DrewDigital I totally agree that total bedrest is unhealthy. While it may be true that bedrest is unnecessary in most cases, I don't think it is true in all cases. My parents couldn't understand why I couldn't hop in my chair and be wheeled outside. The reason has to do with stimulation/activity vs capacity. Getting out of bed and moving around is stimulation that the brain has to process. My head was so sensitive that just that little bit of activity was too much for me. So I couldn't do that otherwise my condition would have gotten worse. To counteract the ill effects of bedrest I exercised everyday - arm exercises after breakfast and leg exercises before dinner. Since I couldn't go outside my dad brought the sun to me by perching a big mirror on a ladder outside my window and reflecting the sun into my room. (see picture below) Now I don't have to stay in bed. Yesterday I went and saw the parade in our town which was a huge milestone because there were so many people and I was able to do it without aggravating my head. Albeit I only saw half of the parade because if I tried to watch the whole parade I would have aggravated my head and caused a setback. So you can say my capacity has improved to where my brain can process half of an independence day parade. That's way better than before! ![]() Last edited by DrewDigital; 07-06-2016 at 02:01 PM. |
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