Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 02-07-2009, 10:52 PM #1
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Default Headaches and Head Injury

I had my accident over a year and a half. When it first happened my scalp really hurt. I was so dizzy and could barely stand in one place. I had this sensation for 3 months of falling backwards. I could be completely upright but have a feeling that I was falling. This has improved and only feel it once in a while. The headaches however have not. When I am stressed it is worse. I have had pain on the top of head and back of head. I am wondering if any other head injury victims feel this? Pleaase let me know...with great appreciation, 2 Blue
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Old 02-08-2009, 04:07 AM #2
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I had my accident over a year and a half. When it first happened my scalp really hurt. I was so dizzy and could barely stand in one place. I had this sensation for 3 months of falling backwards. I could be completely upright but have a feeling that I was falling. This has improved and only feel it once in a while. The headaches however have not. When I am stressed it is worse. I have had pain on the top of head and back of head. I am wondering if any other head injury victims feel this? Pleaase let me know...with great appreciation, 2 Blue



welcome
2 blue yes I have a daily head ache and dizziness have you seen a neurologist ? there are things that can be done for the head ache keep hydrated take multi vitamins and b12 omega 3 and 6 fatty acid,s

keep us posted you are not alone with this see, if you can join a head injury group for support, coming to this forum and getting involved has helped me to cope

welcome again
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Old 02-09-2009, 09:40 PM #3
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Default Thank you vini

I appreciate your response. I appreciate your guidance I know it is a head injury. I know there is clear signs for me. I am functioning, and hide well. But the pain in the head is particularly bad. Anyhow I am working with a psychologist that will be testing for cognitive issues. It scares me a bit..but I want to know as well. Ways I can help myself. Once I know the results I will join a support group.
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Old 02-10-2009, 01:30 AM #4
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What type of injury did you have?
What kind of accident?

concussion, cracked head open, something fell on your head, you fell and hit head, whiplash, car accident...??

might help us with ideas if we know more of the injury and how it came about.

Sometimes i get trigger points due to tight neck muscles and I will get sore area on my scalp. {referred pain}

I also had vertigo type dizziness, cognitive problems, swallowing, speech/voice problems - mostly due to muscle spasms pulling on cervical spine around the vertebral artery.
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Old 02-18-2009, 11:17 PM #5
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I also have trouble with headaches. I have had a severe constant headache for over a year and nothing will take it down or away.

I did try trigger points and the first time it did bring down the pain a notch so that could be worth looking into.
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Old 02-21-2009, 04:11 AM #6
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Have you read my thread in chronic pain about jolt syndrome? Just wondering.
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Old 03-02-2009, 09:59 AM #7
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Quote:
Originally Posted by GmaSue View Post
Have you read my thread in chronic pain about jolt syndrome? Just wondering.
i just read now.... in lieu of Link found via google .... http://neurotalk.psychcentral.com/thread77789.html

which led to another google "Jolt Syndrome"

one article found , which i'll try to add Link here & CP forum,
does briefly address it with other DX names cited: PTHS- Post Trauma Hyper... Syndrome {read down into section on Myofascial Pain....
don't know if this is article you are seeking??

http://www.geocities.com/altmedd/pain.htm



I didn't know there was a specific Dx for Sx i've had TBi/PCS that i refer to as my HyperSensitivity [s) to sound , noise, vibrations; Light, smells, more Sensory stimulations stressors that often cause 'distress'
Pain -- Head aches esp Migraines.... .

"hyper -irritablity" is listed and acknowledged by many as 'common' occurance after Tbi,
as are "headaches'... noting that Post Trauma/-Post Concussive Headaches can be complex and very challenging

Sue...
wondering if u HX includes TBI or other head injury/trauma??
thanks for sharing...

Last edited by pono; 03-03-2009 at 06:49 AM. Reason: typo's
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Old 03-02-2009, 07:28 PM #8
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Default Post Traumatic Headaches

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Originally Posted by 2blue View Post
I had my accident over a year and a half. When it first happened my scalp really hurt. I was so dizzy and could barely stand in one place. I had this sensation for 3 months of falling backwards. I could be completely upright but have a feeling that I was falling. This has improved and only feel it once in a while. The headaches however have not. When I am stressed it is worse. I have had pain on the top of head and back of head. I am wondering if any other head injury victims feel this? Pleaase let me know...with great appreciation, 2 Blue
i do...

Post Trauma /Post Concussive Headaches continue to be Big complaint.

TBi -struck in head by lift- 2 years ago (with more injurys, concussions since -mostly from falls -- 'drop attacks' that began after TBi accident 12 yrs ago ) many headaches/pains and hyper-sensitivitys.

some specific DX:
ON-Occipital Neuralgia {back of head , & neck pain -comads often becomes migraines.
Complex migraines.
Cluster
TN {Trigeminal Neuralgia
other 'nerve' neuropathic pain
each, all very challenging.

more details-- later??

feel free to PM
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Old 03-07-2009, 10:44 PM #9
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Default Get a diagnosis

2blue,
You definitely need a much better diagnosis than a psychologist. You sound like you need some vestibular testing (balance etc.)

I would not accept a psychologist's simple diagnosis about a head injury. They often try to put too much causation on emotional issues. It takes complex testing to get a true picture of your neuro-psychological condition, much more than a common psychologist can perform.

Check with your state brain injury association or other such organization. There is probably someone who has TBI PCS skills. I would look under Physical Medicine and Rehabilitation in the phone directory. Then call and ask if they have a doctor who is good with head injuries. Neurologists tend to not recognize problems they cannot see on an X-ray, CT or MRI image or EEG tracing.

As mentioned earlier, It will help to know some specifics about the mechanism of injury. That is just a starting point.
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Old 03-14-2009, 07:16 AM #10
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Quote:
Originally Posted by 2blue View Post
I had my accident over a year and a half. When it first happened my scalp really hurt. I was so dizzy and could barely stand in one place. I had this sensation for 3 months of falling backwards. I could be completely upright but have a feeling that I was falling. This has improved and only feel it once in a while. The headaches however have not. When I am stressed it is worse. I have had pain on the top of head and back of head. I am wondering if any other head injury victims feel this? Pleaase let me know...with great appreciation, 2 Blue
i know exactly how you feel. i fell a year ago from 30 feet and landed on my head. cracked my skull, severe concussion, broke most of the bones in my left ear and crushed my eardrum. the dizzy spell's are crazy and the headaches get old after awhile. i have to have an implant put into replace the eardrum and dr.'s say headache's will pass with time.. ya , i can relate to you
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