Thank you Sue.
No, I do not have any confusion . But I do have constant Ice Pick migrane headache, comes for days, then dissapears for a while. When I wake up, sometimes I feel that I wake up gasping for air. I do have a positive autonomic neuropathy, so there is possible, as you said some sleep apnea or something.
I realy want to have a sleep study. I called that neurologist office today, he is a professor at university specialising in neuropathy. So I got the secretary to fax his notes, where he recomend an EEG, to my local neurologist. This way, I can have my local neurologist order these test at my local hopital, then take it from there.
You are so right, when they read the notes to me, he is saying it could be Simple Partial seizure . This makes me real worried. I want to have the tests ASAP.
But what I am experiencing, is that we have to work so hard, push forward to get our medical tests and treatments. All theese doctors should have their offices staffed with RN, Nurse Practitioner and patients advocates setting up tests and doing patient education. Should have this kind of staffing instead of a lot of secretaries, medical assistants and people just taking you in to the room, checking you temperatur, and doing nothing else,
J
The doctor talked about possible antiseizure meds, but I am already on Lyrica, is that not an anti seizure med? As a matter of fact, I am trapping down on the dose, and adding Amitriptyline. May be that is why I am having these symptoms??? Then again, I have had this for months.
Thank you for your input.
How are you coping with your seizures?