[Ruby]

Hi. I am new to this community. I have a couple of questions, but first, I'll give you a little background. I have TL seizures which are partially controlled by lamictal and clonazepam. A neurologist and a psychiatrist have both seen me when I was having a seizure and assure me that I'm not crazy. In the beginning, often I just don't feel right or I hear music or have noise for a short time in one ear. Then I may have any of a host of other sx including deja vu, jamais vu, sort of automatic movements of my left hand and occasionally my right, slurring of my words or difficulty speaking, blurred vision, and specific/intense emotions. When I was in the hospital this summer for a C-section, I had a pretty bad seizure after they gave me IV benadryl (I didn't know it lowered seizure threshold and the staff evidently hadn't taken note of the seizure d/o in my chart). My seizures often last a pretty long time (anywhere from a few minutes to an hour or a bit more) and tend to come in clusters. Lorazepam stops them once they have started.

I have a couple of questioins. First, I had a 24-hour eeg- the kind you "wear" home a couple of summers ago when these first started in earnest. I had several seizures while hooked up, but they didn't show up on the eeg as seizures. Why was it normal during these events? I'm not crazy, mostly! and I'm not imagining the sx- honest! Trust me, I have asked myself and my doctor that over and over.

Second, I was wondering what others might know about seizures that last so long. What I've read talks in terms of minutes, at most for the seizure itself.

I'm asking partly b/c this all makes me feel really uncomfortable pursuing treatment more aggressively or going to see an epilepsy doc. I see a general neurologist who treats me for these and for migraines, but the seizures are only partially controlled and I'm having more memory trouble and low-level sx in between seizures, so I'm wondering if it would help to do more. But I'm afraid of what will happen if I tell them the 24 hour eeg was normal.

I'd appreciate any thoughts anyone might have.