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Old 04-17-2010, 05:59 PM #1
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jowen214 jowen214 is offline
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Join Date: Jan 2008
Location: N. Mississippi
Posts: 99
15 yr Member
jowen214 jowen214 is offline
Junior Member
jowen214's Avatar
 
Join Date: Jan 2008
Location: N. Mississippi
Posts: 99
15 yr Member
Default Tysabri Questions

It's been a while! I had a bad flare last fall (October-December). I can't do IVSM, so we tried a couple of medrol dose packs. Of course they didn't do any good. Finally started getting better toward end of Dec./beginning of Jan. The last couple of weeks, I've had something weird going on with my eye. My vision has been varying between a little blurry to pretty blurry, but it's been straightening itself out. I saw my eye dr. a week and a half ago and then again this past Wed. and it had changed significantly. In fact, the latest appt was b/c of some new symptoms I've been having.

I woke up a week ago (last Sat.) with my vision blurrier in that right eye and my depth perception was off. Of course, I was pretty off-balance and nauseous. Saw the eye dr Wed., then my neuro Thursday. It seems they think I have a mild case of ON, along with some other sxs that put me in another flare.

I'm not on any DMDs b/c of bad reactions to Avonex, Beta, and Copaxone. The subject of Tysabri has come up before, but my neuro and I decided that I just wasn't to the point of a serious discussion about it. He did suggest that I think about it when I saw him Thursday. The reason being the two flares I've had so close together and the one last fall being such a doozy. He's worried about permanent damage now. He said maybe think about getting on it until fingolomid gets approval.

I've spent last night and today reading those 2 whopper Tysabri threads. Thanks to all of you who've shared so much info! My question is really are there specific questions I should ask my neuro that I may not have thought about? Thanks so much!

***ETA: I also meant to ask for opinions as to whether you would consider going on it for a short amount of time? My neuro said it might be the thing to do until fingolomid gets approved. What do you think? Thanks again!

Jennifer
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Jennifer

12/05: MS Dx ~~ 1/06-5/06: Avonex ~~ 8/06-9/06: Copaxone ~~ 12/06: Betaseron ~~ 1/07: No DMDs For Now

Last edited by jowen214; 04-17-2010 at 06:47 PM.
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