Hi Beth,

Well, now I'm sitting here worrying because I didn't try to convince you.

The thing is, that for a lot of people it doesn't seem to help as much as it helped me, but I had sOOOOO much.

That's why I keep mentioning how very much I had.

I'm not sure than a 5mg Methylcobalamin lozenge a day would reduce your pain. I just don't know. It might help your nerves not degenerate, though.

If you look at a list of low B12 symptoms, and you find that some of yours are listed... then maybe if you tried it and kept track of each of your symptoms, you'd see a reduction in them... then you might feel more confident.

See, I don't know if anyone could have convinced me about it prior to my experience of it. I was just sooo sick... there's no way that I would have thought the problem was a vitamin deficiency...

There's a long list of symptoms on the bottom of this page:
http://www.health-boundaries-bite.co...2-History.html

BUT, this year when I was hoping that my back pain would go away... it didn't seem as if the B12 made it go away like I thought it did last time.

I added amino acids, and magnesium, and serrapeptase, and I was able to walk a little bit before the pain was overpowering...

and now the pain is sooo much better.

so, I think B12 helps with peripheral neuropathy pain quite quickly, relatively speaking. But for other pain... it may take other things to "heal" the condition...

Oh dear, I probably have gone too far.

But I do feel as if some things that seem as if they are beyond healing, really can heal... if the body just has enough rest and supplies.

(((((((((Beth))))))))))

Thank you for your input. I am taking cyanocobalamin B12 and am taking 2500mg. As of 6 months ago my levels were at 1099. Which is pretty good. A lot higher than most.

Pain is still there today and if persist through tonight, I will definitely be hitting the ER tomorrow morning. I now can't seem to get out of bed because of exhaustion, nausea, and of course pain, although I am getting sleep with the vicoden.

Please keep the thoughts coming. I appreciate them all.

Missy

Hi Missy,

(((((((Missy)))))))

I've experienced the nausea from pain... it sure doesn't help.

I know it seems as if your B12 level is high... but that's because we're all led to view B12 levels from the point of view of people who are healthy and have full stores of the vitamin in their bodies.

Irritates me no end.

I was just reading my Time Line from when I first had b12 replacement therapy, and I see that it did relieve my pain.
http://www.health-boundaries-bite.com/TimeLine.html

I was thinking it was going to do that again now, with my back... but it didn't.

So that's when I started taking a lot more magnesium, some amino acids in my coffee a few times a day, and ... I forget. Darn it! Oh... serrapeptase.

But it isn't an instant end to the pain.

Not instant, but I must say that the debilitating pain in my back is gone for long periods of time, and if I don't overdo it, it seems to actually be totally gone. (But not wanting to tempt fate, here.)

(((((((((Missy)))))))))))

Remember, when your B12 level is checked, it's the amount in your blood, not your tissue that's being reflected in the test results.

I agree with ConsiderThis....vitamins can help with the fatigue and pain. I take a very good multi-v made for people with FM, which has the extra B along with Malic Acid and other minerals that specialists seems to want us to take and I feel much better when I do take it. I know when I don't and feel sluggish and I seem to have more pain. I am also anemic so I have to take an extra 27mg of Iron. Now when I don't take that I know it!
I have been down the road of pain killers and not a one did me any good. Oh they did at first but eventually they crapped out and I was going higher and higher in doses.
Now I take Robaxin 4 times a day, which is a muscle relaxant and it helps me quite a bit. I am also on 6 other meds for my other issues and they help too. I know I will be taking these meds for the foreseeable future and have accepted it.
I think you need to find another path to control your pain, be it the supplement route or another type of med.
Good luck to you.

Hi Wendy,

You made my day! I've been so exhausted and down as a result. It was just so nice to see your message in my inbox. Thank you.

(((((((Wendy))))))))

When you mentioned iron I was reminded that for as long as I can remember... I think from before I was ten, and I'm over 60 now, I was always prescribed iron because I was iron anemic.

I used to have really blue skin under my fingernails, especially my little fingers.

But then after I had B12 replacement therapy that all went away. I don't get that lightheaded feeling when I stand up anymore - and before replacement I had always gotten that.

I also have more color generally. (I used to go with a fellow who was half Ojibwa and half Italian, and he used to say I was a "really white white" as opposed, I suppose, to saying I was a really pale, pale face - this is hard to say to convey that he was teasing with his observation... )

When I was in highschool I used to love when we had plays and I could put on grease paint and look in the mirror and have some color. It always amused me that I moved to New Mexico where so many people are Hispanic, and where the women have such beautiful skin... I could not have moved somewhere harder to compete.

Anyway, once I'd had quite a bit of replacement B12 therapy, I had so much better color.

I am just so lucky that the holistic M.D. I went to gave me the prescription for a shot a day for a year... and that once I had tetanus I began to use it... up until then it just seemed as if she must have made a mistake...

But once I began to have that huge amount... even my really bad peripheral neuropathy began to go away... and now it's gone except for when there is stress.

But my color came back before that.

I better stop writing, I'm getting confused. I should have some morning coffee.



Thank you again!!!!!

So Much!!!!!

Those mysterious bruises you have all over are probably bed sores because you are living your life in your bed and one side hurts more than the other, probably cause you choose to lay on that one side more than the other.

I have my pc/internet on the right side of my bed so, for hours a day I would be laying on my right side. Needlesss to say, months of this cause problems for me on that side. I moved my whole pc setup to the other side of the bed and the pain on my right side is gone.

Surprise!!!!

Topamax 200mg
Lamictal 100mg
Verapmil 480mg
Cymbalta 120mg
Diazepam 20mg

your on all these at the same time. No wonder you are hurting and bruised . You only need to be on one of these with possibly a dosage change . OMGGGGGGGGGGGGGGGGGGGGGGGG Please talk with your Dr. face to face and get things changed . And you need to get up out of that bed , the more you stay in it the harder it is to get up. But getting rid of half your meds should help alot. wow

Thank you razzle for your concern of my meds. Since I last post, I have talked to all my docs about the meds to see how we can limit them but yet get everything treated. So here is what we have come up with.

For Migraines
Verapamil 480 (and Migri-Eaze)

For Seizures
Lamictal 100mg

For Fibro
Celebrex, Lyrica

For Major Depressive Disorder
Cymbalta 120mg

For Sleep Disorder and Major Depressive Disorder
Seroquil 50mg


Please understand, that although I am in bed, I am not sleeping. I am laying there out of sheer exhaustion. I get up with my son at 5:30a.m every morning and get him off to school. Then I do some chores around the house. Get my husband up for work and that is it for me. I am exhausted. I try and take a bath for myself, but that usually comes in the evening when my husband gets home, due to the seizures and the fact that I have a hard time getting out of the bath. I don't take showers, because it is too hard for me to be on my legs that long while I am washing and conditioning my hair. And yes I have thought about doing my hair in the tub or sink and then showing, it is just that I hate to have to do it separately. I hate do put my life on hold for everything. I can't do much with my son or my husband and that makes me angry. I hate when the doctors tell me to be patient it will get better. I just hate what I can't control.

Sorry, I must go now.

Missy

Missy...congrats on talking with your docs and thinking of a plan that can help you and decrease your pain. Unfortunately all those meds have a depressive effect on the body (not on the mind all the time). Which may be a good reason for your exhaustion. I don't blame you for laying down. I did it for 5 years. Luckily I have evened out and I am working again, but it was a long hard 5 years to get here. Even now I am still very tired.
I wouldn't worry about it....it makes you more tired.