[flopper]

4 days spent in the hospital & very little was accomplished. After 3 hours of flopping around while awake I finally got hauled out. I vagually recall heat running down my face & I was told my hand had turned blue & almost black.
Ativan was given, one shot & nothing on the CT scan came back. They said they would keep me over night because something wasn't right. (Don't ya love that?) EEG was done second day, doses upped & 3rd day another Ct was done. The hand felt hot, frozen or slimy. It is still feeling like it is moving, although it doesn't & activity has not yet left.
I would think nerve damage possibly did the hand, or it may just be a new odd ball feeling during activity.
So in one week I'll be back to the family Dr. to prove I haven't croaked yet & get some copies since very little was told me.
I love those hospitals!

[Porkette]

(((flopper)))
I'm so sorry to hear that you've been in the hospital. I hope things go better for you. I also had my go around with my epi last month after having an eeg done and a yearly check up only for the epi to tell me that he didn't bother looking at my eeg and then he tried to put me on new AED's knowing I'm drug resistant. I ask myself the question if maybe what's going on with you is a status cp sz. Often I will have a cp sz. and I have muscle spasms that I can't control for a few seconds. I'm aware and concsious during this time and maybe this is what's happening with you only it's a status cp sz. meaning it can last for hours if not days until enough seizure med is put into your system to stop the seizure. Here's wishing you well and May God Bless You!

Sue

[flopper]

That is what I thought. Apparently, one Dr. doesn't speak w/ the other. I was such a mess w/ the activity but my family Dr was pretty sure I still had activity. No one offered ativan though.
I dug up some ativan last night, but activity still w/ me, but not as bad.
Obviously E.R. should have dosed me up w/ valium. They were told the acivity had been going on for 3 hours. Unless things have changed, status is when the flop is longer than 20-30 minutes. Maybe they can't do the math. I was walking & talking (somewhat) so I guess that was good enough.

Thanks!

[Porkette]

Hi flopper,
How are you doing? I hope things are going well for you. To get more info. on this type of problem you can call the Epilepsy Foundation of America at 1-800-332-1000 and let them know what's going on. Also check out the following websites for more info.
http://www.neuropat.dote.hu/neurology.htm
Click on epilepsy when the main page comes up

or
www.epilepsy.com

Here's wishing you well and May God Bless You!

Sue

[flopper]

Well Sue-

It appears that last dose (1mg) of my Ativan has not done the trick. Activity is not as bad, but still rocking. I'm sure my blood work for the dilantin will be toxic by Tuseday since it was 19.3 two weeks prior. That darn liver might keel me over first. ) Against my wishes I may have to call the neuro. & see if they can slide me in. I'm not due until early July.

Thanks!!

[Porkette]

Hi flopper,
I'm so sorry things aren't looking to good for you. Take my word I've had sz. meds become toxic on me more than once and it made me feel like I was drunk. I couldn't stand on my own I had to hold onto something or have my husband hold me up. When I took depakote I was having blood tests every week because 43 people passed away from liver failure. You might want to try taking 5HTP along with flaxseed oil. I have a friend whose had sz. for many yrs. and is drug reisistant so she started taking B complex vitamins, flaxseed, and 5 HTP and she hasn't had a single sz. in 2 yrs. I'm getting sick and tired of sz. meds and I'm going to give this a try myself. Here's wishing you well and May God Bless You!

Sue

[flopper]

I picked up the records this A.M. & the neuro stated "experienced left hemispheric focal/complex partial seizures w/ generalization". So you were correct Sue he just failed to realize that it is yet today going on. Must be why he stated "no epileptiform activities were identified". The EEG was abnormal of course. "Suggests an area of structural abnormalities."
I assume EEG's can't read everything.

Oh- & get this. Unless someone failed to print the word Ativan they never dosed me up & that is why the seizure continues. They apparently told my family they would put some Ativan in, but it's not on the paper. Probably got busy, I was hauled off for the CT & forgotten. Unless there's a funky new word for Ativan now.

[Porkette]

Hi flopper,
I'm so sorry that thinks aren't looking better for you. It seems like your neuro doesn't give a darn from what you told me. You might want to try taking vitamin B12 1000 mcg. a day this has helped me with my cp sz. Just like you I also have cp and absence sz. the absence sz. are coming from the right temporal lobe and after many yrs. of sz. the brain damage spread to the left side of my brain which causes cp sz. I have found that taking diamox and mysoline the best 2 AED's to help control my sz. This summer when school gets out I'm going to start taking flaxseed oil and 5-HTP to see if it will possibly stop if not reduce my sz. since AED's don't help that much.
It's up to you but I would look into finding another neuro. or else go to an Epilepsy Center and see an epi. Here's wishing you well and May God Bless You!

Sue

[flopper]

Hi Sue-

I will return tomorrow @ the hospital to be sure all of the records were in my posession. My actual neuro. couldn't see me @ the hospital & obviously one of the "buddies" are dumb as a door nail.
I have been on a B-complex, but I will seriously look into B-12, flaxseed oil & 5-htp. I'm sure my neuro. will be full of ideas on new drugs, so I'll keep those in mind.

Thanks!

[flopper]

Saw the neuro yesterday. He reminded me that he had tried to get me one a different drug in Sept., but I refused. I reminded him That I attempted in Dec to get off the drug I was put back on & it wasn't working & should be removed & refused. Needless to say we were a couple of cats & dogs.
He read very little, did have his receptionast make a copy of my past hospital fling & a "veeg" in the hospital will be set up. He knew I had been given some ativan Friday by my family Dr. I think that purturbed him a bit. He said Ativan is only a band- aid, so why didn't he either ship me to the ER to stop it is beyond me. He didn't read very much of my info & I bet he had no idea that my family Dr. called to make the appt. Friday after he saw me. Hemade it sound like I was begging for an app't to annoy his day.
Needless to say, after the veeg I will be sopping for a reliable one. Better where comfy shoes. )
My in-law printed & faxed a more thorough explanation, but he may never see it.