I am beginning to feel depressed over having TN. I can't stand always having that thought at the back of my head... 'When is it going to hurt again??' I'm tired of people looking at me funny when I flinch for no reason, and I'm tired of not being able to let my baby touch my face or give mommy kisses... I'm so fed up at not being able to get some real help and I just want to know what the hell to do! Grrrrrrr..... I'm so sick of this crap. I don't want to be in pain anymore!!! Why can't my doctor just find a drug that works???!!!

Sweetie:

Hang in there. Some days are really bad, I understand that. I can't fix it for you. But I can say that there are lots of us here who understand TOTALLY what you are dealing with.

That sense of loss of control is harder to handle than the actual pain itself. It steals things from who you are. And having to live in fear of the 'strikes' is so, so horrible.

We get it. If it helps to post feel free. We're here with you. And WE KNOW what it feels like. Even most of the docs don't, not really.

CAT