[OhKay]

Wide-spread joint pain for months and months...

Went to an rheumy, orthopedist, and to PCP again to rule out things; and everyone pretty much assumed the pain was because of my MS treatment Tysabri. I got 3 treatments of IV solu-medrol before treatments and that seemed to help for a few days after.

My PCP put me on an NSAID for arthritis, but it didn't help.

I guess my neuro is sending me to a new rheumy in the city (appt. is Nov. 2nd). In the meantime, she increased my lyrica (now 150mg am, 225mg pm) to see if that helps, and my PCP just gave me a script for 50mg of tramadol 4 times a day. It seems to be helping finally!!!!!!

Also, I ordered a new mattress and it arrives Tuesday. I hope that will reduce the number of times I wake up during the night in pain.
But I'm a little worried because I also see the new MHRN Tuesday at 9:30am. I hope the delivery company can come after I do to the appt. I have to call in the am to see if they can accommodate that.

-Kay

[waves]

Dear Kay

that is great news!!!!

good luck with the mattress people... they should be able to accomodate it. i think the worst that could happen is they will reschedule you for wednesday delivery.

hope you like the new practitioner!

~ waves ~

[Dmom3005]

Good luck with the rescheduling of time.

I take a nsaid with codeine. For pain when I need it.

I take it for fibromyalgia and arthritis.

Donna

[Mari]

Originally Posted by OhKay

I guess my neuro is sending me to a new rheumy in the city (appt. is Nov. 2nd). In the meantime, she increased my lyrica (now 150mg am, 225mg pm) to see if that helps, and my PCP just gave me a script for 50mg of tramadol 4 times a day. It seems to be helping finally!!!!!!
-Kay

Dear Kay,
You've been busy.
That's so great that the neuro and PCP have helped you get good meds!

Enjoy the bed.

M.

[bizi]

This is great news kay!!!!!!!
I am hoping that your new bed arrives timely and that you are able to sleep better with it.
bizi

[OhKay]

Thanks guys!

Unfortunately, I'm still having low-grade fevers everyday (99.6-101.3). They've ruled out infection so many times (CBC w/diff, chest Xrays, blood cultures, urine) and it all turns out fine. I bet it has something to do with the joint pain. But it's much easier to be patient waiting for docs since I'm not in all that pain!

It's still working!!! I've been in such a good mood (not manic) because I am SOOOOO much more comfortable!

Donna, tramadol (ultram) isn't a narcotic, but it's like a narcotic. I can't handle codein because it makes me very nauseous, sweaty, and light-headed.

I spoke to the delivery company this morning and they expect to deliver between 10 and 1. I let the gentleman on the phone know that I probably won't be home until around 11. He assured me that they will not leave the mattress outside and he will be in contact with the delivery guy.

I'm a little nervous about the appointment with the new "shrink." I hope that I'm comfortable with her and things work out. I'll be sitting there in an hour, so I guess I'll find out soon, and will report back!

Thanks again,
Kay

[waves]

Dear Kay

that's great that the pain meds are still working. i can appreciate that comfort has a profound effect on mood!

regarding the joint pain / fevers... Kay, have you been screened for lupus?

i am glad the mattress delivery folks are going to take care of you.

i hope you like the new 'shrink' ... look forward to hearing about it.

~ waves ~

[bizi]

I hope it goes well for you today!!!!
pdoc is the commonly know abbreviation here for psychiatrist....just to let you know.
bizi

[OhKay]

Hi guys,

I like the new "pdoc," but she is a real talker. My appt. was at 9:30. I probably got in at 9:45.... I didn't get out of there until almost 11:30!
I am a complicated case, but jeez! She didn't make any med changes, but agreed that she will reduce my zoloft if I become manic again.

The mattress people did NOT take care of me. When I got home from my appt. I had a message asking if they could reschedule delivery until tomorrow because a driver had a family emergency. I called back and left a message, and someone called back after 1 and told me that my delivery wouldn't come until tomorrow because a driver got sick on his way to work. It didn't matter that I had spoken to the dispatcher at 7:30, and he said it was on.
I guess it's good that I don't work, but I already stripped the bed...

Waves, I have been tested for lupus in the past and was negative. I also get rashes sometimes.... It's common to have one than one autoimmune disorder, and I think that's why I'm being sent to another rheumatologist.
I put a call in to the MS Ctr. about the fevers. I haven't heard back yet, but they always want me to UA/CNS (urine culture and sensitivity) or go get another work up from my PCP.

So, we'll see what happens: mattress, pdoc, fevers, rhuematologist, etc.
For now I'm satisfied with adequate pain mgmt.

-Kay

[waves]

wow... that is a good "intro" session report... she certainly doesn't seem to be too hardnosed about making time for you when necessary. glad you like your new pdoc so far... hoping this will work out. when do you have to see her next? until then, is she available to you - can you call her, if need be?

i agree, having the pain in check is a huge thing while the investigations are ongoing. as to that, let's hope the new rheumy is inspired...

sorry about the mattress mess-up. i guess you must have spoken to the dispatcher before s/he found out the driver was sick. well that sucks you have to do double work...

fingers crossed for tomorrow.

~ waves ~