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Old 12-24-2009, 10:44 AM #12
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AfterMyNap AfterMyNap is offline
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AfterMyNap AfterMyNap is offline
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Join Date: May 2007
Location: Right here. Duh.
Posts: 9,213
15 yr Member
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Hi, Charley! Welcome to NeuroTalk!

Yep, spasticity is probably my most dominant symptom and it's maddening. It hurts intensely and I am powerless to control it. I also take a lot of Zanaflex and Baclafen in alternating doses and it helps, but only a little.

What RW means by MMJ is medical marijuana and it's the only thing that calms me down enough to sleep. The amount is miniscule but it truly works for me. I just can't bring myself to use it during the day, bedtime only.

I agree with RW that the Baclafen pump might be a very real possibility for you. It takes a much smaller dose and they say it gives instant results. It has been recommended to me but I'm still not mentally ready for it.

My legs and back feel like they're in a constant battle to dominate the rest of my central nervous system universe and the competition is unrelenting and painful.

Common sense stretching works well for me but only during the stretch itself. And, yes, one stretch triggers an involuntary one elsewhere and forges everything back into the next excrutiating battle.

The climate here is cold now and going from indoors to outdoors is super hard as my legs turn into cured cement and won't even bend so I can force them into the car.

The biggest thing to include in your ADA accommodations list is FLEXIBILITY for the entirely UNPREDICTABLE circumstances that MS throws at us virtually every day. Your employer needs to understand that even you don't know what could come along and that you will do everything in your power to control these events.

Ask for suggestions from your employer as to ways they can accommodate you. There are many office configurations and auxiliary pieces of office furniture that are designed to curb fatigue, etc.

Take a look at the sites for the major office environment suppliers:

Steelcase:
http://www.steelcase.com/na/

Herman Miller:
http://www.hermanmiller.com/

Hon:
http://www.hon.com/

I have personally worked closely with each of these companies in their research and development departments. I can attest to their dedication to ergonomic solutions and their progressive commitment to maximizing comfort combined with utility.

If you take time to learn what is available, it may help you recognize multiple ways to accommodate that giant frame of yours.

Again, welcome to NT and do keep us posted on your progress.
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Last edited by AfterMyNap; 12-24-2009 at 11:05 AM.
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