I have to vent some pain out. We have a brake in this storm for now anyhow.It is taking so long to get across florida .
My ears and head are having an overload of pressure pain

My jaw has been doing that shaky tremor shivering thing . Neuro says my nerve is miss firing .it hasnt done this in a long while.
I hate this part of a.d. the most i think. The part when the pain and triggers make you snippy... mad angry . I wished the tropical storm would pass by it is moving so slow right now they say it might pass out to the ocean by me grow to hurricane then come back to florida . if this icon was bigger it is what my head looks like. ready to explode from pressure. like some big fist is reaching inside my head and squeezing tight tighter. clawing the inside of my cheek and lower lip with eletrcial firey claws.
my jaw is sore and hot and keeps tremoring on me. this isnt a symptom of t.n. or a.d. I think it is a nerve thats been snapped kind of thing as i havent met / talked with others with t.n. who have this . and i hope i NEVER find one who has it.

it is getting really windy out again so a squal must be here I better log off .

I pray my leads arent slipping form my shaky jaw fits I am afraid to turn it on when my jaw freaks out like this and that makes the pain worse..not being able to turn on.

I know I am alone on that sea saw and this place is pretty quiet . so I am allowing one big scream as a log off...
AAAAAAAAAaaaahhhhhhhhhhhhhhh.

chain this pain monster up!!!!!!!!

Hi Bmw,
I am so sorry to hear that you are in alot of pain at the moment!! i really hope it passes quickly for you and you can have lots and lots of low pain days to come! i hope you feel better soon!

Mel
xoxoxoxo

So sorry to see that you're in so much pain. I've been worried about you with that storm heading your way, and now this!

I hope you get some relief soon BMW, . and I also hope that storm passes you by.


..........

Vent away BMW. I'm with you in spirit and in pain. BTW, I also get muscle spasms in my face and eyes and I think the pain causes the muscles to become fatigued, which leads to spasms. Is what you're experiencing spasms?
Hang in there and painfree wishes to you in abundance, Ellena

Well the storm is off shore but still right by me...Daytona a.k.a. (volusia county) the pressure pain has let up some but not gone all the way.but less is great! my head and face still high on pain but my ears feel much better,.

EE03 About my shaky jaw here is what happens my jaw will get little quivring as a pre signal then it spazes out exactly like shivering my teeth clattering and lower jaw shivers. like when one is outside in the frozen cold winter shivers and teeth chattering just like that. and we know its not cold here what are yours like can you share that with me ??? I dont know if spasm is what id call it as it seems stronger then twitching and the neuro says it is my snapped nerve misfiring. and yes my jaw still sore and throbing. But by the grace of God the leads havent slipped any farther up my cheek. Thank you Lord!!!!!!! I had it on this morning for a short bit.

I was suprised to see replies here. You 3 are pretty great neuro pals. Koala sister Melina EE03
I appreciate the kind caring you all threw to me. thanks for the sunshine durring this storm and the smile inside I have. UNFORTUNEATLY The storm is stalled right off coast here and supose to come back and go across florida again. so I am pretty spent and will catch up here after this all moves farther away. EE03 low pain flying to you from me. stay safe Koala being held tight in my prayers you know that sister. Melina you too lots of low pain wishes. t.y. much! no sleep last night i see a nap thats says BMW on it
Peace
bmw

YIKES BMW!!! Hope you start to feel better soooooon! That storm sounds so nasty.

Take care and sending hugs and prayers your way!

My spasms are really like tics. They occur in rapid succession and sometimes they are short, rapid spasms, then other times they are unrelenting and they keep going on and off, until they just stop. Sometimes, actually more so now then before, they are visible to others and they are distinct movements, although they still happen without anyone, me included, being able to see them. They always happen in rapid succession and in multiples so it isn't just a single contract and release. I haven't been able to tell that they are set off by any particular thing and have shared what the neuro's say regarding the "tic" of this condition.

Hopefully I painted a clear enough picture of what they are like. If not, let me know and I'll give it anohter go!

Hugs, Ellena