[spkar0517]

I have been on this site for almost 2 years. I started in the neuropathy section. Things have been happening that now I dont know what section I belong in. Neither do my doctors which is very confusing. I have documented snf - both feet. I was on prednisone which kept it under control for some time. i wanted to come off due to the long term side effects. Cymbalta helped me do that. However, since being off the steroids, my ANA levels have risen from negative to 1:640 - ACE levels high. C3 complement high. levels high which indicate sarcoidosis or wegeners something. my chest xray clear. now i am having problems with my eyes. Dr afraid i had a stroke, but opthamalogist diagnosed nystagmus. i have to see a neuro -opthomalogist on monday and the rheumy after. left eye is sore -something going on.

i just dont understand why it is so difficult for the 7 mds i am seeing to figure out what the underlying disease is and how to treat it, rather than putting me back on steroids and neurontin and treating the symptoms which they have done. I dont want to treat symptoms..I want to know what autoimmune issue i have.

there has to be a better way... any suggestions?