Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

 
 
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Old 12-16-2007, 02:58 AM #8
pono pono is offline
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Join Date: May 2007
Posts: 270
15 yr Member
pono pono is offline
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Join Date: May 2007
Posts: 270
15 yr Member
Default more...TBI/PCS issues & affects

RE:manifestations of the changes that occur in brain after TBI.

We all have our stories and challenges...

LORI... thanks for addressing this & evoking sharing & dialogue

Jeff... you are indeed Blessed to have so many special people & this level of support in your life.
as I look back at past decade since TBI accident, many Big changes & losses--of my abilitys, job, home, "friends" & more..
I became primary Livein Caregiver for my terminally ill parents and socially isolated w/ little support or help , for myself or family.
(I"ve posted on this in forums previously; could get long & involved and off topic . Perhaps will start a new thread to address )
TBI /PCS issues can be hard to understand, even to those experiencing, but more & better than from those w/ "normal" brains... this [forum] is where i've found the most support...

Lucy/Lynnlee... I've also looked into Brain Injury support programs. Intially I was deemed too high functioning compared to most patients/clients served who are severely impaired. I did get into a state funded Brain Injury program; much offered -- like help in home, but has not yet materialized. (this more a problem w/ home health agencys contracted to provide those services . tho help is needed in home, it's become another thing requiring energy and another source of irritation.
I learned TBI program does have a monthly support group but w/ my other med problems, & transportation issues along w/ carer responsibilities, getting there is problem but perhaps if I get the help promised, such as respite care, give me (and my father) a break and allow me to go and at least check out group.

Since this thread/topic came up on a problematic & difficult day . I've been (re)searching again...

I checked out Fight or Flight website - shared by PCS McGee--stated most of this therapy done at home??

"Self Regulation"-- may be of interest- trauma & brain changes
http://slacombe.myshrink.ca/srtlong.html

an article on emotional aspects--ANGER & Depression -- from neuropsych TBI website (additional topics addressed that may be of interest) http://www.tbiguide.com/angerdepress.html

don't know if I'm making any sense. bad migraine all day now other neuro pain flaring so Can't sleep-again; know insomnia is a big factor in how I feel & act but not yet found help for this (addressed in another post & also in article on Sleep disorders at TBIguide.com site just mentioned)

the many & various affects & changes since TBi are hard-- to accept, understand, cope & live with... there must be more better ways??

this forum has been one of the best supports for me and again I thank all for the sharing & caring, but no one can live my life . that's my biggest challenge ...how-- to have best quality of life...

Last edited by pono; 12-16-2007 at 03:57 AM. Reason: edit
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