[Erin524]

My flare that started out in late April that seemed to only affect my legs seems to have taken on a new life of it's own.

I had steroids (IVSM and a taper) in May that seemed to work. The numbness seemed to back off for a couple of weeks.

About nearly two weeks ago, I woke up and I had numbness again, from around my waist and down to my feet. My left hand (which has been varying degrees of numbness since last fall) seems to have started to get more and more numb, and that numbness seems to have moved to my shoulder and down my ribcage and joined up with the numbness around my waist.

When I stand up, sometimes I feel like I'm about to fall. (no falls yet) My right hand is starting to go numb now, and I'm having problems crocheting and knitting. (that's probably what disturbs me the most)

I have some fairly serious pain in my neck coming from my left shoulder, and it's causing my neck to hurt all the way up behind my left ear. That pain also seems to be on the right side of my neck, just not quite as painful as the left.

I dont feel good. Walking across my bedroom to the bathroom seems to suck all my energy. I feel sick all the time. I'm so tired that not even 12hrs of sleep helps.

I'm really disappointed that this flare seems to have kindled itself back into life after the steroids. It's really starting to scare me. I dont like this feeling and I want it to go away.

Kind of irritated that when I saw my neuro a couple of days after the symptoms started back up, that he didnt even do a neuro check on me, and pretty much blew me off when I told him the symptoms felt like they were coming back.

Hopefully my regular doctor will take me more seriously when I see him on monday. (he's the one who Rx the IVSM to me, after my neuro asked him to do the set up and follow up on the steroids, since my neuro seems to take several weeks a month off...every month. In neuro's defense, he's older and not well himself)