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Old 01-11-2007, 11:44 PM #1
Jebbyfur Jebbyfur is offline
Junior Member
 
Join Date: Dec 2006
Location: Aurora, Colorado
Posts: 56
15 yr Member
Jebbyfur Jebbyfur is offline
Junior Member
 
Join Date: Dec 2006
Location: Aurora, Colorado
Posts: 56
15 yr Member
Confused Mvd

Went to consult with NS today. He spoke to me about all the options I have. He told me he thinks I have TN and ATN. Says I am more complicated case because of the sinus stuff. After explaining all of the treatments, he said what he suggests is an MVD. Not the severing of the nerves the other doc. said. And he also did'nt turn down any of the other options. He said he has probably done 200 MVD's Only 3 patients had CSF leaks. A handful have had some nerve issues as a result. No lost patients. He is very up on our website and TNA. Seemed like a likeable guy. He said it's all up to me. He did say the meds would eventually stop working. Since I am not supposed to be under stress, this sure stinks. Everyone who does not have TN says they would never have brain surgery electively. Try everything else first. Pain management etc. I spoke to him about keyhole approach stuff too. He said it's very dangerous and he would never do it. Asked him about stimulators, he said he felt that they were overstimulating nerves and eventually they may be a problem too. My mind is on overlaod so I need to absorb and digest. At least he gave me some options. He did disagree with complete severing of the nerve. So I like him for that. He's going to consult with my Ent and Neurologist. Ball in my court. But I don't want to play this game, it's to physical. Barometer change and stress causing the dull ache in my temple, eye and stupid eyebrow twitch. Must get sleep. JEN
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