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I was diagnosed with TN in Feb of this year. I had Gamma Knife surgery on March 1. I was pain free for about a month and now it is worse than it was. I have been reading the posts on this sight and you are all so supportive of each other. I have an appt with a new neurologist June 1. (changed to Kaiser Insurance). When I was diagnosed I was already on Gabapentin and Lamictal for bi-polar disorder so am reluctant to change these types of meds at all. Tried adding Topomax but could hardly complete a sentence or stand up straight so stopped taking that. I do not have the electric shock type pains, but more of an icepick in the ear and jaw type pain. I think that is b/c the TN is due to an injury to the front of my face on the left side. I don't know if the neurologist will be able to do much but am wondering if anyone has any suggestions.
I am thinking of all of you and sending you the best wishes. Teresa |
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