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Old 02-07-2010, 11:09 PM #1
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Default Dont leave me alone please !

Hello dear friends,

I decided to share this because, for me, you are part of my family... even better that my family... way better....

You understand me, help me, listen to me... no matter if it's 3 in the morning... pray for me, think about me... Things that, not many in my family do...

So, I think I told you about my trip to london plans... well, God sent me 2 angels to help me, one is my aunt, and the other one is my boss... Both helped me with the money I needed...
So, Im almost ready to go... I just need to pack...

I have been having bitter-sweet feelings... I feel truly blessed... for, being able to go to london... to see my fav band play live... It's a dream... I can barely belive it... But, at the same time, Im scared to death... It is the first time in 2 years I travel... it is the first time since Im sick and full of problems that I travel...

This 2 years I kept saying to myself, that, if I could make a trip again, I would start living again... and, here it is.... but... dont know.... sometimes I feel it is a irresponsability...

I will take my time... Fibromyalgia bothers me... what took me 2 hours, now will take me 4 I guess... and, what used to be stressful, will be more stressful... but, I feel like I should try and fight for what I want...

Anyway, Im rambling again, and this post is getting very long, what I want to say, is, please keep talking to me... I just paid a internet service there, so, will be able to log into the forums (with my phone, but it is better than nothing) and will come here to tell you how Im doing...

If you have me added in facebook, I will update that too...

I just want to feel less lonely... Loneliness kills me... but, I have to travel alone as I dont have money to go with my mom...

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Old 02-07-2010, 11:50 PM #2
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Dear Majo,
We are here.
Keep posting.
M.
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Old 02-07-2010, 11:54 PM #3
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HI sweetie,
I can't believe you are actually able to go !!!!
that is terrific!
you must be so excited!!!
WE will be right here for you...post when you can you are a strong woman and can do this.
just take things as they come.....
try to flow with the travel...there is no controlling it...it does its own thing.
You wil have so much fun seeing your band!
enjoy your vacation/holiday!
bizi
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Hattie the black and white one wrestling with hazel, calico. lost hattie to cancer.....
Happiness is a decision....

150mg of lamictal 2x a day
haldol 5mg 2x a day
1mg of cogentin 2x a day
klonipin , 1mg at night


I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9,
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Old 02-08-2010, 12:07 AM #4
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Dear Blue, I understand your fear of traveling at this stage of your illness. Before I went away for the week I was also anxious. I took meds for all sorts of possibilities and references to doctors - important(your travel insurance should cover medical) - to take care of any eventuality.
Things were ok 'though. The lupus and the ME played up a little, but got sorted out with rest and a few extra pain meds.
Be careful but don't worry too much. The minute you feel any warning bells, take a step back and assess the situation.
Make sure you are physically comfortable - lots of warm clothes . . . waterproof stuff, umbrellas . . . gloves ... woolly caps ... bad weather in London now.
Once you are set up with everything you can think of that you may possibly need, go out and have a blast. The excitement and the adrenaline will keep you going so don't worry.
Have a great break - you deserve it.
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My blog:

I started to write so I could keep a track on my thoughts. This particular Lupus flare has turned my life on its head. Although I am pretty content with this enforced solitude, I have a constant dialogue going on within myself. So I thought I'd write it all down.


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I hope you enjoy reading it when you can.
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Old 02-08-2010, 12:16 AM #5
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Blue, no matter what the feelings that trouble you there are what they are, just take it hour by hour.
I do find when I travel I expect all kind of anxiety, I am often so surprized that I am so excited, the change of scenery and removal from every day troubles, I get too busy to think or notice the "stuff".

I NEVER thought I would survive a trip, drive home from Disney last year when son took the auto train and we fly to meet them and drive home. Two days on the road all day, I go 2 hrs away to Phila and have to stop half way in Allentown for a break and watch my road signs to see how much further,.
That trip, being with grandson, OH and watch the same Thomas the Tank DVD for 7 hrs did not flare me. Only at the end, the last 4 hrs I started with leg stiffness trying to stretch out.

So being away with a great concert, may just get the endorphins going and you will have a blast without realizing it. My prayers are with you, and send an Angel to sit on your shoulder and keep you relaxed and fun loving filled days.
Hugs
Di
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Old 02-08-2010, 12:29 AM #6
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AAaaahhhhhh !!! friends !!! sisters !!! You are too cute !!! too kind, too sweet !!!

I have always say it, and will say it once again, I feel stronger, waaaaaaay stronger and safer every time you reply to my posts, pray or think about me...

Thank you a lot !!!

I will be checking in here everyday while there !!!

Love you all so much !
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Old 02-08-2010, 12:34 AM #7
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Have a great time!!!!!!!
__________________

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Hattie the black and white one wrestling with hazel, calico. lost hattie to cancer.....
Happiness is a decision....

150mg of lamictal 2x a day
haldol 5mg 2x a day
1mg of cogentin 2x a day
klonipin , 1mg at night


I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9,
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Old 02-08-2010, 12:44 AM #8
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Hey Blue. I know what you mean. This forum is very important to us. Your not alone.

Traveling is nice. I thought that I'd have a problem with fear while flying in a airplane,but it's not the same thing at all. I looked out the window,and was fasinated with the sights that I saw. I love to ride in a airplane. BF
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Old 02-08-2010, 04:02 PM #9
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(((Steve)))

I hate flights... I hate the fact that I cant sleep... But you know what I really hate ? airports !!! they stress me !!

I just want to be there... in london, but all the trip... terrifies me ! argh

Today and tomorrow are the worst days I think... Im still here, wishing to be there and still having to plan things and sort others out... puff...
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Old 02-08-2010, 04:31 PM #10
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Blue, have fun on your trip. Sometimes we will worry much more than what we actually go through. I was scared of flying back in 2001 and once in the air it was not bad at all. i still stressed out about it big time though before the trip.

barbara
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