Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

Reply
 
Thread Tools Display Modes
Old 12-08-2008, 10:09 AM #1
seiko seiko is offline
Junior Member
 
Join Date: Sep 2008
Posts: 68
15 yr Member
seiko seiko is offline
Junior Member
 
Join Date: Sep 2008
Posts: 68
15 yr Member
Default

Quote:
Originally Posted by shezbut View Post
Hi Vini,

Thank you for the welcome. Yes, my nickname is from Mork & Mindy- nanu nanu

I have seen a neuro psychologist, as most of my problems are brain-related. My case is complicated. I have epilepsy, in which the seizure focus was removed 3/06. Depression began a couple of months after surgery, and the epileptologist put me on anti-depressants. I finally gained control over my seizures in September or October, then slipped on the ice 3/07 and fell on the same part of my head! I had a moderate-major concussion.

The mild TBI brought my seizures back, which caused AED medication to be doubled, and increased my depression significantly. I have been on many anti-depressants, and have added mood stabalizers to gain some control.

I have worked with the TBI group at Mayo Clinic. The occupational therapist and neuropsychologist were most helpful to me. The OT did tell me months ago that I would be in psychotherapy for the rest of my life. I assume primarily due to the area removed in surgery, and that the TBI increased symptoms. I do know that those with mild TBI's most often have the most difficult time adjusting to life afterwards. Maybe that is where I am. I don't know.

My case is unusual. More than a couple of doctors have told me that I've got a heck of a lot going on. The difficulty is that I feel even more alone. I know that I sound like I'm stuck in a pity-party. Maybe I am! I just wish that I could make a personal connection with someone who understands and cares. That's all.

Shez
Hi Shez, I am sending you a hug.
seiko is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
shezbut (12-09-2008)
Old 02-16-2009, 01:20 PM #2
lynnschreiber lynnschreiber is offline
Junior Member
 
Join Date: Feb 2009
Posts: 7
15 yr Member
lynnschreiber lynnschreiber is offline
Junior Member
 
Join Date: Feb 2009
Posts: 7
15 yr Member
Default hang in there

I know how you feel. My son is a survivor of TBI. I wish he would be the one writing here but he seems totally unaware of his condition despite similar symptoms as yours and many others. I always feel guilty too knowing so many have far worse situations. Yet that shouldn't be a judgment minimizing our own experiences. Having to deal with it all the time is stressful; and the unknown future makes it worse. I don't know what to say to anyone else to make them feel better. I wish I did. Does it just help to know someone is listening?
Quote:
Originally Posted by shezbut View Post
In case you don't know me from the chat site, I'm a survivor of tbi. In March, 2007, I slipped on the ice and fell onto my head. Caused intracraneal hemorrhage, as a plate shifted on impact in left temporal lobe. I've been fighting major depression since - and I just feel alone. While I KNOW that there are *many* survivors out there, I cannot seem to pull myself up out of this funk!

Physical, financial, emotional, marital, parenting problems- you name it. My life just really stinks Then, I feel like a jerk for complaining. Countless people have it much worse than I! Who am I to complain when others are freaking fighting to live?? I feel so guilty, I don't even go onto the support link anymore. Instead, I just keep living. Forcing myself to stay in the moment, rather than look back on the past - and all that is gone. It is so hard!

I just thought I'd introduce myself here. Maybe some of you have felt the same & have pointers to share. I just don't feel like I fit in anywhere I go.

Shez
lynnschreiber is offline   Reply With QuoteReply With Quote
Old 02-16-2009, 03:23 PM #3
shezbut shezbut is offline
Member
 
Join Date: Dec 2008
Location: Minnesota, USA
Posts: 231
15 yr Member
shezbut shezbut is offline
Member
 
Join Date: Dec 2008
Location: Minnesota, USA
Posts: 231
15 yr Member
Default

Quote:
Originally Posted by lynnschreiber View Post
I know how you feel. My son is a survivor of TBI. I wish he would be the one writing here but he seems totally unaware of his condition despite similar symptoms as yours and many others. I always feel guilty too knowing so many have far worse situations. Yet that shouldn't be a judgment minimizing our own experiences. Having to deal with it all the time is stressful; and the unknown future makes it worse. I don't know what to say to anyone else to make them feel better. I wish I did. Does it just help to know someone is listening?
Hi Lynn,

It helps me in the moment of receiving support. Everytime I lay it out there I feel very vulnerable. As a result, I tend to completely avoid seeking support when I feel very low. I may even come in, and read supportive posts of understanding, but I avoid writing another difficult time (and risk losing support). That's my rationale anyway.

Thank you for your kind words. I hope that things go well for your son and that his condition improves as time passes. Don't feel guilty ~ I often feel guilty for the changes I've undergone (as it has impacted pretty much every area of my life). So much suffering. I can only imagine what you feel, Lynn. Hugs to you

Shez
shezbut is offline   Reply With QuoteReply With Quote
Old 03-03-2009, 10:07 AM #4
gardengrl's Avatar
gardengrl gardengrl is offline
Member
 
Join Date: Feb 2009
Location: Carolina's
Posts: 208
15 yr Member
gardengrl gardengrl is offline
Member
gardengrl's Avatar
 
Join Date: Feb 2009
Location: Carolina's
Posts: 208
15 yr Member
Default losing support

Quote:
Originally Posted by shezbut View Post
Hi Lynn,

It helps me in the moment of receiving support. Everytime I lay it out there I feel very vulnerable. As a result, I tend to completely avoid seeking support when I feel very low. I may even come in, and read supportive posts of understanding, but I avoid writing another difficult time (and risk losing support). That's my rationale anyway.

Shez
Shez, I think I can relate & read betweet the lines here? I've been there too. I think it's called shame. I have been, still trying to deal with some of the Horrible things I have done that simply hurt the ones I love the most! Just because of my selfishness. Sometimes I think I am a terrible person. Maybe I am, but others tell me the opposite? I even argue with them.lol.. Guilt is a horrible stress agent. Get rid of it..Dump it..it's done. Start every day anew..

At the risk of sounding like a preacher...I have tried EVERYTHING...so I gave in and tried GOD. I did not turn into one of those cookoo people but have really found the peace I was needing. I don't know your spritual connection, but I was at the point of (Give up OR give in)..My friend called it (Sink or Swim) my choice...I'm really not afraid to say what I think & never judge anyone...My belief's are my own & I am sure I have twisted them to fit my lifestyle..lol...

You will be ok shez...No one will leave you from here...If you ever want to chat, you can PM. I only have mornings to myself, sometimes late evening because I care for my mom, Alzheimer/Schizophrenia/Dementia So I am typically slow with responce. Have a Lovely day!
gardengrl is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
shezbut (03-05-2009)
Old 02-23-2009, 09:31 AM #5
Abu44b Abu44b is offline
New Member
 
Join Date: Feb 2009
Posts: 4
15 yr Member
Abu44b Abu44b is offline
New Member
 
Join Date: Feb 2009
Posts: 4
15 yr Member
Default Hang in there

I'm sorry to hear about you're injury! I am 4 months into mine and it's really getting to me as well to be honest. I feel like i've had a hint of depression in my symptoms as well. Just feeling useless really, but i tell myself that it is natural to feel this way, but the thoughts of being useless and so on is quite unrealistic. Therefore NATURAL and UNREALISTIC are the two main words that helps me. If you feel some feelings of depression coming along, take about 5 deep breathes and think of something positive such as you're family or a hobby or whatever. That's what i do and to be honest it works 90% of the time! It's only a suggestion but give it ago. you might be surprised
Abu44b is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
shezbut (02-23-2009)
Old 02-24-2009, 08:43 AM #6
nikkicoop nikkicoop is offline
Junior Member
 
Join Date: Feb 2009
Posts: 23
15 yr Member
nikkicoop nikkicoop is offline
Junior Member
 
Join Date: Feb 2009
Posts: 23
15 yr Member
Default

I can relate to the parenting side of things. I have two boys - 2 & 4 yrs old. It has been just as traumatic for them. One minute I was happy mummy. Next I was sick and sad mummy. Dont want to leave the house, but I have to for them. They really pick up on whats happening. At playgroup today I had to go outside to hide my tears. Its just not fair!!
nikkicoop is offline   Reply With QuoteReply With Quote
Old 02-25-2009, 01:25 AM #7
shezbut shezbut is offline
Member
 
Join Date: Dec 2008
Location: Minnesota, USA
Posts: 231
15 yr Member
shezbut shezbut is offline
Member
 
Join Date: Dec 2008
Location: Minnesota, USA
Posts: 231
15 yr Member
Heart nikkicoop

Quote:
Originally Posted by nikkicoop View Post
I can relate to the parenting side of things. I have two boys - 2 & 4 yrs old. It has been just as traumatic for them. One minute I was happy mummy. Next I was sick and sad mummy. Dont want to leave the house, but I have to for them. They really pick up on whats happening. At playgroup today I had to go outside to hide my tears. Its just not fair!!
Hi nikkicoop,

Parenting has been very difficult since my brain surgery 3/06, and worsened after the tbi 3/07. My girls were aged 2 and 4 when my life became a shambles. I presume that this emotional battle within myself contributes quite a bit to my depression.

I become overwhelmed rather easily nowadays. Kids just being kids and having fun stresses me out big time! While I understand their rambunctious behavior, my reaction seems instant to me. I try hard to maintain control over my reactions - it is far from easy though! My girls quickly pick up on my stress, and then they become stressed out, and a vicious cycle is born. I have dropped certain activities & picked up others, and have had to limit my days available for work, to reduce general stress level as much as possible.

In the past month or so, I've seen a lot of improvement in my relationships with my daughters. For that, I am eternally grateful! My girls seem to have acquired a better understanding of what I can & cannot handle, and (now anyway) work around my limitations. *knock on wood* It is sad that I can't do ____ like Daddy and most other parents they see. And as soon as that thought pops into my mind, I have a heck of a time bringing myself back up again!

I can understand how you're feeling guilty and sad for your boys. Try very hard not to let those thoughts enter your mind though. In my experience, those thoughts begin one heck of a horribly emotional roller coaster ride!

Best wishes to you ~ take care!
Shez
shezbut is offline   Reply With QuoteReply With Quote
Old 02-25-2009, 10:44 AM #8
tommywrestler tommywrestler is offline
Junior Member
 
Join Date: Jan 2009
Location: Gatlinburg,Tennessee
Posts: 43
15 yr Member
tommywrestler tommywrestler is offline
Junior Member
 
Join Date: Jan 2009
Location: Gatlinburg,Tennessee
Posts: 43
15 yr Member
Default

Quote:
Originally Posted by shezbut View Post
Hi nikkicoop,

Parenting has been very difficult since my brain surgery 3/06, and worsened after the tbi 3/07. My girls were aged 2 and 4 when my life became a shambles. I presume that this emotional battle within myself contributes quite a bit to my depression.

I become overwhelmed rather easily nowadays. Kids just being kids and having fun stresses me out big time! While I understand their rambunctious behavior, my reaction seems instant to me. I try hard to maintain control over my reactions - it is far from easy though! My girls quickly pick up on my stress, and then they become stressed out, and a vicious cycle is born. I have dropped certain activities & picked up others, and have had to limit my days available for work, to reduce general stress level as much as possible.

In the past month or so, I've seen a lot of improvement in my relationships with my daughters. For that, I am eternally grateful! My girls seem to have acquired a better understanding of what I can & cannot handle, and (now anyway) work around my limitations. *knock on wood* It is sad that I can't do ____ like Daddy and most other parents they see. And as soon as that thought pops into my mind, I have a heck of a time bringing myself back up again!

I can understand how you're feeling guilty and sad for your boys. Try very hard not to let those thoughts enter your mind though. In my experience, those thoughts begin one heck of a horribly emotional roller coaster ride!

Best wishes to you ~ take care!
Shez
Im with you guys on this I have 3 little girls and when my PCS symptoms started we quit going anywhere and all and they hated it and did not understand and yeah i get easily overwhelmed also
tommywrestler is offline   Reply With QuoteReply With Quote
Old 02-27-2009, 04:21 PM #9
shezbut shezbut is offline
Member
 
Join Date: Dec 2008
Location: Minnesota, USA
Posts: 231
15 yr Member
shezbut shezbut is offline
Member
 
Join Date: Dec 2008
Location: Minnesota, USA
Posts: 231
15 yr Member
Default

tommywrestler!

It is so hard, and damn depressing at times. My only advice is to avoid things that overload you (as much as possible), in order to avoid the overwhelming fear, anger, anxiety, etc.

Best wishes to you!
Shez
shezbut is offline   Reply With QuoteReply With Quote
Old 02-28-2009, 02:45 PM #10
tommywrestler tommywrestler is offline
Junior Member
 
Join Date: Jan 2009
Location: Gatlinburg,Tennessee
Posts: 43
15 yr Member
tommywrestler tommywrestler is offline
Junior Member
 
Join Date: Jan 2009
Location: Gatlinburg,Tennessee
Posts: 43
15 yr Member
Default

Quote:
Originally Posted by shezbut View Post
tommywrestler!

It is so hard, and damn depressing at times. My only advice is to avoid things that overload you (as much as possible), in order to avoid the overwhelming fear, anger, anxiety, etc.

Best wishes to you!
Shez
Good call man I have been trying to recently and it does help,i was one of those people who never really thought stress affected anything until this and now i know how bad and what stress can do to ya
tommywrestler is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Intro mikekoop New Member Introductions 11 02-25-2008 12:53 PM
Hello, I'm new and this is my intro cjthatsme New Member Introductions 6 01-26-2008 08:59 AM
Intro bethanna New Member Introductions 3 01-14-2008 08:42 AM
Intro eagle1 New Member Introductions 2 12-24-2007 08:35 AM
Intro moon and stars New Member Introductions 6 09-28-2007 05:50 PM


All times are GMT -5. The time now is 07:15 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.