Hello and good day. I first want to thank everyone here for a wonderfully helpful site. I have browsed through the forums and read a lot looking for some possible answers to my own situation. Though I have found a few things related, nothing really stands out at me. What I did find however was a very friendly and helpful community. For this, I wanted to say thank you in advance.

Let me introduce myself. I am a thirty-nine year old woman and currently retired. I have three children, 19, 16 and 14. All were c-section due to high risk and other problems. I was lucky to have a doctor that was willing to wait and see if I could have my last two natural, but that did not prove a viable option. I am however thankful for three healthy boys.

Through out what I am about to explain, I had tried to stay as active as I could. Gymnastics, swimming, long distant running, body building, rock climbing.. anything I could do to stay active and "prove the doctors wrong".

Medical history is a bit shaky, as I have started to doubt some of what I was told by a plethora of physicians over the the years.

Other then bad teeth (which I brushed and flossed three times a day), my first medical problem I had was a (as i was told) a hiatal hernia when I was 8 years old. I remember having extreme abdominal pain when I was a child, though surgery was not done until I was 8.

Shortly after that, I am guessing around 9 or 10, I started having migraines. Though I was not aware what they were, all I knew then was that I had extreme headaches that would cause me to (odd i know) hide under my bed crying because they were so bad. Nausea, dizziness and nose bleeds tended to accompany them. I would get these every 1-3 months, however as I got older the frequency increased. My mother had sent me to doctors when I was young and they said I was just looking for attention. My mother was satisfied with that. I do not remember any answer for the nosebleeds. The migraines and eventually constant headaches became a lot worse in my early teens.

At 15 I had started getting them so bad I would pass out. I remember the first time this happened, I was rushed to UofM medical center, however they could not find any problem other then lowered blood pressure and glucose levels. The doctors there said I might have diabetes and put me on a diabetic controlled diet. I left the hospital with (my first) broken arm, collarbone and the migraine still.

By the time I was 17, my migraines were occurring about every month though were worse during my menstrual cycle. At this time I was attending college, and had to take several classes at home due to the pain.

Eventually I got used to it, and learned to take evening classes and work at night as I was able to. This helped somewhat as I realized that I was sensitive to bright lights. The summer of my 18th birthday, I had my first documented seizure while at an auction. Again, I do not remember anything other then my killer migraine and extreme sensitivity to pain. The doctors told me that I had epilepsy at this time, and that was the cause for it. They also said I had diabetes again and put me on (Humulin?) 4x a day, 75 units a day.

My problems got worse when I became pregnant the first time at 19. I had my first miscarriage along with the worse seizure I had yet to that point. The doctor then told me that I did not have diabetes and instead high blood pressure and that was the cause for my seizures, migraines, almost continual headaches and my miscarriage.

I had one more miscarriage, then my first successful son the end of that year. However, I was having grand mal seizures about once every 2-3 months.

... Long story short, I have seen many many doctors (neurologists, cardiologists, endocrinologists, and more) and each one has told me something different. Everyone says there is a problem, however no one has been able to find out what was wrong.

I also started suffering from extreme back pain in my mid 20's that only got worse.

I have been diagnosed with diabetes, mitro valve prolapse, lupus, cystic fibrosis (why ever did they think that?), degenerative bone and disc disease all the way up to MS. I pretty much gave up going to doctors in the last 5 years because of all the medications they had me on by the time i was 30. I really could have opened up my own pharmacy. (I now am only taking aspirin when my chest hurts, and excedrin migraine when my migrains get too bad.)

I have CT scans, MRI's, bone scans (all with and with out contrast), I have had several spinal taps (and yes they do hurt no matter what the professionals say), I have had every type of 'scopy possible. And each time they tell me they found something else wrong.

I have changed my opinion on my own heath care over the years and decided to just do the best I can for myself, live life the best I am able and be as happy as I can. This came about after a rather bad bout of depression when I could no longer work.

I do not believe I have tons of medical problems going on at once, there has to be an answer someplace. I may have one or two that are unrelated, but there has to be a common thread.

So, here are my symptoms. (the ones that are the worse for me are in red)

Muscle weakness (and knots in the muscles- sounds weird I know), pain and spasms- primarily in the shoulders radiating down the arm and in my legs (mostly on the right hand side)
Frequent fatigue,
Constant headaches with frequent migraines
Blurred/double vision, changing visions (can change from -4.75 to -5.75 in six months and back to 5.25 six months later)
Spots or "fuzzies" in my vision (constant since I was around 13 or so)
Seizures, (I do not remember when I have them, only the headache and neck pain afterward.)
Lower to mid back pain, with loss of leg movement/control, incontinence (when it gets very bad)- The more I move lift and especially walk, the worse it gets.
Frequent subconjunctival hemorrhage (new symptom-is not painful though coincides with migraines- in the last 3 months)- was told this was caused from straining, sneezing, coughing.. all the way up to high blood pressure.
Weight gain
Swollen and sensitive glands in the side of the neck. (possibly diet related and not related to actual health problem?)
Hot and cold flashes (hot=post menopausal.. cold= same thing?) (when I get cold, nothing can warm me up.. was told it was low blood pressure *sighs*)
Constant ringing in my ears (gets worse when I have migraines).

Okay, there is what I can think of off hand.

I have not worried too much over the last 5 years, since I do not think it would matter too much after all my doctor visits, emergency room visits and hospital stays (from 1 to 4 weeks at a time.) Basically, I despise going into the hospital and do not complain much at all at home.

I have found ways to keep myself busy from web design, 3d graphic design, support group and now working as lead designer on a mmorpg. However, my husband has become increasingly worried about me, and I guess his concern has become a bit infectious. Since the subconjunctival hemorrhage has started he now wants me to go either to the er (when he notices it) or see another physician.

Frankly.. I would rather go with some idea of what it could be.. instead of getting another new diagnosis. I dont know. I guess perhaps I am prattling on now. However I do not know what to do, or where to go. We have moved from Michigan U.S. to Alabama U.S. in the last three years, and the last physcian I saw when I was in the hospital (not by my choice... I was unconscious) said I had cancer and diabetes and fibromyalgia.

I do know this sounds like a lot. I went to see the doctor the ER physician recomended for me, and he thought I should see a psychologist .. until he got my records from Michigan the next week.

Myself, I would rather keep all these problems to myself and be happy with my family and new work over the net. However, I promised my husband I would do something. I guess this is the first step.

Thank you for "listening" and I appreciate it greatly. If anyone has any idea of what could be going on, I am all "ears". If I must see another doctor, I would like ot know what I am getting myself into, and not just another diagnosis and more medicines. (I hate taking pills.)

Thank you again and peace,
Odayin