Originally Posted by ConsiderThis

Oh... ask him if he knows is she ever performed in Provincetown... will you?

hubby the walking encylopedia said he never saw her in person and that she made very few appearances in the US. Part of the resistance during ww2 and very popular with the french and even german soldiers.

he's pretty handy to have around - I think I'll keep him awhile longer

[anonymous]

Originally Posted by dorry

Isn't JL on the west coast now with linden labs? I thought that was the problem with why he couldn't physically get back to boston to fix the server. Something like that.

I am SO confused.

Per JL’s web page http://zero.hastypastry.net/pathfinder/ it states, “In Real Life, I live and work remotely from the Boston area, but frequently travel to San Francisco where the main Linden Lab office is located.” Per this link on his flickr page http://www.flickr.com/photos/pathfin...7594248161687/ it appears that he did go to SF (Linden Lab) over the Summer for the Second Life Community Convention (Aug. 18-20).


His schedule over the Summer may be found on his web page http://zero.hastypastry.net/pathfinder/ under “Recent Presentations and Talks” and documented via photos from his flickr page. It appears that he has traveled over the Summer, but most of the trips appear to have been for only a few days each.

[Jaye]

Hi, Ellie, I'm Jaye, and I have had Parkinson's Disease for about ten years and painful degenerative arthritis of my left hip for about five.

I'm one of the old faithfuls of the PD board, but there are new people who don't know me because I haven't been posting much lately. The hip is majorly painful and I don't know how to talk about it. The PD is fatal but the pain's not. However, if I'd listened to the first orthopedic surgeon, I'd still be waiting for surgery and I'd have no information about what's happening to me. I thought we should get on with it because the PD keeps getting worse and I have dystonias (muscles suddenly getting rock-stiff) in that thigh, and I was tired of the rudeness of him and his office staff, so I got a new doc. The second orthopedic surgeon will replace my hip in less than a month from now, and the first thing he said to me was, "Why have you waited this long to take care of this?" "Because doctors don't listen to their patients," I said. He explained that any more waiting and there wouldn't be enough pelvis left to attach the prosthesis to. I guess my other docs just thought I was being whiney about my PD.

And my other doctors have been nagging me to exercise. I've been telling them it's too painful to walk, and they keep telling me to walk anyway. Now maybe they'll believe me.

The point being, if i hadn't been here helping newer people deal with doctors all this time, I don't know if I would have woken up in time to change doctors. I don't think anyone's actually reading my posts through here, though, because they're maybe too intent on bursting out with what they want to say. Or someone reads them and jumps on my case about something and tells me how to feel. Well, it seems like it anyway.

Welcome to whatever this is.

The most important thing I've learned in Braintalk 0, 0.5, 0.75, 1, and 2 is not to tell other people how they should anything--post, talk, feel, act, be. Remove the word "should" when talking about or to others, and you will be much happier and wiser. So you really should do as I say.

I like a person who stands up for what they believe in. See you on one of my rare forays into chat some time.

Jaye

[ConsiderThis]

Originally Posted by Jaye

Hi, Ellie, I'm Jaye, and I have had Parkinson's Disease for about ten years and painful degenerative arthritis of my left hip for about five.

I'm one of the old faithfuls of the PD board, but there are new people who don't know me because I haven't been posting much lately. The hip is majorly painful and I don't know how to talk about it. The PD is fatal but the pain's not. However, if I'd listened to the first orthopedic surgeon, I'd still be waiting for surgery and I'd have no information about what's happening to me. I thought we should get on with it because the PD keeps getting worse and I have dystonias (muscles suddenly getting rock-stiff) in that thigh, and I was tired of the rudeness of him and his office staff, so I got a new doc. The second orthopedic surgeon will replace my hip in less than a month from now, and the first thing he said to me was, "Why have you waited this long to take care of this?" "Because doctors don't listen to their patients," I said. He explained that any more waiting and there wouldn't be enough pelvis left to attach the prosthesis to. I guess my other docs just thought I was being whiney about my PD.

And my other doctors have been nagging me to exercise. I've been telling them it's too painful to walk, and they keep telling me to walk anyway. Now maybe they'll believe me.

Jaye

((((((((Jayne))))))))

I'm so glad you are getting the operation, and I'm so sorry you had to wait so long.

I've had so many experiences similar to yours with the first doctor and his office. It is infuriating.

It is so refreshing and hopeful making to read your post and see that you are making progress (in spite of the less than helpful first doc) !!!!! thank you so much for posting!!!!!

[Jaye]

Thank you for responding. Your post brought tears to my eyes.

I used to live in Albuquerque. Moved away almost 20 years ago and I still miss it. We used to take our kids to summer camp outside Santa Fe, place called Camp Stoney.

All the best,
Jaye

[paula_w]

Jaye is a bosom buddy [i watched that recently for the first time in many years - hysterical - who would have thought Tom Hanks would go on to such greatness then, but looking back, he was funny and likable as a man or woman lol.]

Jaye and I can say pretty much anything to each other and have -hahaha. The other night we were talking about our flaws - seems we have a few - lol - Jaye's being that she gets snotty and mine being too direct . We're working on these things. Not saying you were snotty sounding in that post Jaye, just spicing it up and letting you know I was listening ...lol....am i being too direct? oh dear we'll have to keep trying.

I do think we should - oops - let me rephrase that - perhaps someday soon, instead of discussing John,since we are from multiple health forums - could look at some of the clinical trial legislation concerning access to experimental drugs..this is important to all of us. Maybe we could ask for a clinical trial forum. Cliincal trials are what makes or breaks your prognosis and there are a whole lot of improvements needed and possible.

ok enough for now....i see potential in seriously helping each other both on and off the forums. Jaye learned, "again" that you must question your doctors.

But it must be with humor included!!

paula

[Ellie]

Hey guys! My medicine knocked me out last night. I wanted to update.

I feel more clear on everything now, sparing details.

I have access to some very popular websites, and I will be promoting this website. For now, going to major websites and posting braintalk - braintalkhastypastry, etc. will get the page found (Post the first name then include a link here).

I'm bringing a new friend here, too. Give her a warm welcome when she shows up.

I sent a PM to the admin, and asked for a few sub-forums, also. I think having some fun stuff (recipes, books, etc.) would be a joy!

[Thelma]

Jaye's being that she gets snotty and mine being too direct Oh my jeez it is only a few posts and my name will be there as well. Wonder what my title will be lol lol

How are you 2 doing. sorry I had to leave the chat so fast. what was the phone call all about Jaye and why to you Paula.

I got my new name...........confused

Oh by the way will be leaving the site again in a week or two for another go at removing one. I need to think and try and find why it is worth it.

sorry people for getting a little off track here but these are 2 good people who can help you........give you zzzz when you need it but in the long run be there when you need them regardless of what has transpired before

Not many left with these attributes.

[ConsiderThis]

Have you seen this post?

http://forums.braintalk2.org/showthread.php?t=909

[ConsiderThis]

Originally Posted by Jaye

Thank you for responding. Your post brought tears to my eyes.

I used to live in Albuquerque. Moved away almost 20 years ago and I still miss it. We used to take our kids to summer camp outside Santa Fe, place called Camp Stoney.

All the best,
Jaye

((((((((((Jaye)))))))))

Oh my gosh... Camp Stoney -- I know that place. I used to sell real estate and I went in there a few times when I was looking for other things along that road.

Wow!!!!!!!!!!!

(((((((((Jaye))))))))))))