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06-18-2010, 07:18 AM
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#11 | |||
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Grand Magnate
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In MS you have to make your own decisions for you, a neuro is an experienced expert guide but not flawless. I am PPMS, no side effects with Rebif but it didn't help me at all. But that's me. Best of luck.
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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06-18-2010, 10:19 AM
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#12 | |||
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Magnate
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Welcome to NT. Sorry you needed to find us!
 I have no experience with Rebif but I am sure that you will find answers here!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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06-19-2010, 01:58 AM
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#13 | |||
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Senior Member
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Hi LuvSunflowers,
Welcome to NT. I am glad you decided to post right away. We love new people, but as others have said, I am sorry you have MS.I/2 of Rebif is just he same as Avonex, because Avonex is half the dosage of Rebif and both the same medications, Interferons. Have you had you Liver enzymes checked? That is the one I worried about when on Avonex. I couldn't continue Avonex for more than one year. My Liver rebelled. I went to Copaxone, and then LDN only. We are all different. Talk it over with your doctor, family, or special friend, but be your own advocate. Do you tolerate the side effects of Rebif? No chills , aches or pains? --or do yo pre-medicate? I wish you lots of luck with this decision. It's a tough one. Nice to meet you.
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LADY May happiness be at your door. May it knock early, stay late, and leave the gift of good health behind. "Life is what it is". We can only focus on controlling those things we can control, we must let go of the things we can't. |
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06-20-2010, 02:04 AM
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#14 | |||
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Senior Member
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Hi LSF and welcome to the group. Sorry you have to be here, but it's a great place with caring people and lots of information. I can't help you with the rebif, LDN here for a number of years, but wanted to say hello!
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_____________________________________________ .....Judy SPMS -- FIBROMYALGIA -- Ouch! and Ouch! . |
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