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Old 08-06-2010, 09:14 PM #7
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FaithS FaithS is offline
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Join Date: Jan 2008
Location: Kansas
Posts: 971
15 yr Member
FaithS FaithS is offline
Member
FaithS's Avatar
 
Join Date: Jan 2008
Location: Kansas
Posts: 971
15 yr Member
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Originally Posted by FaithS View Post
I've thought about pursuing CCVSI. However, when I've weighed the benefit/risk factors, I've decided that it's not worth it at this point.

My MS Specialist says that, except for study trials, it's starting to be pretty much shut down in the US, as two people have had serious complications. One procedure triggered death, resulting from a brain aneurysm, and another, who had a heart attack, survived.

I still support the concept of research, and the right of people to choose to participate in it. However, my choice, at this point, is not to.

~ Faith

Here are some links to studies that cast doubt on Zamboni's theories:

http://online.wsj.com/article/SB1000...155710380.html

http://online.wsj.com/article/SB1000...55710380.html"

~ Faith
__________________
aka MamaBug
Symptoms since 01/2002; Dx with MS: 10/2003; Back in limbo, then re-dx w/ MS: 07/2008
Betaseron 11/2003-08/2008; Copaxone 09/2008-present
Began receiving SSDI 11/2008
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