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General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below. |
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#1 | ||
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Newly Joined
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Hello everybody, Brian here, first post in the community.
Not sure where to start but I'll start out saying I have changed dramatically over the past couple of years and it's really hard to live with the issues I am facing. Going back through childhood, grew up as a normal kid, fulfilled life and had a lot of fun. Coming towards the end of high school ( i am 19 now) things started to change and I lost the person who I used to be. My current symptoms on my everyday basis are: Depression Derealization; Depersonalization episodes from time to time, quite often Anxiety Anhedonia Tiredness ALWAYS Disrodered thinking, thinking in unusual ways and perceiving things very unusually Distorted/unusual view of reality Insomnia and OCD (rumination on thoughts and in my mind for hours when trying to fall asleep) I have been feeling this way for I would say about 2 years. I am living in a very strange and frightening world that anyone can only imagine to see in a nightmare. What brought me to this community was my research on myoclonic jerks. I was laying in bed, closed my eyes and tensed up my abdominal area and a giant rush through my head is what I felt as well as the body sense of "falling" and it almost felt like an orgasm through the whole body is how I would describe it. An absolutely severe and intense body sensation that caused me to do very severe myoclonic spasms in my abdominal region for a second or so and then I give up because it is frightening. Whenever I try to relax with my eyes closed I will jerk/spasm uncontrollably mainly in the abdominal area. I am having a hard time coping with what is going on and why. My question would be is there any type of testing I can do at a hospital or anywhere to see if I have some type of neurological issue that hasn't became a problem in my life until recently? I am currently on Lexapro-2 weeks in (10mg) and Trazadone to help me fall asleep. Thank you for your time and PMs are recommended if any further personal details need to be announced. |
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#2 | |||
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Member
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If you've had this going on for 2 years you would need to see a doctor about it. Those are rare symptoms to have all at the same time. I know what it's like to have a body that you can't figure out....medically. It's frustrating and I wish you good luck!!!
Heather
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--------------------------------------------------- RSD since 8/2005 Originally in left and right foot Spread in 2006 and Jan 2014 Both legs, arms. Chronic pain going back to 1992 . |
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#3 | |||
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Junior Member
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I have suffered from jerks and spasms for a very long time. My neurologist is on the ball with helping me with those. Do you have a neurologist?? I would definitely go and see what he/she would have to say. Good luck!
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Obstructive sleep apnea, Stiff person syndrome, fibromyalgia, anxiety, and MDD (major depressive disorder) . . |
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#4 | ||
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Junior Member
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Quote:
I have an appointment with my GP in 10 days to discuss a refferal to a neurologist about my symptoms. Lastly, what should I expect when I see the neurologist. I know that usually the first appointment is a consultation, but will I need to do an overnight EEG since they only happen at night? Thanks, Matt |
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#5 | ||
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Junior Member
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Hooked up to EEG (monitors the brain activity), but sleep tech told me that I did not have sleep apnea, and that there was nothing wrong even though I am CLEARLY jerking awake. Then talked to a "technologist specialist" that explained that the EEG they did was 'at a lesser frequency, with less channels, and less speed than in a neurological setting.' Very frustrating, as I wanted to know if my sleep problem was neurologically based. In ANY CASE , I have heard that some sleep studies may help to see the cause of the jerks. Also, I have an appointment with them in 10 days, so I will keep you posted with what I find out. If it isn't too much of a favor to ask, I was hoping if you could check out a youtube video that i made that show my symptoms to see if they are as severe as yours. http://www.youtube.com/watch?v=dQDsJkWR6pE Lastly, I do not endorse, not advise using medication without consulting a doctor first, but I have read that clonopen helps out with this exact type of problem, but that you can build a resistance and that it loses it effetiveness over time. In any case, best of luck, I do know exactly the hell that this but as everyone has told me - hang in there everything happens for a reason and keep pushing b/c you'll get the answers your looking for soon ![]() |
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