Hello and Welcome Carrie Ann

You'll find this a great place for sharing and support.

It sounds like time to see a specialist and get some tests run again. I say this since you said it has been years since you had anything but blood work done and you're getting worse. If you have a primary doctor that could be a place to start if you need a referral, otherwise neurology sounds like a good idea or even pain management.

As a member who deals with CRPS I am a little concerned that you say things got much worse after your knee injury. CRPS does tend to arise after trauma and causes some of the symptoms you are having. Pain, hypersensitivity and motor problems are common. As is a coldness in the area. Not everyone has color or temp changes and not everyone has all the symptoms all the time. It is a spectrum and can be difficult to diagnose, especially in "light" cases. A proper work up to rule out other problems with nerves or circulation is very important.

I hope you are able to find good care and answers. I certainly wouldn't put up with what is happening without trying to find a cause. There may very well be treatments that can help.

Welcome aboard. Make yourself at home, there is a lot to explore. There are FAQ and Search features at the top of the Main Forum page if you need.

Take care. I hope you find relief soon,