[coffeegirl]

Have no idea what on earth is going on with me or which forum I am to post under. Have been posting here every now and then over the last five years. The list of symptoms continues to increase. Feel like I'm a train wreck waiting to happen! Body is falling apart. Afraid of driving- not just due to the two nasty drugs the neurotologist has me taking but due to the severity of the symptoms...

Question 1) How many of you had severe vertigo when you first were dx'd?
2) Blurry/Double Vision? Daily?
3) Either wake up with chronic fatigue (so severe you feel like you
have ran a marathon 5 times. Or it begins in mid afternoon
after you start to do things or run errands/exercise?
4) Problems trying to urinate?
5) Problems walking/balance- other than vertigo.
6) Severe Migraines (MAV-dx) with inner ear dysfunctions
7) Two clear MRI's in last 3 years
8) Current regular Neuro and Neurotologist sending to dizzy clinic.
Gave symptom list to secretary. Instead of setting up appt. in
3-4 month normal appt. time- she put me on the current asap
waiting list. This freaked me out.
9) Sense of smell is almost gone. No clue with this one.
10) Tremors/numbness in hands. No clue what tests results came
back for sure as been told opposite things from two doctors.

Any advice? Feel like I'm clueless: really. No idea what is going on and no one will give me any answers. Very upset. Hubby is very angry with life like this- he has had it. I am not able to function like a normal person anymore. Basically- I'm disabled. He is having a hard time coming grips with it. I'm not sure that it will ever be back to normal again and if not, if he will accept it.