Reply
 
Thread Tools Display Modes
Old 07-28-2010, 10:05 AM #1
jeep4wd's Avatar
jeep4wd jeep4wd is offline
Junior Member
 
Join Date: Mar 2009
Location: Napanee,Ont,Canada
Posts: 75
15 yr Member
jeep4wd jeep4wd is offline
Junior Member
jeep4wd's Avatar
 
Join Date: Mar 2009
Location: Napanee,Ont,Canada
Posts: 75
15 yr Member
Default C.C.S.V.I. It's a great day in Canada!

News just out, a province in Canada is going to back clinical studies for the liberation treatment!Saskatchewan's premier announced today!Saskatchewan has the highest cases of M.S. in Canada.Increasing pressure from M.S. sufferers have moved the premier "No one in this province who doesn't know someone who is fighting this"The province will pay for studies into this!|My thought's finally some movement in this direction thanks to all in Saskatchewan...Maybe this will move the neurologist's to think in a different direction.Because going down this road has produced very little result's if any...
jeep4wd is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Aarcyn (07-28-2010), dmplaura (07-29-2010), EddieF (07-28-2010), Lady (08-09-2010), mrkmyword (07-28-2010), Pink (08-13-2010), SallyC (07-28-2010)
Old 07-28-2010, 11:58 AM #2
mrkmyword's Avatar
mrkmyword mrkmyword is offline
Junior Member
 
Join Date: May 2010
Location: Israel - and my head
Posts: 53
10 yr Member
mrkmyword mrkmyword is offline
Junior Member
mrkmyword's Avatar
 
Join Date: May 2010
Location: Israel - and my head
Posts: 53
10 yr Member
Thumbs up woohoo


keeping all fingers,toes and any other loose parts crossed
__________________
DX:June 2007
Plasmapheresis:2007
Cyclophosphamide :07/08
Rebif 44 :2008 -09
Copaxone: 2009 ongoing
atypical RRMS


NEVER assume!
I may not look sick but you should see my brain!
.

.


“The thing that is really hard, and really amazing, is giving up on being perfect and beginning the work of becoming yourself.”
Anna Quindlen(American Author, Journalist)
mrkmyword is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
jeep4wd (07-29-2010), Lady (08-09-2010)
Old 07-29-2010, 01:51 PM #3
sw8689 sw8689 is offline
Junior Member
 
Join Date: May 2008
Posts: 43
15 yr Member
sw8689 sw8689 is offline
Junior Member
 
Join Date: May 2008
Posts: 43
15 yr Member
Default

I love Sask's Government! They are becoming more and more a positive force for that province.

The ubc ms clinic in BC is supposed to be doing studies as well, but I haven't heard anything so far? Any one else?
sw8689 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (07-31-2010), jeep4wd (07-29-2010), Lady (08-09-2010)
Old 07-30-2010, 10:18 PM #4
FaithS's Avatar
FaithS FaithS is offline
Member
 
Join Date: Jan 2008
Location: Kansas
Posts: 971
15 yr Member
FaithS FaithS is offline
Member
FaithS's Avatar
 
Join Date: Jan 2008
Location: Kansas
Posts: 971
15 yr Member
Default

I've thought about pursuing CCVSI. However, when I've weighed the benefit/risk factors, I've decided that it's not worth it at this point.

My MS Specialist says that, except for study trials, it's starting to be pretty much shut down in the US, as two people have had serious complications. One procedure triggered death, resulting from a brain aneurysm, and another, who had a heart attack, survived.

I still support the concept of research, and the right of people to choose to participate in it. However, my choice, at this point, is not to.

~ Faith
__________________
aka MamaBug
Symptoms since 01/2002; Dx with MS: 10/2003; Back in limbo, then re-dx w/ MS: 07/2008
Betaseron 11/2003-08/2008; Copaxone 09/2008-present
Began receiving SSDI 11/2008
FaithS is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dejibo (08-04-2010), mrkmyword (07-31-2010)
Old 08-04-2010, 12:23 PM #5
jeep4wd's Avatar
jeep4wd jeep4wd is offline
Junior Member
 
Join Date: Mar 2009
Location: Napanee,Ont,Canada
Posts: 75
15 yr Member
jeep4wd jeep4wd is offline
Junior Member
jeep4wd's Avatar
 
Join Date: Mar 2009
Location: Napanee,Ont,Canada
Posts: 75
15 yr Member
Default More news

More New's the premier of Ontario Dalton Mcginty announced that Ontario has to wait for more proof that the liberation treatment works..Before the province commits goverment money.If a heart patient has any blockages they are fixed but not M.S. patients.Lucky for me and my family we live in Ontario.
jeep4wd is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (08-04-2010), SallyC (08-04-2010)
Old 08-04-2010, 07:32 PM #6
dmplaura's Avatar
dmplaura dmplaura is offline
Magnate
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
Default

Quote:
Originally Posted by jeep4wd View Post
More New's the premier of Ontario Dalton Mcginty announced that Ontario has to wait for more proof that the liberation treatment works..Before the province commits goverment money.If a heart patient has any blockages they are fixed but not M.S. patients.Lucky for me and my family we live in Ontario.
The same outcome for my friend living in Belleville, who saw a Neurologist in Kingston, Ontario and was a couple steps away from scans and such. She showed up the day of (going back a few months here) and the neuro had pulled out of this.

WHY? I can only imagine pressure from the higher powers, and the almighty buck. It's crap! Give us the options we need! Let US decide what's best for US!

~vent~
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
dmplaura is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lady (08-09-2010)
Old 08-06-2010, 09:14 PM #7
FaithS's Avatar
FaithS FaithS is offline
Member
 
Join Date: Jan 2008
Location: Kansas
Posts: 971
15 yr Member
FaithS FaithS is offline
Member
FaithS's Avatar
 
Join Date: Jan 2008
Location: Kansas
Posts: 971
15 yr Member
Default

Quote:
Originally Posted by FaithS View Post
I've thought about pursuing CCVSI. However, when I've weighed the benefit/risk factors, I've decided that it's not worth it at this point.

My MS Specialist says that, except for study trials, it's starting to be pretty much shut down in the US, as two people have had serious complications. One procedure triggered death, resulting from a brain aneurysm, and another, who had a heart attack, survived.

I still support the concept of research, and the right of people to choose to participate in it. However, my choice, at this point, is not to.

~ Faith

Here are some links to studies that cast doubt on Zamboni's theories:

http://online.wsj.com/article/SB1000...155710380.html

http://online.wsj.com/article/SB1000...55710380.html"

~ Faith
__________________
aka MamaBug
Symptoms since 01/2002; Dx with MS: 10/2003; Back in limbo, then re-dx w/ MS: 07/2008
Betaseron 11/2003-08/2008; Copaxone 09/2008-present
Began receiving SSDI 11/2008
FaithS is offline   Reply With QuoteReply With Quote
Old 08-07-2010, 11:13 AM #8
sw8689 sw8689 is offline
Junior Member
 
Join Date: May 2008
Posts: 43
15 yr Member
sw8689 sw8689 is offline
Junior Member
 
Join Date: May 2008
Posts: 43
15 yr Member
Default

Quote:
Originally Posted by FaithS View Post

Here are some links to studies that cast doubt on Zamboni's theories:

http://online.wsj.com/article/SB1000...155710380.html

http://online.wsj.com/article/SB1000...55710380.html"

~ Faith
Thank you for these articles. The wall street one is expired I think, never the less the first one is interesting. I too, think it is important to watch these and further control groups.

I also understand our fellow MS'ers like my brother who are cycling with attack after attack needing to action if there is any hope.

I just wish they would allow the angioplasty here in North America so we know are folks don't have to go out of the country. And I would also like to know if there is any progress on a venous stent. Angiotech in Vancouver here, invented the first artery stent, I wonder if they are doing anything. If I can I will look into it next week for us.
sw8689 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
FaithS (08-07-2010), SallyC (08-07-2010)
Old 08-07-2010, 03:39 PM #9
EddieF's Avatar
EddieF EddieF is offline
Member
 
Join Date: Oct 2009
Location: USA
Posts: 702
15 yr Member
EddieF EddieF is offline
Member
EddieF's Avatar
 
Join Date: Oct 2009
Location: USA
Posts: 702
15 yr Member
Default

Angiotech needs a ring from you sw8689 Monday. And please get reason why (if any) how Vein/Artery vari stent wise other then more oxygen & pressure.
EddieF is offline   Reply With QuoteReply With Quote
Old 08-07-2010, 03:56 PM #10
sw8689 sw8689 is offline
Junior Member
 
Join Date: May 2008
Posts: 43
15 yr Member
sw8689 sw8689 is offline
Junior Member
 
Join Date: May 2008
Posts: 43
15 yr Member
Default

Going to try...
sw8689 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (08-15-2010), EddieF (08-07-2010)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Thank You Canada!!! PolarExpress Multiple Sclerosis 16 09-04-2008 12:51 PM
Canada: Great Maritime Tulip Quest Stitcher Parkinson's Disease 0 08-08-2008 08:33 PM
New here from Ontario canada mac001 New Member Introductions 8 06-29-2008 06:06 AM
Sleepless in Canada Evon Parkinson's Disease 1 07-10-2007 05:55 AM


All times are GMT -5. The time now is 11:34 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.