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Old 10-07-2010, 03:34 PM #7
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Burntmarshmallow Burntmarshmallow is offline
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Burntmarshmallow Burntmarshmallow is offline
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Burntmarshmallow's Avatar
 
Join Date: Sep 2006
Location: east coast florida
Posts: 3,456
15 yr Member
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Hi laurenash
lastnerve has great idea printing out info to share with those how dont really understand this... up above in the stickies there is a thread called "caring for someone with t.n."
I tell others to print it out and give to family friends even doctors and dentists just so they can have an idea what all of us are trying to live with each day so they can be of more help.

And too just as doodle bug has shared ... do not overwhelm yourself by trying to see your whole future all at once. It IS one day at a time and each of us are different what helps someone else may not help the next person. so the more each of us share the more hope and info we leave for another to find a way to a more pain controlled day.
usually it takes a couple weeks for you to adjust to a medication and most time medications helps control the pain Just give yourself time to adjust okay.
maybe the mri will show a compression on the nerve and surgery can fix that.
sending you calming thoughts as I know the claustrophobic dose not help. maybe they will have music playing then you shut your eyes do deep breathing and everything will be okay.
I am really very sorry your dealing with this being so young
Just know there are others here like legallady she is in her early 20s your not alone not at all we are all here for you.
try to learn what your triggers are for some it is the wind. or being touched on that area of face others it is the heat and humidity... cold foods or drinks ect learn your triggers and try to avoid them. I use a bandanna to cover my face up when its windy ,hate kissing... drink with a straw stuff like that.
I am holding you in my prayers and positive thoughts. oh and welcome to neurotalks t.n. forum. I am glad you found your way here.
PEACE
BMW...Tina
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