amendments
 

i edited the post on previous page to include tonight's doses and also a correction from this morning.

i can't edit the previous long post any more, and quoting part of it in current state is... not viable. anyway point is....

i just wanted to note someplace that, 5 doses of the codeine stuff were missing, not 3. i said i had taken 3. when i have my head back i will try to remember if i took them consecutive, or if i took 2 the next day. last month that is.

i am going to bed after i eat my cereal. i think. i am sleepy now but that could change from one minute to the next. it's been weird.

~ waves ~

I hope all of this helps keep it straight for you...that is what is important, that it helps YOU!
bizi

to Bizi, thank you.
 

thank you dear Bizi! ... that's what it's for... sigh :o

was going to say i feel so selfish not really participating right now other than just using my own thread as a "log" ... :o:( and yammering on in it about other stuff now and then. Log-wise, it is easier than writing in my actual LOG for some reason... perhaps because i have to think about the shorthand too much? i don't know. or because i am deciding doses and having it listed out like this is clearer when i have to decide what to do next. my Excel log works for past reference but not as well for this. It is also easier than a piece of paper for various reasons.

thank you for your support and understanding.

~ waves ~ who is about to add a post for today... :o

To Mari... floating ... hehe
 

Thanks Mari.

yes the floating is to avoid as much impact with the floor when walking... floating or gliding ... feels a bit like i'm doing a ghost routine sometimes hehe :D hehe. As to the choosing how to move - avoiding things that cause pain... it's just a common sense thing. However since it is not a normal way of moving, it does require a good deal of our friend... "mindfulness."

thanks for your support Mari. Sorry I didn't answer last night. was kinda wrapped up in my own goings on. :o:rolleyes

i sometimes wonder if the talk of me gobbling so much gabapentin don't bother you some, considering your experience with it. and i've been wondering if you are feeling any better since you went back to your normal dose - it's been a few days now... (?)

~ waves ~ ok now for that post before i forget

Sunday May 27 ... medication etc
 

Sunday 27 May

00:00 -- 30mg codeine (w/500 useless paracetamol)
03:00 -- 400 mg gabapentin
04:30 -- 30mg codeine (w/500 useless paracetamol)
09:44 -- 600 mg gabapentin
14:40 -- 400 mg gabapentin
18:48 -- 400 mg gabapentin
22:45 -- 300 mg gabapentin

tbd what dosages i will use today. 600 q4h seemed to work well, but if i kept that up it would put me at 3600 mg qd... would prefer to stay lower than that. on the other hand, 300 q3h (would be 2400 qd) turned out not to work that well .... but perhaps only becuase of my activities (cooking, chopping etc), and/or duress as the day went on.

so perhaps i need to do something in between. probably will play by ear.

the codeine added on to the gabapentin last night turned out very well... had spells without pain what a relief! very sleepy though.

talk about sleepy. i think i will snooze some more. alarm i sset for 4 hours to make sure i take something more, no later than that.... OWWW, geez. i wasn't even moving. i bet lie ddown

~ waves ~

Waves,

I am not bothered but I am completely astonished at the amount and the frequency of the Gabapentin you are taking. I am thrilled that it is helping you.

Are you expecting this amount to decrease from the 1600 and 1950 mgs a day to decrease when you are over the phase that you are in now? Do you have what is likely to be a standard dose for most days?
I guess I am asking is if you are medicating for headaches and other stuff that requires you to change the dose daily and if you expect wide ranges in the dose for the majority of your days? Are you hoping to settle on a dose that works most days or are you fine with being able to make changes to the plan as needed each day and even within individual days?

Perhaps I sound dumb. I am completely strung out on my probably a third of a capsule of 300 mgs. I'll figure out how to write about that later. ('Just woke up from a non-restful sleep and will need to reset cognition somehow before I try to express my self.)

M

I forget, when do you see a neuro, maybe there is something time released so that you don't have to medicate yourself every 3 hours or so....seems like a total PITA, if you were working at the moment how could you keep up with all of that? I feel for you.
bizi:hug:

current dosing is not part of "plan" - but i have a migraine and this works
 

Dear Mari and Bizi,

regarding medication/frequency.

my regular dose of gabapentin is 1200 mg a day in 3 or 4 divided doses. (3 or 4 is my choice.) the neuro may have me try something different - fine. pregabalin is a sort of extended release version - newer med, no generic, not affordable.

i expect to have one or two migraine episodes a month if neuro leaves me on gabapentin. i hope the episodes will shrink back down to 1 per month, of only 1 day duration (my original pattern). in any event, i want abortive medication such as a triptan that will killoff the migraine when it starts. that's why i'm going to a neuro.

using large doses of gabapentin to medicate breakthrough migraines is an ad hoc, interim solution that doesn't completely cover me but knocks pain level down a good chunk. thank goodess i have nothing else right now. :( the codeine alone won't cover me: amount i can take is VERY limited as the stupid paracetamol content of those pills would exceed safety limit!

after using these amounts of gabapentin, i will have to taper over a few days. hence the importance of tracking total amount, and trying to stay as low as possible...

hope that clarifies :hug::hug::hug:

~ waves ~

Waves,
Yes. I understand that this is ad hoc until after the neuro.

I think I was commenting on the daily variations.
It's ok. I understand. I am not writing very well.

I am happy that you have a solution --- however ad hoc it is -- that mostly works ( with the codeine and the mostly useless additive).

M

Dear Bizi

I didn't read your post quite right... between the light sensitivity, grogginess and vision problems - don't always have my glasses on, in favor of shades, but also my meyes are tired and keep blinking ... anyway.... annnnnnnnnyway, krikey can i ever get off on tangents...


you asked when i see a neuro............. June 15th.

i missed that question - thought you were just suggesting i ask about meds, lol.

this neuro is not a migraine specialist, in fact the clinic suggested i see their other neuro who usually handles migraine cases. however, this is the neuro my pdoc knows personally and who has an intensive background in psychiatric treatment. this will be helpful for me esp dealing with serotonergic agents like triptans... he is more likely to be able to evaluate risk of activation as well as "serotonin snydrome" especially with me being on Zoloft already. And since he knows my pdoc personally, if he has questions, he can call him, LOL.

ok alarm went off gotta go take another pill... seem to be doing ok for now other than eyes. need coffee too...

~ waves ~

p.s. missed this too - if i were working, i would not be viable to work during these days. as i said i am not fully covered. the dosing every 3-4 waking hours is no biggie - no different than taking ibuprofen every 4 hours, or my allergy stuff been there done that for years. thing is i'm not totally covered and can't do normal activities ... must rest/sleep every now and then, need icepack as well.... bla bla bla... no, lol, i would not even be able to handle the commute lol. all that shake rattle and roll would not fall into "floating" around... or not i'd get to work with a h/a from hell.